Quality and readability assessment of websites related to recurrent respiratory papillomatosis

Giorgi, Michel R. M. San; Groot, Olivier S.D. de; Dikkers, Frederik G.

doi:10.1002/lary.26521

Cited by 32 publications

(47 citation statements)

References 32 publications

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“…Thus, the key issue for those seeking information is to provide websites that offer verified and reliable information about RD. This is of special importance because frequently reliability of the web content on RD is dubious [54,55]. Although this study brings a new insight into the state of knowledge of Polish nursing students and professional nurses about rare diseases, it also has a few limitations.…”

Section: Discussionmentioning

confidence: 97%

Needs assessment study of rare diseases education for nurses and nursing students in Poland

Walkowiak

Domaradzki

2020

Orphanet J Rare Dis

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Background: The treatment of rare diseases in contemporary health systems appears to be steadily gaining in importance, especially as the number of their occurrence is increasing. However, the education of medical staff in their correct diagnosis and therapy seems inadequate. Our study aims to analyze the knowledge and opinions concerning rare diseases among Polish nurses and nursing students. Methods: We analyzed a group of 142 nurses and 113 nursing students, using a questionnaire comprising 28 questions about the number, examples, etiology and estimated frequency of rare diseases. Self-assessment of one's own theoretical and practical competence in the topic, as well as the opinion of the respondents on the need for a more prominent place of rare diseases in the curricula of medical universities, were also tested. We also asked about our informants' sources of information on rare diseases. The study was conducted between January and June 2019. Results: Although only approximately 1. 3 rd of respondents declared having participated in university classes in rare diseases, a markedly higher number (~85% of nurses and~75% of students) sees the need for such courses. Neither group feels well-prepared to deal with patients with rare diseases, with 75% of nurses and as many as 85% of nursing students expressing their concern in this respect. Both groups name the Internet as their major source of information. Conclusion: Both nurses and nursing students show insufficient knowledge of rare diseases, though the level of competence of the former is in many respects higher in a statistically significant way. Most respondents perceive serious deficiencies in their preparation to care for such patients. A change in university curricula seems much called for.

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Section: Discussionmentioning

confidence: 97%

Needs assessment study of rare diseases education for nurses and nursing students in Poland

Walkowiak

Domaradzki

2020

Orphanet J Rare Dis

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“…Previous studies have assessed the quality and readability of health information available online for various patient groups (Alsoghier, Ni Riordain, Fedele, & Porter, ; De Man et al, ; Garfinkle et al, ; Lee et al, ; San Giorgi, Groot, & Dikkers, ). Similar to the findings of this study, these studies have reported a lack of good quality health information available online.…”

Section: Discussionmentioning

confidence: 99%

Nutrition guidance for cancer patients and survivors—A review of the websites of Irish healthcare and charitable organisations and cancer centres

et al. 2020

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Objective To determine availability of nutrition information for cancer patients and survivors from Irish healthcare organisations, cancer charity and support groups and assess its quality and readability. Design Cross‐sectional. Setting The National Health Service Executive websites were searched, as were the sites of the ten largest cancer charities/support groups identified through the Benefacts website. An additional internet search was conducted to ensure no large organisations/support groups were missed (February 2019). Quality of nutrition content was assessed using an evidence‐based checklist and readability assessed using two validated formulas. Results Thirty‐two websites were identified, five contained nutrition information for cancer patients (15.6%), and three for cancer survivors (9.3%). The quality of the nutrition content ranged from 19.5 to 29/40 (mean ± SD, 23.2 ± 3.2; median = 21, interquartile range (IQR) = 7). There was a lack of practical strategies for implementation. Only 40% of material had an acceptable readability level (sixth–seventh grade level). Readability scores (mean ± SD) were 68.5 ± 6.0 for Flesch Reading Ease Score and 7.8 ± 1.1 for Flesch–Kincaid Grade Level Score. Conclusion There is limited nutrition information on Irish health and cancer websites and in particular very few tailored to cancer survivors. Irish health and cancer organisations should consider providing nutrition information that is easily accessible to all.

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“…The best performing readability score found only 37% of webpages readable to a universal audience, this does not re ect well for the health information produced and disseminated online. Similar studies of quality and readability of online health information also often report poor readability levels including in vascular surgery 20 , respiratory medicine 11 , and genitourinary medicine 21 . This poor readability level affects understanding of the health information; resulting in poor adherence to hygiene measures, social-distancing measures, and further public health recommendations 6 .…”

Section: Discussionmentioning

confidence: 84%

Readability of Online COVID-19 Health Information: A Comparison between Four English Speaking Countries

Worrall

Connolly

O’Neill

et al. 2020

Preprint

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Background: The internet is now the first line source of health information for many people worldwide. In the current Coronavirus Disease 2019 (COVID-19) global pandemic, health information is being produced, revised, updated and disseminated at an increasingly rapid rate. The general public are faced with a plethora of misinformation regarding COVID-19 and the readability of online information has an impact on their understanding of the disease. The accessibility of online healthcare information relating to COVID-19 is unknown. We sought to evaluate the readability of online information relating to COVID-19 in four English speaking regions: Ireland, the United Kingdom, Canada and the United States, and compare readability of website source provenance and regional origin.Methods: The Google® search engine was used to collate the first twenty webpage URLs for three individual searches for ‘COVID’, ‘COVID-19’, and ‘coronavirus’ from Ireland, the United Kingdom, Canada and the United States. The Gunning Fog Index (GFI), Flesch-Kincaid Grade (FKG) Score, Flesch Reading Ease Score (FRES), Simple Measure of Gobbledygook (SMOG) score were calculated to assess the readability. Results: There were poor levels of readability webpages reviewed, with only 17.2% of webpages at a universally readable level. There was a significant difference in readability between the different webpages based on their information source (p <0.01). Public Health organisations and Government organisations provided the most readable COVID-19 material, while digital media sources were significantly less readable. There were no significant differences in readability between regions. Conclusion: Much of the general public have relied on online information during the pandemic. Information on COVID-19 should be made more readable, and those writing webpages and information tools should ensure universal accessibility is considered in their production. Governments and healthcare practitioners should have an awareness of the online sources of information available, and ensure that readability of our own productions is at a universally readable level which will increase understanding and adherence to health guidelines.

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Quality and readability assessment of websites related to recurrent respiratory papillomatosis

Cited by 32 publications

References 32 publications

Needs assessment study of rare diseases education for nurses and nursing students in Poland

Needs assessment study of rare diseases education for nurses and nursing students in Poland

Nutrition guidance for cancer patients and survivors—A review of the websites of Irish healthcare and charitable organisations and cancer centres

Readability of Online COVID-19 Health Information: A Comparison between Four English Speaking Countries

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