Qualitative analysis of living with heart failure

Zambroski, Cheryl Hoyt

doi:10.1067/mhl.2003.10

Cited by 70 publications

(101 citation statements)

References 24 publications

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“…[60] One patient noted her reluctance to call the ambulance in case symptoms resolved by the time they arrived, as had occurred in the past, describing the scenario as a "catch 22" [63]. Previous negative hospital experiences provided further reason to avoid seeking care, with patients preferring to suffer with symptoms at home as a result [51,72].…”

Section: "You Ring the Emergency Doctor They Ask What The Problem Ismentioning

confidence: 99%

“…The literature revealed that patients relied heavily on verbal communication with health care providers (HCPs) as a primary source of information about their condition [51,65,63]. Ineffective patient/provider communication, therefore, led to gaps in patient knowledge, which made it challenging for patients to assign appropriate labels to their condition and symptoms, and identify with HF diagnosis.…”

Section: Patient/provider Communicationmentioning

confidence: 99%

“…Inability to spend quality time with family [51,70], and being forced to give up hobbies that once brought great pleasure and meaning, caused feelings of surrender, sadness, grief and longing [60,51,69,61,68,70,63].…”

Section: Depression and Low/changing Self-conceptmentioning

confidence: 99%

“…Some patients turned to alcohol and cigarettes, or even self-harm, for immediate relief when the psychological and physical burden of living with chronic HF became overwhelming [72,63].…”

Section: "I Know I Probably Should've Called Earlier During This Lastmentioning

confidence: 99%

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Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

Ivynian

DiGiacomo

Jha

et al. 2015

Heart, Lung and Circulation

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Purpose: Over 50% of heart failure (HF) patients delay seeking help for worsening symptoms until these reach acute levels and require emergency hospitalisation. This metasynthesis aimed to identify and explore factors influencing timely care-seeking in patients with HF.Methods: Electronic databases searched were Medline, EMBASE and CINAHL. Studies were included if they were peer reviewed journal articles written in English, and reported perspectives of HF patients following qualitative data collection and analysis. Forty articles underwent analysis following the approach of Thomas and Harden. Leventhal's self-regulatory model (SRM) was used to organise the literature.Results: Much of the literature fit within the SRM, however this model did not account for all factors that influence patients' care-seeking for worsening symptoms. Factors not accounted for included patients' appraisals of previous care-seeking experiences, perceived system and provider barriers to accessing care, and the influence of external appraisals. When added to factors already represented in the model, such as misattribution of symptoms, not identifying with HF diagnosis, cognitive status, lack of understanding information provided, adaptation to symptoms, and emotional responses, a more comprehensive account of patients' decision-making was revealed.Implications: This metasynthesis identified factors, as yet unaccounted for, in a prominent model, and has suggested a more comprehensive framework for addressing care-seeking in HF patients. This information can be used to tailor education, communication, and service initiatives to improve HF patients' responses to worsening symptoms, and target those most at risk of delay.

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Section: "You Ring the Emergency Doctor They Ask What The Problem Ismentioning

confidence: 99%

Section: Patient/provider Communicationmentioning

confidence: 99%

Section: Depression and Low/changing Self-conceptmentioning

confidence: 99%

“…Some patients turned to alcohol and cigarettes, or even self-harm, for immediate relief when the psychological and physical burden of living with chronic HF became overwhelming [72,63].…”

Section: "I Know I Probably Should've Called Earlier During This Lastmentioning

confidence: 99%

See 2 more Smart Citations

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

Ivynian

DiGiacomo

Jha

et al. 2015

Heart, Lung and Circulation

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“…När otryggheten och ångesten blir för stor söker patienterna akut sjukvård (11). En känsla av trygghet kan skapas av att vara ansluten till ASIH vid svår hjärtsvikt och genom att få personcentrerad vård (12).…”

Section: Bakgrundunclassified

Upplevelse av trygghet och otrygghet bland patienter med hjärtsvikt som får avancerad sjukvård i hemmet

Söderberg

Karlsson

Löfvenmark

2015

Nordic Journal of Nursing Research

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PostprintThis is the accepted version of a paper published in Nordic journal of nursing research. This paper has been peer-reviewed but does not include the final publisher proof-corrections or journal pagination.Citation for the original published paper (version of record):Söderberg, A., Rydell Karlsson, M., Löfvenmark, C. (2015) Upplevelse av trygghet och otrygghet bland patienter med hjärtsvikt som får avancerad vård i hemmet: Experience of security and insecurity among patients with heart failure in advanced home care. Experience of security and insecurity among patients with heart failure in advanced home care Abstract AimThe aim of this study was to describe the experience of security and insecurity in patients with chronic heart failure who were treated by Advanced Home Care (AHC) in a city in Sweden.

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