of societal inoculation against accusations of racism), naming racism as an emergent strategy (when communal discussions enable multiple negative experiences to be framed and named as racism), and "passing" (not ostensibly experiencing racism if one is sufficiently light-skinned). Critical realism suggests how racism may be structuring the experiences of students with SCD at school even in the absence of specific accounts by young people.Keywords: sickle cell; racism, agency, critical realism, case study, schools.3
IntroductionSickle cell disorder (SCD) is a complex chronic illness, which in England is more common in those of Black African/Caribbean descent. Young people with SCD report extensive negative experiences in their school lives (Dyson et al, 2010) and it is important to ascertain the extent to which disability discrimination or racism contribute to these experiences. In this article the authors suggest a theoretical position for understanding the subtlety of racism in structuring the lives of young black students with SCD even in the absence of any reported racism. Racism is conceived of as an ideational phenomenon deriving its power through specific socio-political interactions (such as slavery)which leave historical-material and cultural-ideational structures that constrain subsequent interactions (Carter, 2000). This conception of racism derives from the broader theoretical position of critical realism. We first outline this theory of critical realism. We next describe our research programme of the experiences in school of young people living with SCD, within which the ten case studies we consider are situated. We suggest racism cannot be assumed to be absent on the basis of the lack of explicit references to the phenomenon, and consider the subtle ways racism structures school experiences.
Critical Realism and RacismCritical realism is a philosophy underlying social research. The social world is conceived as having ontological depth, with three realms: the observable, the actual (hidden from immediate interaction but observable in principle), and the 4 realm of the real, comprising structures, unobservable, even in principle (Bhaskar, 1979). Such structures might include capitalist relations of production or post-colonial relations. Following Layder (1990), social relations (structures) of discriminatory practice are not directly observable (and so may be opaque to individual actors), though social relationships between black students and white teachers potentially are. There is a distinction between experiential common sense language (race) and social scientific analysis of racism (Carter, 2000).Critical realism involves "a plausible case for the existence of unobservable entities […] by reference to observable effects which can only be explained as the products of such entities" (Sayer, 2000, p. 12). There is an analytic distinction between studying structure and studying agency, avoiding reducing one to the other (Archer, 1995). Thus practices that have discriminatory effects are to be analysed...