Psychosocial Maternal Perception of the Outcome of Pre Surgical Infant Orthopedics in Infants Born with Cleft Lip and Palate

Bhutiani, Neha; Tripathi, Tulika; Rai, Priyank

doi:10.22514/1053-4625-46.4.7

Cited by 3 publications

(1 citation statement)

References 24 publications

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“…It is consistent with the findings of previous studies reporting that parents of newborns with CL/P had significantly higher levels of anxiety compared to control parents [ 20 ]. The study findings are consistent with the current literature, as depression or depressed mood in parents of children with CL/P is a common phenomenon [ 21 , 22 ]. Kumar [ 23 ] reported the highest incidence of depressive episodes, with 42% of parents of children with CL/P aged >10 years showing a strongly or very strongly elevated depressive disorders screening index.…”

Section: Discussionsupporting

confidence: 92%

Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study

Zhang,

Jiang

et al. 2024

JMIR Form Res

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Background Parents of children with cleft lip with or without cleft palate (CL/P) often face stigmatization, which has a significant impact on their quality of life and mental health. However, to date, there is a lack of comprehensive, multicenter empirical research on parents of children with CL/P in China, particularly those with large-scale samples. Objective This study aimed to identify major factors that contribute to the perception of stigma experienced by parents of children with CL/P. Methods A cross-sectional survey was conducted. A total of 104 parents of children diagnosed with CL/P in 2 hospitals were selected by convenience sampling. Demographics and disease information, the Chinese Perception of Stigma Questionnaire, the Center for Epidemiological Studies Depression Scale, and the Social Anxiety Scale were used in this study. Descriptive statistics, t tests, and one-way ANOVA were used to compare the differences between participants’ demographic information and perception of stigma. Multivariable linear regression was performed to assess associations between demographic factors, social anxiety, depression, and perception of stigma. Results The mean scores for the dimensions of perception of stigma, depression, and social anxiety were 22.97 (SD 9.21), 38.34 (SD 8.25), and 22.86 (SD 6.69), respectively. Depression and social anxiety were positively associated with discrimination, while surgery status was a negatively associated variable. Parents with a college education or higher had significantly lower levels of perceived stigma compared to parents with a junior high school education (all P values <.05). These 4 factors explained 40.4% of the total model variance (F8=9.726; P<.001; R2=0.450; adjusted R2=0.404). Conclusions Our findings highlight a concerning trend of diminished quality of life among parents of children with CL/P. Factors such as parents’ education level, surgery status, depression, and social anxiety are shown to influence the level of stigma experienced. Implementing comprehensive nursing care and providing presurgical support are effective strategies for alleviating parents’ social anxiety, reducing perceived stigma, and preventing depression.

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Section: Discussionsupporting

confidence: 92%

Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study

Zhang,

Jiang

et al. 2024

JMIR Form Res

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Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver Narratives

Alrubaiaan,

Nair,

Amir-Rad

et al. 2024

The Cleft Palate Craniofacial Journal

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Objective Information regarding how caregivers cope when using presurgical infant orthopedic (PSIO) appliances is sparse. This study aimed to understand caregivers’ perspectives and experiences with contemporary PSIO treatment. Design PSIO videos shared on the YouTube™ platform were used as the data source. Videos with caregivers were identified (n = 21) and portions with caregiver narratives were transcribed. This was followed by the application of a six-step thematic analysis as conceptualized by Braun and Clarke (2006, 2019). Results Two themes were identified from the caregiver narratives in the PSIO videos. The Family Journey theme included reaction to diagnosis, choice of center, burden of care, care commitment, coping, and testimonials. The Information theme included PSIO techniques and PSIO benefits. Conclusion Multifaceted challenges and coping strategies were described by caregivers during the PSIO phase. Caregivers remained committed to treatment despite the burden of care, were motivated by an understanding of the benefits of PSIO, and customized care based on their individual strengths and needs. Study results can help providers gain an understanding of what caregivers experience outside the clinical environment.

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Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study (Preprint)

Zhang,

Jiang

et al. 2023

Preprint

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BACKGROUND Parents of children with cleft lip and palate (CL/P) often face stigmatization, and the stigmatization they felt has a significant impact on the quality of their life and mental health. However, to date, there is a lack of comprehensive, multi-center empirical research on parents of children with CL/P in China, particularly those that employ large-scale samples. OBJECTIVE To identify the major factors that contribute to the perception of stigma experienced by parents of children with CL/P. METHODS A cross-sectional survey. Parents of children diagnosed with CL/P in 2 hospitals was selected by convenience sampling. Demographic, disease information, a Chinese Perception of stigma Questionnaire, the Center for Epidemiological Studies Depression Scale, and Social Anxiety Scale Life Scale were used in this study. Descriptive statistics, t-tests, and one-way analysis of variance were used to compare the differences between participants’ demographic information and stigma. RESULTS The mean scores for the dimensions of perception of stigma, depression, social anxiety was 22.914±9.172, 38.337±8.248, 21.644±6.408, respectively. The depression and anxiety was positive associated with discrimination, while “whether operation were performed” and “education background” were negatively associated variables. These four factors explained 23.50% of the total model variance. CONCLUSIONS The mean scores for the dimensions of perception of stigma, depression, social anxiety was 22.914±9.172, 38.337±8.248, 21.644±6.408, respectively. The depression and anxiety was positive associated with discrimination, while “whether operation were performed” and “education background” were negatively associated variables. These four factors explained 23.50% of the total model variance.

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Psychosocial Maternal Perception of the Outcome of Pre Surgical Infant Orthopedics in Infants Born with Cleft Lip and Palate

Cited by 3 publications

References 24 publications

Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study

Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study

Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver Narratives

Factors Associated With Perception of Stigma Among Parents of Children With Cleft Lip and Palate: Cross-Sectional Study (Preprint)

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