Psychosocial Support for Adults With Cystic Fibrosis

Strauss, Gordon D.; Pedersen, Susan; Dudovitz, Dorothy

doi:10.1001/archpedi.1979.02130030077014

Cited by 9 publications

(4 citation statements)

References 11 publications

(1 reference statement)

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“…More recently, group interventions have been tried with patients with chronic or fatal diseases such as diabetes (27), multiple sclerosis (28), and cystic fibrosis (29). There is also descriptive literature about various group approaches for patients with arthritis (30,3 1).…”

Section: Discussionmentioning

confidence: 99%

“…Group psychotherapeutic interventions have been reported to be a useful adjunct to medical treatment in chronic and acute illness since 1905, when Dr. Joseph Pratt began educational and "inspirational" groups for his tuberculosis patients (26). More recently, group interventions have been tried with patients with chronic or fatal diseases such as diabetes (27), multiple sclerosis (28), and cystic fibrosis (29). There is also descriptive literature about various group approaches for patients with arthritis (30,3 1).…”

Section: Discussionmentioning

confidence: 99%

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Group therapies for rheumatoid arthritis: A controlled study of two approaches

Strauss¹,

Spiegel²,

Daniels³

et al. 1986

Arthritis & Rheumatism

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An important unanswered question about rheumatoid arthritis (RA) is how the patient's psychological or emotional state relates to disease activity and functional status. No controlled studies of psychotherapeutic interventions in RA have been reported. To test the hypothesis that a psychosocial intervention would lead to improvement in functional status or disease activity, 57 RA patients were randomly assigned to 1 of 3 groups, which received: 1) conventional group psychotherapy; 2) group assertionhelaxation training; or 3) no treatment (control group). Patient and physician questionnaires collected at baseline, immediately after the interventions, and 12 months after baseline provided outcome data on functional status, social and psychological adaptation, psychological symptoms, and disease activity. There were few outcome measures for which either treatment resulted in significantly higher scores

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Group therapies for rheumatoid arthritis: A controlled study of two approaches

Strauss¹,

Spiegel²,

Daniels³

et al. 1986

Arthritis & Rheumatism

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“…Because of this, food may take on a special meaning at a symbolic level in terms of the illness and at an interactional level in terms of adolescent struggles with family and physicians. As one research group noted (Strauss, Pedersen, & Dudovitz, 1979), "a central fact for all CF patients is the existence of a chronic and incurable disease, the development and continuing presence of which is completely outside the control of the individual. A common way to cope with this issue .…”

Section: A Clinical Descriptive Phase Characterized By Anecdotal and mentioning

confidence: 99%

Anorexia nervosa and cystic fibrosis: A case report

Goldbloom

1988

Int. J. Eat. Disord.

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With the increased diagnostic awareness of eating disorders, and with the delineation of groups that may be at high risk for the development of these disorders, this report describes a case of fulminant anorexia nervosa in a woman with cystic fibrosis. In addition to this being the first extensively documented case, this report speculates on reasons for an association between cystic fibrosis and eating disorders. Furthermore, it indicates how failure to diagnose eating disorders can complicate medical treatment.

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“…In der ganz überwiegenden Zahl der Fälle finden die heran• wachsenden Mukoviszidosepatienten keine befriedigenden länger dauernden Partnerschaften. Die ArbeIten, die sich mit den Problemen der jungen Erwachsenen befassen (Boyle et a1., 1976;Stephan und Wiesemann, 1984;Strauss et al, 1979;Roselund und Lustig, 1976) stellen die Schwierigkeiten der Partnerbeziehungen dar. Die Belastungen sind enorm, das Miterlebenmüssen der fortschreitenden Erkrankung des geliebten Partners, die daraus sich ableitenden Schwierigkeiten im Berufsleben mit den nachfolgenden Problemen im finanziellen und wirtschaftlichen Bereich sowie auch die vermehrte Isolation im sozialen Bereich.…”

Section: Adoleszenzphaseunclassified

Krankheitsbewältigung in Familien mit Mukoviszidose-Kindern

Möllering¹

1986

Klin Padiatr

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Utilizing a literature survey we reviewed dates of the intellectual and psychosocial developmental milestones of children suffering from mucoviscidosis. We analyzed the intellectual abilities and social behavior of these children in school as well as their position in the family. The sickness of the child leads to considerable difficulties in intrafamilial communication. The way the patient, the siblings and the parents cope with the sickness is reviewed. We find a changing in self-image of the child as well as changing in self-confidence of the parents, who often react with depression and withdrawal.

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Psychosocial Support for Adults With Cystic Fibrosis

Cited by 9 publications

References 11 publications

Group therapies for rheumatoid arthritis: A controlled study of two approaches

Group therapies for rheumatoid arthritis: A controlled study of two approaches

Anorexia nervosa and cystic fibrosis: A case report

Krankheitsbewältigung in Familien mit Mukoviszidose-Kindern

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