PW343 Psychosocial Morbidity in Adolescents and Young Adults with Congenital Heart Disease: Psychosocial Adjustment, Psychiatric Morbidity, Quality of Life and School Performance may be affected, but Social Support and traits of Personality play an important role in resilience

Areias, Maria Emília; Gomes, Liliana; Cerqueira, Daniela; Pinto, Catarina; Vieira, Patrícia F.; Freitas, Isabel Maria Bodas; Teixeira, Filipe; Coelho, Rosália; Moura, Cláudia; Viana, Víctor; Areias, José Carlos

doi:10.1016/j.gheart.2014.03.2411

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“…A poorer perception of QoL has been reported by patients submitted to a greater number of surgeries in the Psychological and Social Relationships Domains [25,39,40]. The results of this study suggest that NSI can be considered a mediator variable, which explains the mechanism by which the two independent predictors under focus (and SCHD) influence the dependent variables (perceptions of QoL in various domains).…”

Section: Discussionmentioning

confidence: 57%

“…We tested 10 models to assess the predictive mediating effect of NSI on QoL in multiple domains (physical, psychological, social relationships, environmental, and general) in CHD patients while also considering the TCHD and SCHD criteria separately. Before proposing these models, we thoroughly reviewed the existing research on QoL and the impact of surgical interventions on these patients [4,25,[39][40][41][42]. Following a strategic plan, we also performed several statistical tests beforehand to identify potential models for further investigation.…”

Section: Discussionmentioning

confidence: 99%

“…NSI may explain how CHD impacts the Psychological domain of QoL through the feeling of threat to life and fragility associated with surgeries and the restrictions of freedom and autonomy [25,39,40]. NSI can also explain how CHD impacts social relationships since the recurrent hospitalizations and the associated circumstances can lead to restrictions on access to the family environment to full social support [25,39,41], factors that are strong predictors of QoL.…”

Section: Discussionmentioning

confidence: 99%

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From Illness to Resilience: Mediating Factors of Quality of Life in Patients with Congenital Heart Disease

Moedas,

Nunes,

Brito

et al. 2023

Rev. Cardiovasc. Med.

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Background: Congenital heart disease (CHD) is a leading cause of childhood morbidity, with an estimated prevalence of 0.8-1%. However, advances in diagnosis and treatment now allow 90% of childhood CHD patients to survive to adulthood, leading to increased interest in their quality of life (QoL). In this study, we examine the impact of clinical and psychosocial variables, including the number of surgical interventions (NSI), age at surgery, school achievement, and social support, as mediating factors of QoL in CHD patients. Methods: The study included 233 CHD patients (132 males) with an average age of 15.2 ± 2.07 years, including 80 with cyanotic CHD and 153 with acyanotic CHD. The severity of illness ranged from mild to severe, with 30 patients having a severe illness, 119 having a moderate illness, and 84 having a mild illness. One-hundred-sixty-three patients underwent surgery. Clinical data on diagnosis, the severity of CHD, the type of CHD, and surgical interventions were collected from patient records, and a semi-structured interview was conducted to explore the relationship between CHD diagnosis and various aspects of life. QoL was assessed using the Abbreviated World Health Organization Quality of Life questionnaire (WHOQOL-Bref) questionnaire. Results: Ten mediation models were analyzed, each with three hypotheses (paths). In all models the first hypothesis was supported. Analyses of the second and third hypotheses revealed three feasible models of mediation through the effect of NSI on QoL in CHD patients. Conclusions: Our findings indicate that patients with more severe and cyanotic CHD generally require more surgical interventions, which may increase the risk of negative outcomes and affect patients' perception of QoL. These results have important implications for healthcare providers and psychologists who work with childhood CHD patients.

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Section: Discussionmentioning

confidence: 57%