Psychosocial Weil‐Being and Epilepsy: An Empirical Study

Collings, John

doi:10.1111/j.1528-1157.1990.tb05497.x

Cited by 208 publications

(126 citation statements)

References 9 publications

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“…O fato de estar empregado implica na construção de identidade e senso de ser útil, de ter um valor 20,21 . Estar empregado em tempo integral é um propiciador de bem-estar 22 e o desemprego contribui para problemas emocionais e comportamentais 23 . Estes dados atentam para a importância da inserção no mercado de trabalho como fator de integração social, econômica e de realização pessoal.…”

Section: Discussionunclassified

Impacto da epilepsia no trabalho: avaliação da qualidade de vida

Salgado

Souza

2002

Arq. Neuro-Psiquiatr.

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RESUMO -Este estudo teve como objetivo reconhecer quais os fatores mais afetados na qualidade de vida (QV) de pacientes com epilepsia. Foram avaliados 134 sujeitos com diagnóstico de epilepsia, aleatoriamente selecionados no Ambulatório de Epilepsia do HC/UNICAMP, com idade entre 18 e 59 anos (M=35,38; DP=9,86), através do "Questionário de Qualidade de Vida 65". A maioria dos sujeitos possuía ensino fundamental incompleto (58,2%), não trabalhava (69,4%) e era solteiro (48,5%). O trabalho foi a área considerada mais prejudicada pela epilepsia (31,29%), o que reforça estudos que comprovam o alto índice de desemprego ou subemprego na população epiléptica e atenta para a importância da inserção no mercado de trabalho como um fator de integração social, econômica, e de realização pessoal. PALAVRAS-CHAVE: qualidade de vida, epilepsia, trabalho.Impact of epilepsy at work: evaluation of quality of life Impact of epilepsy at work: evaluation of quality of life Impact of epilepsy at work: evaluation of quality of life Impact of epilepsy at work: evaluation of quality of life Impact of epilepsy at work: evaluation of quality of life ABSTRACT -This study searched for the knowledge of the most affected aspects in the quality of life (QoL) of patients with epilepsy. The sample consisted of 134 individuals with epilepsy, aging 18 to 59 years (M=35.38; DP=9.86) chosen at random from the Ambulatory of Epilepsy of HC/UNICAMP, interviewed by the QoL-65. Most of the subjects have not completed elementary school (58.2%), have not had any paid work (69.5%) and were single (48.5%). The most affected factor in epilepsy was the work area (31.29%), what reinforces studies showing the high level of unemployment or subemployment in epileptic population and aware to the importance of the insertion in the work-market as an economic and social integration factor and as a way of improving self-steem.KEY WORDS: quality of life, epilepsy, employment.Qualidade de vida (QV) é um conceito subjetivo que refere como o paciente sente e funciona em relação à doença. O paciente com epilepsia é o único que sabe como sua vida é afetada pela condição de doente. QV refere-se a satisfação do indivíduo com sua vida e sua percepção de bem-estar, no contexto cultural onde vive, em relação as suas expectativas e objetivos 1 , diante da realidade 2 . QV trata de problemas que estão além da crise. São relacionados aos aspectos emocionais, sociais (trabalho, escola, lazer, relacionamentos) e físicos, que são invadidos pela condição epiléptica. Todos estes aspectos contribuem ao ajustamento do paciente ao seu distúrbio e sua percepção do impacto causado em sua vida.Não é a doença em si que irá indicar a QV, mas como o paciente pode viver com ela. A adaptação psicológica entre pacientes com condições médicas crônicas é independente do diagnóstico, depende da percepção que o paciente tem de si e de sua doença 3,4 . O impacto das alterações percebidas na QV é comumente influenciado não só pelo grau do dé-ficit, mas também pela situação de vida das pessoas e as demandas...

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Section: Discussionunclassified

Impacto da epilepsia no trabalho: avaliação da qualidade de vida

Salgado

Souza

2002

Arq. Neuro-Psiquiatr.

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“…However, over the years, a body of empirical research indicates that seizure disorders are often associated with a variety of psychological and social problems, as well as malaise [4][5][6] and social and political isolation. The fear patients have about their seizures (or possible seizures) is seldom assigned a significant role in adjustment to everyday life.…”

Section: Introductionmentioning

confidence: 99%

Relationship between optimism, disease variables, and health perception and quality of life in individuals with epilepsy

Pais-Ribeiro

Silva

Meneses

et al. 2007

Epilepsy & Behavior

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Epilepsy is a relatively frequent chronic condition with an important impact on the health perception and quality of life (QOL) of patients. The aim of the present study was to identify variables related to health status perception and QOL in persons with epilepsy. Participants were 200 persons with epilepsy, 53.5% of whom were males. The mean age was 39.6; 95% had seizures, and 99% were taking antiepileptic medication. The self-report questionnaire administered assessed four types of variables: demographic, disease, epilepsyspecific optimistic attitude, and outcome variables. Results demonstrated that an optimistic orientation is related to better perception of physical and mental health status and better perception of QOL. The variables that best predict positive outcomes are optimistic orientation, perception of cognitive functioning, and perception of seizure control. These results question the importance attributed to seizure characteristics for everyday functioning and everyday life of individuals with epilepsy, and stress the importance of facilitating an epilepsy-specific optimistic orientation.

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“…The extensive psychosocial ramifications of epilepsy have been acknowledged for many decades (1)(2)(3)(4), but only recently has health-related quality of life (HRQOL) been emphasized as an important, quantifiable outcome measure. Much attention has been given appropriately to determination of the reliability and validity of available HRQOL instruments (5)(6)(7)(8)(9).…”

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confidence: 99%

Patient‐Validated Content of Epilepsy‐Specific Quality‐of‐Life Measurement

et al. 1997

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Summary: Purpose:To study the effects of epilepsy from the patients' perspective and assist determination of content validity of health-related quality-of-life (HRQOL) measures.Methods: We asked 81 consecutive patients with moderately severe epilepsy to list in order of importance their concerns of living with recurrent seizures. To minimize investigator bias, patients completed the procedure in a private setting without staff involvement.Results: Twenty-four distinct domains were generated by the patients. Concerns about driving (64%), independence (54%), employment (5 1%), social embarrassment (36%), medication dependence (33%), mood/stress (32%), and safety (31%) each were listed by >30% of patients. Driving was listed as the most important concern by 28% of patients, followed by employment (21 %), independence (9%), safety (6%), antiepilepticdrug side effects (5%), seizure unpredictability (5%), and seizure aversion (5%).Conclusions: The effect of epilepsy on HRQOL is not vague or obscure from the patients' perspective but is defined by a limited number of domains. Independence is an important concern that may not be evaluated adequately by currently available HRQOL instruments. Key Words: Quality of life measures-Epileps y-Independence.The extensive psychosocial ramifications of epilepsy have been acknowledged for many decades (1-4), but only recently has health-related quality of life (HRQOL) been emphasized as an important, quantifiable outcome measure. Much attention has been given appropriately to determination of the reliability and validity of available HRQOL instruments (5-9). Construct validity, internal consistency, and test-retest reliability are components used in most studies of epilepsy-related measures (10-16). However, little emphasis has been placed on content validity, the determination of the appropriateness of domains or specific items in the instrument. Most validation studies of HRQOL instruments use expert opinion to determine which domains will be included, but this method allows significant potential for investigator bias.In fact, physicians may have poor insight into their patients' experience of disease (17). Chaplin et al. (18) studied the effects of epilepsy by systematic, structured interviews with newly diagnosed patients but did not report details about the rates and relative importance of identified concerns.

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Psychosocial Weil‐Being and Epilepsy: An Empirical Study

Cited by 208 publications

References 9 publications

Impacto da epilepsia no trabalho: avaliação da qualidade de vida

Impacto da epilepsia no trabalho: avaliação da qualidade de vida

Relationship between optimism, disease variables, and health perception and quality of life in individuals with epilepsy

Patient‐Validated Content of Epilepsy‐Specific Quality‐of‐Life Measurement

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