Qualité de vie : attitudes et perceptions des médecins d'un réseau régional de soins en oncologie thoracique

Tchouhadjian, C.; Doddoli, Christophe; Astoul, Ph.; Thomas, Philippe; Auquier, Pascal

doi:10.3917/spub.063.0429

Cited by 7 publications

(6 citation statements)

References 18 publications

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“…The main reasons for not assessing QoL in routine practice, reported in the results, concur with those described in experts in other disciplines: principally a doubt as to the possibility of measuring subjective data, the impossibility of relating statistical data to an individual situation, the importance of not assimilating QoL and state of health, and more particularly QoL and impairment, the feeling of the lack of a reliable instrument, and lack of time [7-9]. Beyond these reasons, the physicians questioned added the fear that the population evaluated would be stigmatized.…”

Section: Discussionsupporting

confidence: 68%

“…Just as in chronic diseases where the patients’ daily life is affected, in extreme prematurity it is important to improve mutual knowledge between providers and recipients of care [21,25]. This is what seems to be sought by the physicians questioned in our study, and was already suggested by the paediatricians in the survey of Baars [11] and by Barlesi in a survey among physicians in a thoracic oncology network [9]. …”

Section: Discussionmentioning

confidence: 60%

“…While the majority of physicians appeared interested in the topic, many had an indirect approach to QoL, as in the survey of Baars, where 61% of paediatricians assessed QoL informally [11]. The explanation given was lack of knowledge of the instruments available and the feeling that intuition is more appropriate than standardized measures, as has been reported in other disciplines [7,9]. …”

Section: Discussionmentioning

confidence: 99%

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Quality of life assessment in preterm children: physicians’ knowledge, attitude, belief, practice - a KABP study

Einaudi

Gire²,

Loundou

et al. 2013

BMC Pediatr

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BackgroundThe sequelae of extremely preterm birth have an impact on the quality of life (QoL) of these children. Standardized assessment of their QoL is rarely done in France. The aim of this study is to examine among all the types of physicians involved in the management of children born extremely preterm, their knowledge, use in routine practice and expectations concerning QoL assessment of these children using standardized questionnaires.MethodsProspective survey among heads of obstetric, neonatal medicine and paediatric neurology departments, by means of questionnaires. Two qualitative methods were used: focus groups and Delphi method.ResultsSeventy-eight physicians participated (obstetricians 24%, neonatologists 58%, paediatric neurologists 18%). The physicians considered QoL a relevant concept which they assessed subjectively. They expressed a need for information on methods of assessment. An ideal QoL questionnaire was described. Expectations regarding availability of QoL data were expressed from a medical, family and societal perspective. The impact of QoL measurement on the ethical aspect of decision-making was approached, in particular the potential impact of this tool on the decision made. Expectations were found to differ between specialties.ConclusionThis original study reports the perspective of experts on taking into consideration the QoL of children born extremely preterm. This is a subjective notion that is difficult to implement and which may influence therapeutic choices.

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Section: Discussionsupporting

confidence: 68%

Section: Discussionmentioning

confidence: 60%

Section: Discussionmentioning

confidence: 99%

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Quality of life assessment in preterm children: physicians’ knowledge, attitude, belief, practice - a KABP study

Einaudi

Gire²,

Loundou

et al. 2013

BMC Pediatr

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“…In this preliminary study, focus groups made appear themes of reflection classically told about HRQoL in other domains but not all in so clear a way (definition, interests and limits, ethical reflection) [13,14,24,25]. …”

Section: Discussionmentioning

confidence: 99%

Preterm children quality of life evaluation: a qualitative study to approach physicians’ perception

Einaudi

Siméoni

Gire

et al. 2012

Health and Quality of Life Outcomes

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BackgroundWhile data for preterm children health-related quality of life are available, there are little data on the perception of health-related quality of life evaluation by physicians who manage preterm children, or its use in real life and decision making. The aim of this qualitative study is to highlight among physicians, themes of reflection about health-related quality of life in extremely preterm children (less than 28 weeks’ gestation).MethodsFocus groups at a French University Hospital with physicians who manage extremely preterm children: obstetricians, intensive care physicians, neonatal physicians and paediatric neurologists. The focus groups allowed the participants to discuss (drawing on their personal experience), three principal topics regarding the health-related quality of life of preterm children: representation, expectations in daily practice and evaluation method.ResultsWe included fourteen participants in the three focus groups. Many themes emerged from the focus groups: approaches for defining health-related quality of life and difficulties of utilization, the role that health-related quality of life should have in the system of care, the problem of standards and evidence-based decision making. Physicians had difficulties with taking positions regarding this concept. There were no differences by gender, age or seniority, but points of view varied by specialty and type of practice. Physicians who had longer specialized care for extremely preterm children were more sensitive to the impact of preterm complications on health-related quality of life.ConclusionsThis study provides preliminary results about physicians’ perspective on the health-related quality of life of extremely preterm children. The themes emerged from the focus groups are classically described in other domains but not all in so clear a way (definition, interests and limits, ethical reflection). This approach was never developed in the field of prematurity with well-knowed consequences on quality of life. These results require to be confirmed on a larger representative sample. The themes and questions of this broad opinion survey will rest on the information issued from our preliminary interviews.

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“…Even if PRO-data is available many clinicians do not pay attention to them because of lack of time, human resources and an adequate PROinstrument and the assumption that directly from patients obtained information does not add any additional value (Luckett et al, 2009). Furthermore some clinicians argue that information on QOL are not of same importance as treatment decisions (Morris et al, 1998), equality of PRO instruments is doubtful (Barlesi et al, 2006) and the methodology of PRO measurement seems to be dubious. These objections can be devitalised, though.…”

Section: Benefits From Epromentioning

confidence: 99%

Patient-Reported Outcome Monitoring in Brain Tumour Patients: Benefits and Requirements

Wintner¹,

Giesinger²,

Holzner³

2011

Diagnostic Techniques and Surgical Management of Brain Tumors

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Qualité de vie : attitudes et perceptions des médecins d'un réseau régional de soins en oncologie thoracique

Cited by 7 publications

References 18 publications

Quality of life assessment in preterm children: physicians’ knowledge, attitude, belief, practice - a KABP study

Quality of life assessment in preterm children: physicians’ knowledge, attitude, belief, practice - a KABP study

Preterm children quality of life evaluation: a qualitative study to approach physicians’ perception

Patient-Reported Outcome Monitoring in Brain Tumour Patients: Benefits and Requirements

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