Abstract:ResumoA hemofilia é uma doença hemorrágica caracterizada pela deficiência dos fatores da coagulação VIII ou IX. Os avanços tecnológicos e a introdução de equi-
“…This fact results in late diagnosis and a greater risk of developing physical and functional disabilities. 19,20 As shown in Table 3, the proportion of elderly with grade 1 and 2 is higher than the proportion of elderly women. The inverse occurs with the proportion of individuals with zero degree of physical disability.…”
Objective: To analyze the degree of physical disability in the elderly population affected by leprosy in Bahia State, between 2001 and 2012. Methods: The data relating to cases of leprosy was obtained from National System of Notifiable Diseases. Variables analyzed gender, age, race/color, education level, clinical and operational classification, degree of physical incapacity in diagnosis and discharge. Epidemiological indicators related to physical incapacity were calculated. Results: The leprosy features high magnitude in the elderly population, with a coefficient of detection of new cases higher than the general population, situated at a hyperendemic level. As to the epidemiological profile of leprosy in elderly, stands out: men, age 60 to 69 years, white race, low education level, dimorphic clinical manifestation and multibacillary operational classification. 36.25% of diagnosed cases had a physical incapacity at the time of diagnosis, with emphasis on the masculine gender. Conclusion: The high proportion of individuals with physical incapacity at the time of diagnosis suggests late diagnosis and hidden prevalence of the disease, mostly in Individuals of the male gender.
“…This fact results in late diagnosis and a greater risk of developing physical and functional disabilities. 19,20 As shown in Table 3, the proportion of elderly with grade 1 and 2 is higher than the proportion of elderly women. The inverse occurs with the proportion of individuals with zero degree of physical disability.…”
Objective: To analyze the degree of physical disability in the elderly population affected by leprosy in Bahia State, between 2001 and 2012. Methods: The data relating to cases of leprosy was obtained from National System of Notifiable Diseases. Variables analyzed gender, age, race/color, education level, clinical and operational classification, degree of physical incapacity in diagnosis and discharge. Epidemiological indicators related to physical incapacity were calculated. Results: The leprosy features high magnitude in the elderly population, with a coefficient of detection of new cases higher than the general population, situated at a hyperendemic level. As to the epidemiological profile of leprosy in elderly, stands out: men, age 60 to 69 years, white race, low education level, dimorphic clinical manifestation and multibacillary operational classification. 36.25% of diagnosed cases had a physical incapacity at the time of diagnosis, with emphasis on the masculine gender. Conclusion: The high proportion of individuals with physical incapacity at the time of diagnosis suggests late diagnosis and hidden prevalence of the disease, mostly in Individuals of the male gender.
“…Partindo do aspecto raça/cor, as pesquisas realizadas por Almeida et al (2011), em um centro de tratamento em Brasília, e por Ferreira (2012), no Hemocentro de Juiz de Fora, encontraram resultados semelhantes. A maioria dos participantes se declarou branco, sendo 63,7% e 59%, respectivamente.…”
Section: Discussionunclassified
“…A escolaridade também influencia na empregabilidade, e diferente dos achados de Garbin et al (2007), em que 82,6% dos participantes não trabalhavam, nesta pesquisa 70% dos hemofílicos trabalham. Página | 11 Outro aspecto intimamente relacionado é o fato de 83,3% dos participantes não serem aposentados, diferente do encontrado por Garbin et al (2007), Almeida et al (2011) e Ferreira (2012, em que a maioria dos participantes recebia algum tipo de benefício governamental como a aposentadoria por invalidez. Cabe ressaltar que a idade dos participantes pode ter interferido nesse resultado, visto que as outras pesquisas não apresentaram delimitação de idade.…”
Section: Discussionunclassified
“…Outro aspecto similar com outras pesquisas da área é o estado civil. A maioria dos participantes também era solteiro nas pesquisas realizadas por Garbin et al (2007), Nunes et al (2009), Almeida et al (2011), Ferreira (2012 e Sousa et al (2018), sendo 60%, 78,3%, 69,9%, 61,5% e 53,8%, respectivamente. Sobre ter filhos, 80% responderam negativamente, e esse predomínio também foi encontrado no estudo de Ferreira (2012), em que 61,5% dos participantes também não têm filhos.…”
Section: Discussionunclassified
“…Constatou-se, também, maior número de indivíduos em profilaxia, algo totalmente oposto ao encontrado por Almeida et al (2011), em que, dos 33 participantes, apenas um estava em profilaxia. A Federação Mundial de Hemofilia (FMH) e a Organização Mundial da Saúde (OMS) recomendam a profilaxia como uma das principais medidas para garantir a integridade física, psíquica e social dos indivíduos.…”
OBJETIVO: Identificar os fatores que influenciam a qualidade de vida de homens jovens com hemofilia acompanhados pelo Hemocentro Regional de Ribeirão Preto.MÉTODOS: Este estudo, quantitativo e exploratório, teve sua coleta de dados realizada no Hemocentro Regional de Ribeirão Preto, sendo sua amostra composta por 30 homens com hemofilia, de 18 a 35 anos de idade. Os instrumentos utilizados foram: uma ficha de Identificação e os questionários World Health Organization Quality of Life em sua forma abreviada (WHOQOL-Bref) e Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL). Os resultados foram examinados estatisticamente a partir de análises descritivas, além de realizar correlações pelo Coeficiente de Pearson (r) e pela técnica dos quadrantes.RESULTADOS: A maioria dos participantes estava solteiro, não tinha filhos, trabalhava, apresentava histórico de hemofilia na família, com tipo de hemofilia A e grave, realizava autoinfusão e tratamento profilático. O domínio físico apresentou menor escore em ambos os questionários e os fatores de maior influência na qualidade de vida foram a renda familiar e a escolaridade.CONCLUSÕES: A desigualdade social é o importante marcador que influencia a percepção da qualidade de vida de homens jovens hemofílicos de Ribeirão Preto.
BackgroundStudies on health-related quality of life are based on the increasingly evident
need for medical care not to be limited to preventing death, but to focus instead
on the value of health. ObjectiveThis study aimed to measure the health-related quality of life in hemophilia,
using the Hemophilia- Specific Quality of Life (Haem-A-QoL) questionnaire and
describe the socioeconomic characteristics and health conditions of these
patients. MethodsThe Brazilian version of the Hemophilia-Specific Quality of Life questionnaire was
administered to hemophiliac adults, treated in an on-demand regime at the Juiz de
Fora Regional Blood Center - HEMOMINAS Foundation. The patients were interviewed
about demographic and socioeconomic data and their understanding of the
questionnaire. Clinical data were collected from medical records. The Mann-Whitney
U test was used for statistical analysis. The level of significance was set for
p-values < 0.05. Statistical analysis was performed using the Statistical
Package for the Social Sciences (SPSS, version 15.0). ResultsThirty-nine patients were evaluated. The mean age was 36.8 years. 84.6% had
hemophilia A; 20.5% of the patients had hemophilia classified as mild, 41% as
moderate and 38.5% as severe. The records of 10.5% of the patients registered
seropositivity for anti-HIV and 57.9% for anti-HCV. Target joints were detected in
69.2%. The mean total Hemophilia-Specific Quality of Life score was 35.55. 'Sports
and leisure'and 'Physical health'were the most impaired dimensions and the
dimension 'Relationship and partners'was the least impaired. The
Hemophilia-Specific Quality of Life scores showed good discriminant validity for
hemophilia severity (p-value = 0.001), HIV-infection (p-value = 0.02),
HCV-infection (p-value = 0.01) and the presence of target joints (p-value <
0.001). ConclusionHealth-related quality of life in hemophilia, measured by the Hemophilia-Specific
Quality of Life questionnaire, was influenced by the presence of arthropathy and
infectious diseases transmitted by blood products. Rehabilitation measures should
be encouraged in order to improve the quality of life of these patients.
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