Psychosocial interventions to support the mental health of informal caregivers of persons living with dementia – a systematic literature review

Wiegelmann, Henrik; Speller, Sarah; Verhaert, Lisa-Marie; Schirra-Weirich, Liane; Wolf‐Ostermann, Karin

doi:10.1186/s12877-021-02020-4

Cited by 64 publications

(55 citation statements)

References 104 publications

(441 reference statements)

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“…Much still needs to be discussed about the effects of psychosocial interventions on informal caregivers’ mental health. A recent systematic review of the effectiveness of mental health interventions for informal caregivers of persons with dementia living at home showed positive effects on at least one of the outcomes followed in 25 of 46 studies (54.3%) [ 34 ]. Positive effects were most often (46.2%) reported for the subjective burden.…”

Section: Discussionmentioning

confidence: 99%

From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

Rajović

Todorovic²,

Vracevic³

et al. 2021

IJERPH

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Background: The objective of this study was to assess the complex relationship between the multiple determinants of the caregiving process, the caregiver burden, and depression during the COVID-19 pandemic in Serbia. Methods: A cross-sectional study was conducted on a nationally representative sample (n = 798) during the COVID-19 pandemic in Serbia from March to September 2020. A nine-section questionnaire designed for this study included the characteristics of caregivers, characteristics of care and care recipients, COVID-19 related questions, and the following standardized instruments: 12-Item Short-Form Health Survey, Fatigue Severity Scale, Activities of Daily Living Scale and Instrumental Activities of Daily Living Scale, Zarit Caregiver Burden Scale, and Beck Depression Inventory. Path analysis was used for the simultaneous assessment of the direct and indirect relationships of all determinants. Results: More than two thirds (71.9%) of informal caregivers experienced a burden, and more than one quarter (27.1%) had depression symptomatology. Self-rated physical health, need for psychosocial support, and caregiver burden were the main direct predictors of depression. Multiple determinants of the caregiving process had indirect effects on depressive symptomatology via the caregiver burden as a mediating factor. Conclusions: The subjective burden presented a significant risk factor for depressive symptoms in caregivers during the COVID-19 pandemic. The provision of psychosocial support was identified as an important opportunity to reduce depressive risk in informal caregivers.

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Section: Discussionmentioning

confidence: 99%

From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

Rajović

Todorovic²,

Vracevic³

et al. 2021

IJERPH

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“…To help ameliorate some of the described negative impacts, the last few decades have seen an increased focus on the development and testing of different psychosocial interventions to support family carers of people living with dementia [8]. Meta-analyses and reviews have documented encouraging effects for some interventions within clinical trials, and particularly for those that assume a cognitive behavioural approach [8][9][10]. Most recently, this has included a focus on modern approaches that target mindfulness, acceptance, and compassion, both for the self and others [11,12].…”

Section: Family Carers Of People Living With Dementiamentioning

confidence: 99%

“…Despite scientific promise, limited numbers of dementia caregiver interventions are translated into real-world use [ 10 , 20 ], and inadequate reporting of the intervention development process [ 10 , 20 ] and insufficient understanding of the carers’ needs [e.g., 21] have been implicated. Consistent with health intervention research at large [ 22 , 23 ], these findings suggest that the development of new and/or alternative interventions to support family carers of people living with dementia should be systematically described and grounded in an in-depth, qualitative understanding of users’ real-life needs and preferences.…”

Section: Introductionmentioning

confidence: 99%

Planning and designing a self-compassion intervention for family carers of people living with dementia: a person-based and co-design approach

2022

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Background This article describes the research activities undertaken to plan and design a self-compassion intervention for family carers of people living with dementia using a person-based and co-design approach. In providing this example, our aim is two-fold: to highlight the value of using qualitative research and co-design processes within intervention development; and to showcase systematic reporting of an intervention’s early planning and design stages. Methods A person-based and co-design approach informed the planning and design of the self-compassion intervention. In Stage 1, qualitative interviews were undertaken with 14 family carers of people living with dementia and 14 professional stakeholders. In Stage 2, intervention guiding principles were developed, psychological theory was incorporated, and six family carers of people living with dementia were engaged as co-designers. Results Knowledge generated during intervention planning identified that the intervention should be situated within the concept of compassion more broadly; address misperceptions, fears, blocks, and resistances to self-compassion; and target feelings of shame, guilt, and self-criticism. Subsequent intervention design activities determined that the needs of family carers of people living with dementia were best met by tailoring an existing intervention, namely group-based Compassion-Focused Therapy. Conclusions Our systematic approach highlights the value of incorporating in-depth qualitative research and co-design within the intervention development process to prioritise the perspectives and lived experiences of family carers of people living with dementia. The planning and design process outlined provides insight that is applicable to the development of our intervention and complex health interventions within gerontology and beyond.

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“…Both demyelination and SARS-CoV particles were found in some studies that performed autopsies of brains [69,70]. Diseases such as Alzheimer's, Parkinson's, Multiple Sclerosis (MS), and Guillain-Barre Syndrome are further advanced by delayed CNS damage after COVID disease, greatly increasing patients' mortality [71].…”

Section: Parkinson's and Alzheimer's Disorders Guillain-barré Syndromementioning

confidence: 99%

Neuropsychiatric Disorders and COVID-19: What We Know So Far

et al. 2021

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SARS-CoV-2 (Severe Acute Respiratory Syndrome Coronavirus-2) affects the central nervous system (CNS), which is shown in a significant number of patients with neurological events. In this study, an updated literature review was carried out regarding neurological disorders in COVID-19. Neurological symptoms are more common in patients with severe infection according to their respiratory status and divided into three categories: (1) CNS manifestations; (2) cranial and peripheral nervous system manifestations; and (3) skeletal muscle injury manifestations. Patients with pre-existing cerebrovascular disease are at a higher risk of admission to the intensive care unit (ICU) and mortality. The neurological manifestations associated with COVID-19 are of great importance, but when life-threatening abnormal vital signs occur in severely ill COVID-19 patients, neurological problems are usually not considered. It is crucial to search for new treatments for brain damage, as well as for alternative therapies that recover the damaged brain and reduce the inflammatory response and its consequences for other organs. In addition, there is a need to diagnose these manifestations as early as possible to limit long-term consequences. Therefore, much research is needed to explain the involvement of SARS-CoV-2 causing these neurological symptoms because scientists know zero about it.

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Psychosocial interventions to support the mental health of informal caregivers of persons living with dementia – a systematic literature review

Cited by 64 publications

References 104 publications

From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis

Planning and designing a self-compassion intervention for family carers of people living with dementia: a person-based and co-design approach

Neuropsychiatric Disorders and COVID-19: What We Know So Far

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