Qualitative analysis of studies concerning quality of life in children and adults with anorectal malformations

A Multicenter Study on Childhood Constipation and Fecal Incontinence: Effects on Quality of Life

“…Similarly, studies in other populations (ie, patients with anorectal malformations, patients with Hirschsprung disease, and adult women) indicate that fecal incontinence is an insidious burden with substantial economic impact and adverse effects on quality of life. 43,[49][50][51][52][53][54] Our study shows that fecal incontinence has greater adverse effects on quality of life than functional constipation, and that this effect increases as children approach adolescence. The inability to control bowel movements may dramatically influence life as children age.…”

“…9, 43 Youssef et al 21 reported that children with constipation expressed a lower quality of life than children with inflammatory bowel disease, gastroesophageal reflux disease, and healthy controls. Surprisingly, quality of life was not worse in those with fecal incontinence, but that was a comparatively small cohort from a single-center experience.…”

Long-term evaluation of fecal continence and quality of life in patients operated for anorectal malformations

“…2 It is closely related to the concept of quality of life (QoL), defined by the World Health Organization as "the individual's perception of their position in life in the context of culture and the system of values in which they live and in relation to their goals, expectations, standards, and concerns". 3 Thus, QoL has become in the last decade an important indicator of medical outcomes, supporting the follow-up of these patients, which justifies the use of questionnaires for evaluation.…”

Validação de questionários para avaliação da qualidade de vida relacionada à continência fecal em crianças com malformações anorretais e doença de Hirschsprung

“…Thus, patients may suffer strong negative impact on quality of life (QoL). QoL is defined by the World Health Organization as “the individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns” 2. Thus, QoL is a subjective data comprising several areas and should be evaluated individually and based on the expectations of patients and their relatives.…”

“…Assim, os pacientes podem sofrer forte impacto negativo na qualidade de vida (QdV). Essa é definida pela Organização Mundial da Saúde como “a percepção do indivíduo de sua posição na vida no contexto da cultura e sistema de valores nos quais ele vive e em relação aos seus objetivos, expectativas, padrões e preocupações” 2. Assim, QdV é um dado subjetivo, que abrange diversas áreas e deve ser avaliado individualmente e baseado nas expectativas do paciente e de seus parentes.…”