Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan

Aziz, Kashif; Sadaf, Breera; Kanwal, Sadia

doi:10.1186/1751-0759-6-15

Cited by 23 publications

(22 citation statements)

References 4 publications

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“… 13 Mean age of our patients was 17 years, it is comparable to studies conducted in Taiwan 14 and Egypt. 15 Mean age of our caregivers was 41.25 years, it is similar to researches conducted in Rawalpindi 16 , Bahawalpur 17 and Greece. 18 No significant association was seen between stress in relation gender of patients and caregivers in the study conducted in India 19 and Greek transfusion center 6 , which is also similar to our results.…”

Section: Discussionsupporting

confidence: 80%

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Perceived stress and monetary burden among thalassemia patients and their caregivers

et al. 2018

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Objective:To find the perceived stress level and monetary burden in the thalassemia patients and their caregivers related to thalassemia treatment sessions.Methods:A descriptive cross sectional study was conducted at Rawalpindi Thalassemia Centre and Military Hospital Rawalpindi of six months’ duration from November 2016 to April 2017. A total of 87 sample size was calculated by using WHO sample size calculator. Participants were inducted through purposive sampling technique from thalassemia centers. A validated standardized Cohen’s Perceived Stress score was used. Data were entered and analyzed in SPSS 22.Results:Mean age of the participants was 30.42 ± 14.53 years. There were 30 (34.2%) males and 57 (65.8%) females. There were 39 (51.3%) patients and 48 (48.7%) caregivers. The mean income per month of the participants was 48706.9 ± 39492.68 PKR. The mean total expenditure per treatment session was 48706 ± 4037.12 PKR. Among the patients, there were 15 (38.5%) who were having average stress, while 4 (10.3%) were having moderate stress while 45 (51.7%0 were having severe stress. Among the caregivers, 10 (20.8%) were having mild stress, 13 (27.1%) were having moderate stress while 25 (52.1%) were having severe stress. The stress among the two groups was not statistically significant (p=0.066).Conclusion:More than half of the patients and caregivers were having a high perceived stress levels and there was a significant association between the two groups. The monetary burden was a lot to bear by the patients and the cost of treatment session most expensive.

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Section: Discussionsupporting

confidence: 80%

“…In a study conducted in Bahawalpur, Pakistan, 45% of caregivers were psychologically distressed. 17 The status of education among caregivers had no influence on the levels of stress and our study also showed no such difference with level of education statistically. 15 …”

Section: Discussioncontrasting

confidence: 39%

Perceived stress and monetary burden among thalassemia patients and their caregivers

et al. 2018

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“…In many rural areas of Pakistan, due to traditional cultural practices, blind religious believes, ignorance and pressure from family and society, parents of thalassemic child face many problems in the treatment of their sick child (Aziz et al 2012 ) along with their social adjustment (Shaligram et al 2007 ). Beside medical and professional support, these people required awareness, acceptance, recognition and removal of social pressure to manage the disease and knob these decisive circumstances (Roy and Chatterjee 2007 ).…”

Section: Discussionmentioning

confidence: 99%

Socio-religious Prognosticators of Psychosocial Burden of Beta Thalassemia Major

2020

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The study investigates the socio-religious factors in the propagation of genetically inherited disease of Beta thalassemia. The disorder which reportedly has a significant protraction through repeated cousin marriages results in the social maladjustment of the parents of the sick children due to constant depression, anxiety, and weak social interaction and may lead to social isolation as well. This research aims to find out the significant effect of socio-religious trends on psychosocial burden of beta thalassemia major among cousin and non-cousin couples in the province of Punjab in Pakistan. It takes a sample of 932 parents of sick children, among whom 735 were married with cousins and 197 with non-cousins, for data collection. The findings reveal that inadequate knowledge of the disease, insufficient or misdirected social support, stigmatization, and marriage breakups caused by the disease, superstitions, and misinterpretations of religion and the subsequent practices accordingly as significant predictors of psychosocial burden of beta thalassemia major among non-cousins and cousin couples. Additionally, it also finds patriarchy as only significant predictors of outcome variable among cousin couples.

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“…Thalassemia begins from infancy and has several mental effects on parents. Lack of training causes numerous social problems for parents (17). Mazzone and et al stated that family having a child with thalassemia have numerous problems (18).…”

Section: Discussionmentioning

confidence: 99%

Explaining Consequences of Parents Having Child with Thalassemia: Qualitative Study

Heidari

Ahmadi

2020

Med Surg Nurs J

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Background: Thalassemia can affect different aspects of life the same as any other chronic disease. Despite therapeutic measures of thalassemia, the patient and families encounter several physical and psychological problems. Having a child with thalassemia can disrupts the family mental balance. Objectives: The purpose of this study is to explain the consequences of parents who have children with thalassemia. Methods: Inductive qualitative approach was applied in 2017 - 2018 in Hajar Hospital. Semi-structured interviews were conducted for data collection. Qualitative conventional content analysis was employed for data analysis. 10 five mothers, one grandmother, and two fathers and nurses participated in this study. Results: The three specified categories were as follows: (1) Non-acceptance of disease: disbelief, not following up treatment, and interest for abortion, (2) parent psychological reactions: unhappiness, anxiety, and mental confusion, (3) Isolation: dissociation and stigma. Conclusions: Parents who had children with thalassemia experienced several psychological problems. The consultative and supportive services of the health system were necessary for these parents. Also, it was urgent that the health authorities establish consulting clinics for chronic diseases to provide them the required consulting services.

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Psychosocial problems of Pakistani parents of Thalassemic children: a cross sectional study done in Bahawalpur, Pakistan

Cited by 23 publications

References 4 publications

Perceived stress and monetary burden among thalassemia patients and their caregivers

Perceived stress and monetary burden among thalassemia patients and their caregivers

Socio-religious Prognosticators of Psychosocial Burden of Beta Thalassemia Major

Explaining Consequences of Parents Having Child with Thalassemia: Qualitative Study

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