Qualitative Exploration of Triangulated, Shared Decision‐Making in Rheumatoid Arthritis

Binder-Finnema, Pauline; Dzurilla, Kathryn; Hsiao, Betty; Fraenkel, Liana

doi:10.1002/acr.23801

Cited by 11 publications

(8 citation statements)

References 27 publications

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“…These studies particularly highlighted challenges related to lack of information about insurance coverage and prices and apparent discomfort in these conversations. For example, one study highlighted the importance of "adequate, stable, and predictable insurance coverage" in facilitating "effective decisional deliberation" (Binder-Finnema et al, 2019). Another highlighted frequent missed or dismissed opportunities to discuss costs (Ubel et al, 2016).…”

Section: Study Type and Qualitymentioning

confidence: 99%

Demand for and Occurrence of Medication Cost Conversations: A Narrative Review

et al. 2022

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High medication prices can create a financial burden for patients and reduce medication initiation. To improve decision making, public policy is supporting development of tools to provide real-time prescription drug prices. We reviewed the literature on medication cost conversations to characterize the context in which these tools may be used. Our review included 42 articles: a median of 84% of patients across four clinical specialties reported a desire for cost conversations ( n = 7 articles) but only 23% reported having held a cost conversation across six specialties ( n = 16 articles). Non-White and older patients were less likely to report having held a cost conversation than White and younger patients in 9 of 13 and 5 of 9 articles, respectively, examining these associations. Our review indicates that tools providing price information may not result in improved decision making without complementary interventions that increase the frequency of cost conversations with a focus on protected groups.

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Section: Study Type and Qualitymentioning

confidence: 99%

Demand for and Occurrence of Medication Cost Conversations: A Narrative Review

et al. 2022

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“…De la misma manera, se hizo visible que no solo se trata de informarle a las pacientes la necesidad de tener buenos hábitos de vida, sino también guiarlas y apoyarlas de manera continua [30]. Al respecto, algunas investigaciones enuncian, respecto al proceso del tratamiento de los pacientes con AR, que la percepción del paciente afecta de manera significativa y adversa a los mejores esfuerzos de los médicos para involucrar a los pacientes [31], por lo que se debe trabajar al respecto de forma estrecha y consciente.…”

Section: Discussionunclassified

Percepción de actividad física en mujeres con artritis reumatoide en Popayán, Colombia

Tobar

Narváez

Molano-Tobar

2022

Rev. Investig. Innov. Cienc. Salud

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Objetivo. Identificar la percepción sobre la actividad física que tienen las mujeres con artritis reumatoide de la ciudad de Popayán, Colombia. Metodología. Estudio que parte de dos enfoques: el cualitativo, de diseño fenomenológico, cuyas técnicas de recolección de información fueron la observación y la entrevista en profundidad semiestructuradas; y el cuantitativo, con un diseño descriptivo de cohorte trasversal, en el que se realizó una caracterización sociodemográfica y de algunos parámetros antropométricos para los que se obtuvieron medidas de tendencia central y de dispersión. El estudio contó con la participación de 17 mujeres con una edad promedio de 48,07 años. Resultados. La población estudio, en su mayoría de los estratos 2 y 3, presentó tendencia al sobrepeso; y con relación a la parte cualitativa, se evidenciaron cuatro categorías: a) el recordatorio del médico y la fisio a que haga actividad física; b) ejercicio vs complicaciones físicas y funcionales; c) el conocimiento de las necesidades reales de los usuarios por parte de los gimnasios y entrenadores; d) el abandono de la actividad física como una consecuencia de la inadecuada práctica. Conclusiones. La tendencia al sobrepeso es un factor de riesgo característico para la población, lo cual, teniendo de base el componente inflamatorio de la artritis reumatoide, puede catalogarse como una población que requiere de intervención desde la actividad física, pero desde enfoques recreativos y lúdicos que promuevan la adherencia a la actividad física con la vinculación de otras áreas del saber.

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“…The participants’ feedback has directly informed content adaptations to the Early RA PtDA. The cost of RA treatments and access to medication may be important for patient considerations and decision-making [ 21 ]; specific to the adapted Early RA PtDA, participants identified the importance of providing sufficient information on options of medication coverage available for Indigenous patients irrespective of their membership in status First Nations, non-status First Nations, or Métis communities. Also, additional information on lifestyle information for diet and alcohol use when living with RA was requested.…”

Section: Discussionmentioning

confidence: 99%

Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients

Umaefulam

Fox²,

Hazlewood

et al. 2021

Patient

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Background Patient decision aids (PtDAs) enable shared decision-making between patients and healthcare providers. Adaptations to PtDAs for use with populations facing inequities in healthcare can improve the relevancy of information presented, incorporate appropriate cultural context, and address health literacy concerns. Our objective was to adapt the Early RA (rheumatoid arthritis) PtDA for use with Canadian Indigenous patients. Methods The Early RA PtDA was modified through an iterative process using data obtained from semi-structured interviews of two sequential cohorts of Indigenous patients with RA. Interview data were analyzed using thematic analysis. Results Seven participants provided initial feedback on the existing PtDA. The modifications they suggested were made and shared with another nine participants to confirm acceptability and provide further feedback. The first cohort suggested revisions to clarify medical and cost coverage information, include Indigenous traditional healing practice options, simplify text, and include Indigenous images and colors aligned with Canadian Indigenous community representation. Additional revisions were suggested by the second cohort to increase the legibility of the text, insert more Indigenous imagery, address formulary coverage for non-status First Nations patients, and include information about lifestyle factors in managing RA. Conclusion Incorporating Indigenous-specific adaptations in the design of PtDAs may increase use and relevancy to support engagement in treatment decisions, thereby supporting health-equity oriented health service interventions. Indigenous patient-specific evidence and translation of key words into the end-users' Indigenous languages should be included for implementation of the PtDA.

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Qualitative Exploration of Triangulated, Shared Decision‐Making in Rheumatoid Arthritis

Cited by 11 publications

References 27 publications

Demand for and Occurrence of Medication Cost Conversations: A Narrative Review

Demand for and Occurrence of Medication Cost Conversations: A Narrative Review

Percepción de actividad física en mujeres con artritis reumatoide en Popayán, Colombia

Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients

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