Quality and Reliability of YouTube for Patient Information on Neurotoxins

Patel, Manish; Patel, M.; Cristel, Robert T.

doi:10.1055/s-0040-1719100

Cited by 8 publications

(5 citation statements)

References 18 publications

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“…The low levels of quality and reliability found in the videos analyzed in this study are characteristic of the overall troubling lack of regulation of web-based content and are consistent with other studies of YouTube video content quality. YouTube videos about breast cancer [ 15 ], prostate cancer [ 16 , 17 ], idiopathic pulmonary fibrosis [ 18 ], cleft lip and palate [ 19 ], hysterectomy [ 20 ], and neurotoxins [ 21 ] and educational videos about plastic surgery [ 22 , 23 ] are low in information quality. YouTube information quality is considered promising regarding food poisoning [ 24 ] and fair for orthodontic smile design [ 25 ].…”

Section: Discussionmentioning

confidence: 99%

Content Quality of YouTube Videos About Metastatic Breast Cancer in Young Women: Systematic Assessment

Morena,

Ahisar,

Wang

et al. 2023

JMIR Cancer

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Background Young women with metastatic breast cancer (MBC) are part of a digitally connected generation yet are underserved in terms of information needs. YouTube is widely used to find and identify health information. The accessibility of health-related content on social media together with the rare and marginalized experiences of young women with MBC and the digital media practices of younger generations imply a considerable likelihood that young women with MBC will seek information and community on the internet. Objective This study aims to assess the content quality of MBC YouTube videos and to identify themes in the experiences of young women with MBC based on YouTube videos. Methods A systematic assessment of MBC YouTube videos using the search term “metastatic breast cancer young” was conducted in August 2021. The search was performed in an incognito browser and with no associated YouTube or Google account. Search results were placed in order from most to least views. Title, date uploaded, length, poster identity, number of likes, and number of comments were collected. Understandability and actionability were assessed using the Patient Education Materials Assessment Tool (PEMAT); information reliability and quality were assessed with DISCERN. Themes, sponsorships, and health care professionals’ and patients’ narratives were reported. Results A total of 101 videos were identified. Of these, 78.2% (n=79) included sponsorships. The mean PEMAT scores were 78.8% (SD 15.3%) and 43.1% (SD 45.2%) for understandability and actionability, respectively. The mean DISCERN score was 2.44 (SD 0.7) out of 5. Identified themes included treatment (n=67, 66.3%), family relationship (n=46, 45.5%), and motherhood (n=38, 37.6%). Conclusions YouTube videos about young women with MBC are highly understandable but demonstrate moderate rates of actionability, with low reliability and quality scores. Many have a commercial bias. While web-based materials have limitations, their potential to provide patient support is not fully developed. By acknowledging their patients’ media habits, health care professionals can further develop a trusting bond with their patients, provide a space for open and honest discussions of web-based materials, and avoid any potential instances of confusion caused by misleading, inaccurate, or false web-based materials.

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Section: Discussionmentioning

confidence: 99%

Content Quality of YouTube Videos About Metastatic Breast Cancer in Young Women: Systematic Assessment

Morena,

Ahisar,

Wang

et al. 2023

JMIR Cancer

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“…There are evidence-based videos on YouTube that have been found to have highquality information when created or reviewed by a legitimate source [25]. However, many available videos and web-based sources have been shown to be of poor overall quality and to offer outdated advice that may detrimentally affect patient care and well-being [26][27][28]. At the same time, videos from high-quality sources such as universities and health care organisations are viewed less on social media and web-based browsers [29], further contributing to greater levels of misinformation accessible to patients and the public [30].…”

Section: Discussionmentioning

confidence: 99%

A Quality Assessment of Information Available on Renal Cancer on YouTube

Saad¹,

Shanmugasundaram²,

Ashrafi³

et al. 2022

SIUJ

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Objectives Many people are turning to alternatives to the conventional doctor-patient relationship, such as webbased search engines and video forums for their health care information. We undertook this study to investigate the quality of videos and information on renal cancer available on the streaming platform YouTube. Methods We completed a search of YouTube (www.YouTube.com) in September 2021 with the term “kidney cancer.” The first 120 videos found which met the inclusion criteria (English speaking, duration greater than one minute, greater than 500 views, renal cancer addressed) were selected. We recorded information including duration, view count, likes, dislikes, comments, publisher, and author. The modified DISCERN tool and Global Quality Score (GQS) questionnaire were used to assess the quality of the included videos. The level of misinformation was assessed using a Likert 5-point scale. Descriptive statistics were used to analyse the collected data. A 2-sample t test was used to further analyse the quality assessment tool results before, during, and after 2016. Results Most videos were published during or after 2016 (63.3%), were predominantly created in North America (77.5%), and were presented by health care professionals (60%). The median length of the videos was 4.23 (1.01 to 65.55) minutes, and the median number of views was 3087 (514 to 228 152). The median number of likes and dislikes was 24 and 5, respectively. The median modified DISCERN score was 3, the median GQS score was 3, and the grading for overall level of misinformation was moderate. Conclusion The quality of information accessed from YouTube on kidney cancer is of a low to moderate overall standard with significant levels of misinformation. YouTube should not be used alone for educational purposes on renal cancer by patients or the public. It is best used in conjunction with information and advice from a medical practitioner and the health care system.

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“… 24 – 27 One study looked at the online content quality of the top non-surgical procedure in the United States, neurotoxin injectables. 17 The authors concluded that the reliability and educational value of information on YouTube was considerably low. 17 Similarly, the results of our study indicate that the overall reliability and educational quality of YouTube videos related to liposuction procedures are low.…”

Section: Discussionmentioning

confidence: 99%

“… 17 The authors concluded that the reliability and educational value of information on YouTube was considerably low. 17 Similarly, the results of our study indicate that the overall reliability and educational quality of YouTube videos related to liposuction procedures are low.…”

Section: Discussionmentioning

confidence: 99%

“…15 Previous studies have confirmed that patients utilize YouTube as a resource on aesthetic surgery 16 ; however, videos of this nature are often of low quality and educational value. 17 Patients may seek out this information prior to a consultation without disclosure to the physician out of a fear of their reaction. 18 Given that YouTube continues to be the world's second most visited website (after Google) and that cosmetic procedures have increased 22% since 2000, it is necessary that patients have access to reliable and educational information.…”

Section: Introductionmentioning

confidence: 99%

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Entering the Misinformation Age: Quality and Reliability of YouTube for Patient Information on Liposuction

et al. 2021

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Background: YouTube is currently the most popular online platform and is increasingly being utilized by patients as a resource on aesthetic surgery. Yet, its content is largely unregulated and this may result in dissemination of unreliable and inaccurate information. The objective of this study was to evaluate the quality and reliability of YouTube liposuction content available to potential patients. Methods: YouTube was screened using the keywords: “liposuction,” “lipoplasty,” and “body sculpting.” The top 50 results for each term were screened for relevance. Videos which met the inclusion criteria were scored using the Global Quality Score (GQS) for educational value and the Journal of the American Medical Association (JAMA) criteria for video reliability. Educational value, reliability, video views, likes, dislikes, duration and publishing date were compared between authorship groups, high/low reliability, and high/low educational value. Results: A total of 150 videos were screened, of which 89 videos met the inclusion criteria. Overall, the videos had low reliability (mean JAMA score = 2.78, SD = 1.15) and low educational value (mean GQS score = 3.55, SD = 1.31). Videos uploaded by physicians accounted for 83.1% percent of included videos and had a higher mean educational value and reliability score than those by patients. Video views, likes, dislikes, comments, popularity, and length were significantly greater in videos with high reliability. Conclusions: To ensure liposuction-seeking patients are appropriately educated and informed, surgeons and their patients may benefit from an analysis of educational quality and reliability of such online content. Surgeons may wish to discuss online sources of information with patients.

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Quality and Reliability of YouTube for Patient Information on Neurotoxins

Cited by 8 publications

References 18 publications

Content Quality of YouTube Videos About Metastatic Breast Cancer in Young Women: Systematic Assessment

Content Quality of YouTube Videos About Metastatic Breast Cancer in Young Women: Systematic Assessment

A Quality Assessment of Information Available on Renal Cancer on YouTube

Entering the Misinformation Age: Quality and Reliability of YouTube for Patient Information on Liposuction

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