Psychosocial functioning of young adults with cystic fibrosis and their families.

Abstract

Background -The psychosocial functioning of adolescents and young adults with cystic fibrosis still living in the parental home was investigated. With its proven genetic aetiology cystic fibrosis is an ideal model with which to assess the impact of a chronic and life threatening disorder on family and individual psychological and social functioning.

Gene therapy for cystic fibrosis: a psychosocial study of trial participants

“…This is in accordance with the good psychosocial functioning of cystic fibrosis patients described in many previous studies. 6,7 The week 16 scores, not reported here, as expected showed no significant change from the baseline scores.…”

Health status of Australian children with mild to severe cerebral palsy: cross‐sectional survey using the Child Health Questionnaire

“…Withdrawal from neighbourly ties is known to be common among caregivers of children with disabilities, and time spent on caregiving remains high throughout childhood resulting in limitations on mothers' lifestyles (Cant 1993). It is well established that mothers of children with chronic disabilities are at increased risk of emotional distress and psychosocial adjustment problems (Innocenti et al 1992, Smith et al 1993, Blair et al 1994) and experience higher levels of stress (Beckmann-Bell 1981). Overall, the literature indicates that mothers of children with disabilities experience more stress and less psychological well-being than other mothers.…”

Standards of care for patients with cystic fibrosis: a European consensus

“…People with CF and their relatives are vulnerable to a range of psychological difficulties [21]. The nature of the condition and its treatment impact on children's, adolescents' and adults' abilities to respond to ordinary developmental tasks and extraordinary life events.…”