Public preferences about who should be prioritized in receiving the COVID-19 vaccine: people with or without Alzheimer’s disease?

AboJabel, Hanan

doi:10.1017/s1041610221002763

Cited by 1 publication

(3 citation statements)

References 8 publications

(8 reference statements)

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“…Public stigma was demonstrated in the theme of COVID-19 stereotypes and assumptions of dementia. Throughout the pandemic, there was a strong stereotype that all people living with dementia were near the end-of-life stage ( 6 , 20 ). For example, there was a widely held opinion that people with dementia were better off dead and unable to live fulfilling lives in the pandemic ( 6 ).…”

Section: Resultsmentioning

confidence: 99%

“…Moreover, news media often depicted institutionalized people living with dementia as the highly vulnerable victims of COVID-19 ( 32 ). Consequently, research showed that public preference favored not prioritizing life-saving resources and COVID-19 supports (such as ventilators) for older adults living with dementia ( 20 , 29 ). However, these stereotypes and opinions are problematic because they spread false information, harmful assumptions, and homogenize people living with dementia.…”

Section: Resultsmentioning

confidence: 99%

“…Articles discussed several structural barriers to recognizing the human rights of people living with dementia in the pandemic. These barriers included discriminatory policies ( 20 , 33 ), systemic ageism, lack of organizational staff and support services ( 22 , 34 ). Institutional policies such as visitation bans, lockdowns, and exclusion of informal care partners within organizational settings (hospitals, nursing homes, care homes) contributed to inequities impacting people living with dementia.…”

Section: Resultsmentioning

confidence: 99%

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Understanding stigma of dementia during COVID-19: a scoping review

Bacsu,

Spiteri,

Nanson

et al. 2024

Front. Psychiatry

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IntroductionStigma of dementia is one of the greatest challenges for people living with dementia. However, there is little research on the different types of stigma of dementia in the COVID-19 pandemic. The purpose of this scoping review is to synthesize the existing literature on dementia-related stigma (self, public, and structural stigma), during the pandemic.MethodsGuided by Arksey and O’Malley’s scoping review framework and PRISMA guidelines, CINAHL, EMBASE, Google Scholar, Medline, PsycINFO, and Web of Science were searched for English language literature from January 2020 to June 2023. Inclusion criteria consisted of peer-reviewed, original research articles addressing stigma of dementia during the COVID-19 pandemic. Thematic analysis was used to analyze the data and steps were taken to ensure rigor.ResultsFifteen articles met our inclusion criteria. Four primary themes were identified including: 1) COVID-19 stereotypes and assumptions of dementia; 2) human rights issues and deprived dignity; 3) disparate access to health services and supports; and 4) cultural inequities and distrust.DiscussionThe COVID-19 pandemic has contributed to the stigmatization of people living with dementia. Further research is needed to develop, implement, and evaluate interventions targeted towards the different types of dementia-related stigma (including self, public, and structural stigma). Moreover, our findings highlight the need for more collaborative research that prioritizes the lived experience and input of diverse people living with dementia. Research partnerships with diverse people living with dementia are vital to improving future pandemic planning. Only through evidence-informed research and lived experience can we begin to fully address the different types of dementia-related stigma and enhance the quality of life of people living with dementia.

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Section: Resultsmentioning

confidence: 99%