Psychosoziale Interventionen für Paare, die mit einer Krebserkrankung leben. Eine Literaturübersicht

Busch, Ada-Katrin; Schnepp, Wilfried; Spirig, Rebecca

doi:10.1024/1012-5302.22.4.254

Cited by 7 publications

(4 citation statements)

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“…cooking, doing the dishes, cleaning the apartment, administrative issues). Literature also describes relatives as an important and supportive part in the lives of patients with a chronic condition [27,39,48]. Our results are consistent with that evidence.…”

Section: Discussionsupporting

confidence: 91%

Why do I have to suffer? Symptom management, views and experiences of persons with a CPTSD: a grounded theory approach

et al. 2018

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Background: For the 11th version of the International Classification of Diseases, a new stress related diagnosis has been proposed: complex post-traumatic stress disorder (CPTSD). It is described as a chronic condition with several severe and concurrent symptoms. In the literature, these symptoms are discussed as a common reason for seeking psychiatric treatment as they can influence and impair the quality of life not only for affected persons but also for their social and familial system. Aim: This research studies symptom management in everyday life by exploring and reconstructing the views, perceptions, experiences, facilitators and barriers of adults with CPTSD. Methods: A theoretical sampling was used to recruit 18 to 65 years old patients diagnosed with CPTSD from an inpatient setting. The 17 semi-structured interviews were audio recorded and transcribed verbatim. The transcriptions were uploaded into MAXQDA, and a Grounded Theory method based on Corbin and Strauss was used to analyse the data. Results: We provide a process model with 5 interacting phases: trauma experience, emotional ignorance, overcompensation, paroxysm, and perspectives. Each phase is specified with subcategories. Conclusions: The participants did not recognise their symptoms as such and were unaware of their diagnosis for many years. Nevertheless, they used various resources and were able to develop skills and techniques to deal with their symptoms and to function on a day-today basis. Overall, the process of symptom management was extremely exhausting for the participants and they felt left alone with it. The participants were eager to gain support from healthcare professionals and, when necessary, financial support from the government. Thus, these results indicate an essential need to develop support and tailored interventions for the symptom management of persons with a CPTSD. Trial registration: Ethical approval was obtained from the Swiss Cantonal Ethic Commission (Nr 201,500,096). This research was also registered at the World Health Organization Clinical Trials Search Portal through the German Clinical Trial Register, Trial DRKS00012268.

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Section: Discussionsupporting

confidence: 91%

Why do I have to suffer? Symptom management, views and experiences of persons with a CPTSD: a grounded theory approach

et al. 2018

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“…Therefore, providing support and understanding symptom management process could be pivotal in improving the quality of life of those sufferers [ 89 ]. Literature describes relatives as an important and supportive part in the lives of patients with a chronic condition ([ 29 , 71 , 90 ]; Stadtmann MP, Maercker A, Binder J, Schnepp W: Why do I have to suffer? Symptom management, views and experiences of persons with a CPTSD: A grounded theory approach, submitted).…”

Section: Discussionmentioning

confidence: 99%

“…In general, as informal social support, patients’ relatives play a significant and vital role in research on symptom management [ 29 – 33 ]. Relatives of those affected by a chronic mental illness such as CPTSD support them in several ways.…”

Section: Introductionmentioning

confidence: 99%

Mastering life together - symptom management, views, and experiences of relatives of persons with CPTSD: a grounded theory study

Stadtmann

Maercker

Binder

et al. 2018

J Patient Rep Outcomes

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BackgroundComplex posttraumatic stress disorder is described as a chronic condition with several severe and concurrent symptoms. Symptoms influence and impair not only the affected individuals but also their social surroundings and their relatives. The literature describes relatives as a key factor in managing symptoms, both as a barrier and a facilitator.AimThis research aimed to explore and to reconstruct the views, perceptions, experiences, facilitations and barriers of relatives who support the symptom management of persons with CPTSD in everyday life.MethodsA theoretical sampling was used to recruit for an interview 18- to 65-year-old relatives of patients with diagnosed CPTSD. The 17 semi-structured interviews were audio-recorded and transcribed verbatim. The transcriptions were uploaded into MAXQDA, and a Grounded Theory method based on that of Corbin and Strauss was used to analyse the data.ResultsWe provide a process model with 5 interacting phases: the initial situation, state of permanence, being an anchor, recognizing limits, and potential outcomes. Each phase is further divided into subcategories.DiscussionParticipants experienced their condition as unpredictable. Although they mastered different strategies through own exploration and in cooperation, there is a clear need for more education, advice and support for relatives caring for those affected by CPTSD. Health care services should consider providing family support, educational services and increase the involvement of relatives in treatment. Over all, well-supported relatives can play a facilitative, key role in improving symptom management.Trial registrationEthical approval was obtained from the Swiss Cantonal Ethic Commission (Nr 201,500,096). This research was also registered at the World Health Organization Clinical Trials Search Portal through the German Clinical Trial Register, Trial DRKS00012268.

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“…No study was found that dealt with symptom management in the everyday life of adult patients with CPTSD. Patients’ relatives play a significant role in research on caregivers and symptom management [ 19 – 22 ]. The relatives can be both a facilitator and a barrier to patients’ symptom management [ 16 , 23 ].…”

Section: Introductionmentioning

confidence: 99%

Symptom management in complex post-traumatic stress disorder (ICD-11), view and experience of patients and their relatives: a mixed methods approach (Research Proposal)

et al. 2017

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ObjectiveUsing the framework of IDC-11, complex post-traumatic stress disorder will be diagnosed using the core criteria of a post-traumatic stress disorder and the presence of at least one symptom from the following three domains: symptoms of emotional dysregulation, negative self-concept, and problems in interpersonal relationships. In the literature, these symptoms are discussed as a common reason for seeking treatment. The symptoms can influence and impair the quality of life. This article describes a mixed methods study with a sequential exploratory design. The aim is to describe specific patient characteristics, levels of symptom burden and perspectives of adult inpatients and to describe the experiences, views and needs of patients’ relatives. The study will also investigate facilitators of and barriers to symptom management. The research will be conducted in four phases. The first phase will assess patients’ symptom burdens. The second phase will use semi-structured interviews to explore attitudes to symptom management and perceptions of patients and their relatives. The third phase will statistically explore hypotheses generated after the qualitative interviews. The fourth phase will mix the quantitative and qualitative results and interpret critically.ResultsThe present study will add new results to the growing literature on complex post-traumatic stress disorder. These results could serve as the basis for further research into the development of interventions to improve symptom management. Trial registration Ethical approval has been obtained from the Swiss cantonal ethic commission (Nr. 201500096). This research was also registered to the World Health Organization Clinical Trials Search Portal through the German Clinical Trial Register, Trial DRKS00012268 (21/04/2017)

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Psychosoziale Interventionen für Paare, die mit einer Krebserkrankung leben. Eine Literaturübersicht

Cited by 7 publications

References 0 publications

Why do I have to suffer? Symptom management, views and experiences of persons with a CPTSD: a grounded theory approach

Why do I have to suffer? Symptom management, views and experiences of persons with a CPTSD: a grounded theory approach

Mastering life together - symptom management, views, and experiences of relatives of persons with CPTSD: a grounded theory study

Symptom management in complex post-traumatic stress disorder (ICD-11), view and experience of patients and their relatives: a mixed methods approach (Research Proposal)

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