2020
DOI: 10.1111/1756-185x.13852
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Quality of English‐language videos on YouTube as a source of information on systemic lupus erythematosus

Abstract: Systemic lupus erythematosus (SLE) is a systemic autoimmune disease that has an increasing prevalence worldwide. 1 Presentation of the disease is highly variable, ranging from mild joint and skin involvement, to life-threatening renal, hematologic or neurologic involvement. Despite advancements in treatment, patients still suffer from various co-morbidities, a lowered quality of life yet unchanged mortality rates, thus emphasizing the need to further optimize their medical care. 1 Patient education has been sh… Show more

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Cited by 53 publications
(71 citation statements)
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“…In our study, as expected, the modified DISCERN score indicating high reliability was significantly higher in the high-quality videos. Similarly, Garg et al and Ng et al stated that the useful videos had the highest DISCERN scores [ 12 , 27 ]. In addition, the duration of the videos was significantly higher in the high-quality videos in our sample.…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…In our study, as expected, the modified DISCERN score indicating high reliability was significantly higher in the high-quality videos. Similarly, Garg et al and Ng et al stated that the useful videos had the highest DISCERN scores [ 12 , 27 ]. In addition, the duration of the videos was significantly higher in the high-quality videos in our sample.…”
Section: Discussionmentioning
confidence: 99%
“…We accessed the YouTube website using Google Chrome’s incognito mode to filter prior search history. As most viewers often view the first few pages of search results [ 12 ], the first 200 videos were included in the study using the keyword “musculoskeletal ultrasound.” Previous studies have also used a similar path [ 13 , 14 ]. We also performed an additional analysis using the search term “rheumatological musculoskeletal ultrasound” to assess the differences between the original and the additional search results.…”
Section: Methodsmentioning
confidence: 99%
“…5 Daha önceki çalışmalarda gastroözefagial reflü, sistemik lupus eritematozus, benign prostat hiperplazisi, Çölyak hastalığı, Human Papilloma virüsü aşısı, eklem hastalıkları, adenotonsillektomi gibi pek çok tıbbi başlık hakkında olan videoların tıbbi bilgi içerikleri değerlendirilmişti. [6][7][8][9][10][11][12] Astımla ilgili çok sayıda video olup, hastalar tarafından bilgi kaynağı olarak kullanılmaktadır ancak literatürde bu videoların içeriklerinin sağlık profesyonelleri tarafından değerlendirildiği sadece bir çalışma mevcuttur. 3 Çalışmamızda ülkemizde de sıklıkla bilgi kaynağı olarak kullanılan Youtube platformunda astımla ilgili Türkçe videoların tıbbi içeriklerini analiz ederek videoların eğitim kalitesini değerlendirmek amaçlanmıştır, bu konuda ülkemizde yapılan ilk çalışma olma özelliğini taşımaktadır.…”
Section: Introductionunclassified
“…In another interesting study, Ng et al 4 assessed the quality and accuracy of English‐language YouTube videos discussing lupus. As the authors pointed out, YouTube has an enormous reach, covering 2 billion people and 95% of internet users.…”
mentioning
confidence: 99%
“…Reassuringly, Ng's work 4 suggested that most YouTube videos discussing lupus were not misleading and contained reliable good‐quality information. These findings suggested this platform can be a useful education source for patients, their families and HCPs.…”
mentioning
confidence: 99%