Qualitative data regarding the experiences of pregnant women with lupus in Brazil

Rodrigues, Larissa; Alves, Vera Lúcia Pereira; Sim-Sim, Margarida; Surita, Fernanda Garanhani

doi:10.1016/j.dib.2020.106606

Cited by 2 publications

(1 citation statement)

References 9 publications

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“…Studies show that fear is a very common feeling in the lives of women who have SLE. They are afraid of death, physical and emotional disabilities, pregnancy loss and the possibility of transmitting SLE to their children (21,(31)(32) . Thus, receiving support from healthcare professionals when faced with a new experience stands out as a strategy that influences good gestational outcomes.…”

Section: Discussionmentioning

confidence: 99%

Pregnancy loss in women with systemic lupus erythematosus: Grounded Theory

Souza,

Barreto,

Teston

et al. 2024

Rev. Bras. Enferm.

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Objective: to learn the meanings attributed to pregnancy loss by women with Lupus. Method: qualitative research, based on Symbolic Interactionism and Grounded Theory. Data collection took place between January and August 2022 through in-depth interviews. Data analysis went through the stages of initial and focused coding. Results: seventeen women participated. The central phenomenon “The climb to motherhood: falls and overcoming” was constructed, consisting of three categories: “Falling to the ground during the climb: the experience of pregnancy loss”; “Getting up and following the path: new attempts to conceive”; and “Remembering the journey: meanings attributed to pregnancy losses”. Final considerations: experiencing pregnancy is, analogously, like climbing a mountain, where obstacles need to be overcome to reach the summit. The experience of pregnancy loss is seen as complex, especially when there is fragility in healthcare and a lack of awareness regarding feelings of loss and grief.

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Section: Discussionmentioning

confidence: 99%

Pregnancy loss in women with systemic lupus erythematosus: Grounded Theory

Souza,

Barreto,

Teston

et al. 2024

Rev. Bras. Enferm.

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Perda gestacional por mulheres com Lúpus Eritematoso Sistêmico: uma Teoria Fundamentada nos Dados

Souza,

Barreto,

Teston

et al. 2024

Rev. Bras. Enferm.

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RESUMO Objetivo: apreender os significados atribuídos à perda gestacional por mulheres com lúpus. Método: pesquisa qualitativa, pautada no Interacionismo Simbólico e na Teoria Fundamentada nos Dados. A coleta de dados ocorreu entre janeiro e agosto de 2022, mediante entrevistas em profundidade. A análise de dados percorreu as etapas de codificação inicial e focalizada. Resultados: participaram 17 mulheres. Construiu-se o fenômeno central “A escalada da maternidade: quedas e superações”, constituído por três categorias: “Caindo ao chão durante a subida: a vivência da perda gestacional”; “Levantando e seguindo o caminho: novas tentativas de gestar”; e “Rememorando o percurso: significados atribuídos às perdas gestacionais”. Considerações finais: vivenciar a gestação é, analogicamente, como escalar uma montanha, onde obstáculos precisam ser vencidos até o alcance do cume. A vivência de perdas gestacionais é significada como complexa, em especial quando há fragilidade na assistência à saúde e falta de sensibilização diante dos sentimentos de perda e luto.

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Qualitative data regarding the experiences of pregnant women with lupus in Brazil

Cited by 2 publications

References 9 publications

Pregnancy loss in women with systemic lupus erythematosus: Grounded Theory

Pregnancy loss in women with systemic lupus erythematosus: Grounded Theory

Perda gestacional por mulheres com Lúpus Eritematoso Sistêmico: uma Teoria Fundamentada nos Dados

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