Psychosocial Issues in Children and Adolescents With HIV Infection Evaluated With a World Health Organization Age-Specific Descriptor System

Giannattasio, Antonietta; Officioso, Annunziata; Continisio, Grazia Isabella; Griso, G.; Storace, Cinzia; Coppini, Simonetta; Longhi, Daniela; Mango, C.; Guarino, Alfredo; Badolato, Raffaele; Pisacane, Alfredo

doi:10.1097/dbp.0b013e3181f51907

Cited by 15 publications

(14 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A cohort study of perinatally infected children and adolescents on ART in the United States found that depression or anxiety was predictive of non-adherence [ 16 ]. Meanwhile, on the environmental level, stigma [ 14 ], social or familial support [ 17 ] and socioeconomic status [ 15 ] can impact usage of healthcare services by youth and adolescents. People belonging to YKP can be stigmatized for their engagement in risk behaviours.…”

Section: Introductionmentioning

confidence: 99%

Review: An urgent need for research on factors impacting adherence to and retention in care among HIV‐positive youth and adolescents from key populations

Lall

Lim

Khairuddin

et al. 2015

Journal of the International AIDS Society

117

107

View full text Add to dashboard Cite

IntroductionThe 50% increase in HIV-related deaths in youth and adolescents (aged 10–24) from 2005 to 2012 highlights the need to improve HIV treatment and care in this population, including treatment adherence and retention. Youth and adolescents from key populations or young key populations (YKP) in particular are highly stigmatized and may face additional barrier(s) in adhering to HIV treatment and services. We reviewed the current knowledge on treatment adherence and retention in HIV care among YKP to identify gaps in the literature and suggest future directions to improve HIV care for YKP.MethodsWe conducted a comprehensive literature search for YKP and their adherence to antiretroviral therapy (ART) and retention in HIV care on PsycInfo (Ovid), PubMed and Google Scholar using combinations of the keywords HIV/AIDS, ART, adolescents, young adults, adherence (or compliance), retention, men who have sex with men, transgender, injection drug users, people who inject drugs and prisoners. We included empirical studies on key populations defined by WHO; included the terms youth and adolescents and/or aged between 10 and 24; examined adherence to or retention in HIV care; and published in English-language journals. All articles were coded using NVivo.Results and discussionThe systematic search yielded 10 articles on YKP and 16 articles on behaviourally infected youth and adolescents from 1999 to 2014. We found no studies reporting on youth and adolescents identified as sex workers, transgender people and prisoners. From existing literature, adherence to ART was reported to be influenced by age, access to healthcare, the burden of multiple vulnerabilities, policy involving risk behaviours and mental health. A combination of two or more of these factors negatively impacted adherence to ART among YKP. Collectively, these studies demonstrated that future programmes need to be tailored specifically to YKP to ensure adherence.ConclusionsThere is an urgent need for more systematic research in YKP. Current limited evidence suggests that healthcare delivery should be tailored to the unique needs of YKP. Thus, research on YKP could be used to inform future interventions to improve access to treatment and management of co-morbidities related to HIV, to ease the transition from paediatric to adult care and to increase uptake of secondary prevention methods.

show abstract

Section: Introductionmentioning

confidence: 99%

Review: An urgent need for research on factors impacting adherence to and retention in care among HIV‐positive youth and adolescents from key populations

Lall

Lim

Khairuddin

et al. 2015

Journal of the International AIDS Society

117

107

View full text Add to dashboard Cite

show abstract

“…7 Interestingly, the greatest impairment reported by parents was related to the need of hiding the HIV infection status to their children because of social stigma. This was associated with delayed disclosure, 7 which in turn generated a vicious cycle of increased anxiety, ultimately leading to further functional disabilities in HIV-infected children. Therefore, disclosure has a key role in coping with HIV infection.…”

mentioning

confidence: 99%

Family Group Psychotherapy to Support the Disclosure of HIV Status to Children and Adolescents

Nicastro

Continisio

Storace

et al. 2013

AIDS Patient Care and STDs

Self Cite

View full text Add to dashboard Cite

“…In children and adolescents, ART is effective in controlling HIV-related symptoms; but the overall quality of life is far from optimal, owing to problems in the psychosocial sphere (10). In a previous study, we observed a major burden of psychosocial issues in a population of HIV-infected compared to a population of non-HIV-infected children (20). Poor socioeconomic conditions, high rates of unemployment, family breakdown, and problems in HIV disclosure are the most difficult obstacles in the management of HIV-infected adolescents (21).…”

Section: Discussionmentioning

confidence: 79%

The Transition of Care From Pediatric to Adult Health-Care Services of Vertically HIV-Infected Adolescents: A Pilot Study

et al. 2020

Self Cite

View full text Add to dashboard Cite

Clinical and psychological HIV-related problems peak during adolescence, which coincides with transition of children and adolescents infected from mothers from pediatric to adult reference centers for HIV infection. Transition often is done without specific programs. We wanted to explore transition as an opportunity to increase the efficacy of care and the psychological well-being through a specific program. Methods: Thirteen vertically infected patients aged 13-20 years were followed up for 24 months by pediatricians, infectious disease specialists, a psychologist, and a nurse. Interventions consisted in joint clinic, simplification of therapy, patient group discussions, HIV infection explanations, and psychological support, lasting 12 months. Efficacy was measured by viro-immunological outcomes and adherence to therapy and psychological tests. Clinical, viro-immunological, and psychological evaluations were performed at 0 (T0) and 12 months (T12) and 6 months after transition to an adult center (T18). Psychological outcomes were assessed using standardized questionnaires for quality of life and self-esteem. Results: In 11/13 participants, pills administrations/day were significantly reduced. Patients with undetectable viral load and CD4+ >25% increased from 61 to 77% and from 61 to 74%, respectively. Six months after transition, all patients exhibited an undetectable viral load. Adolescents' awareness of the severity of the disease and the risk of sexual transmission was generally poor. Patients classified with "severe" psychological distress according to the quality of life index decreased from 38 to 15% and well-being increased. Similar results were observed 6 months after the transition to adult care. No effect was observed on self-esteem index. Conclusions: Specific protocols for transition should be developed to optimize resilience and psychological well-being, including routine psychological support for adolescents with HIV infection transiting from pediatric to adult centers for HIV infection.

show abstract

Psychosocial Issues in Children and Adolescents With HIV Infection Evaluated With a World Health Organization Age-Specific Descriptor System

Abstract: Psychosocial issues are part of the well-being of children with HIV. The ICF is a standard tool to evaluate the clinical and psychosocial status of children and adolescents with HIV infection and to measure the impact of therapeutic interventions and strategies on psychosocial functioning.

Cited by 15 publications

References 16 publications

Review: An urgent need for research on factors impacting adherence to and retention in care among HIV‐positive youth and adolescents from key populations

Review: An urgent need for research on factors impacting adherence to and retention in care among HIV‐positive youth and adolescents from key populations

Family Group Psychotherapy to Support the Disclosure of HIV Status to Children and Adolescents

The Transition of Care From Pediatric to Adult Health-Care Services of Vertically HIV-Infected Adolescents: A Pilot Study

Contact Info

Product

Resources

About