Psychosocial care of people with aphasia: Practices of speech-language pathologists in South Africa

Nash, J O; Krüger, Esedra; Vorster, Carlien; Graham, Marien Alet; Pillay, Bhavani S.

doi:10.1080/17549507.2021.1987521

Cited by 5 publications

(2 citation statements)

References 31 publications

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“…Feedback within peer support groups may be beneficial for individuals with ABI to monitor their progress and emotional well-being (Reese et al 2009). Support groups and psychosocial treatment can be encouraged in the early stages of care by allied HCPs (Nash et al 2021;Wijekoon 2020). Not all participant experiences were negative.…”

Section: Discussionmentioning

confidence: 99%

“…In this study, all participants were fortunate to have the option of both in-and out-patient treatment, however this is not always the case for the general South African population (Joosub 2019). High-caseloads and time pressures, with few qualified allied HCP, could have led to disparities in access to care (Nash et al 2021). SOs try to navigate changes in their loved ones as well as their own new roles and responsibilities.…”

Section: Discussionmentioning

confidence: 99%

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Experiences of acquired brain injury one-month post-discharge from acute hospitalisation

2023

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Background: Healthcare professionals may have a preconceived idea about life after an acquired brain injury (ABI). Understanding lived experiences of individuals with ABI and their significant others, post-hospitalisation, may improve communication between healthcare professionals and individuals directly influenced by the ABI.Objective: To describe perceived experiences of individuals with ABI, and their significant others, regarding rehabilitation services and returning to daily activities, one-month post-discharge from acute hospitalisation.Method: Semi-structured interviews, via an online platform, expanded on the experiences of six dyads (individuals with an ABI and their significant others). Data were thematically analysed.Results: Six main themes emerged that best described participants’ experiences; two of which were shared between individuals with ABI and their significant others (SO). Individuals with an ABI acknowledged recovery as their priority and highlighted the importance of patience. The need for counselling and additional support from healthcare professionals and peers arose. The SO expressed a need for written information, improved communication from healthcare professionals, and education regarding the implications of an ABI. The coronavirus disease 2019 (COVID-19) pandemic negatively influenced all participants’ overall experiences, mainly because of termination of visiting hours. Psychosocial intervention would have been beneficial to all participants. Faith influenced most participants’ attitudes towards recovery and adapting post-ABI.Conclusion: Most participants accepted their new reality but required additional support to cope emotionally. Individuals with an ABI would benefit from opportunities to share experiences with and learn from others in a similar situation. Streamlined services and improved communication may alleviate anxiety among families during this crucial transitional period.Contribution: This article provides valuable information on the perspectives and experiences of individuals with ABI and their significant others during the transition from acute hospitalisation. The findings can assist with the continuity of care, integrative health and supportive strategies during the transition period post-ABI.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Experiences of acquired brain injury one-month post-discharge from acute hospitalisation

2023

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Perspectives of U.S. speech-language pathologists on supporting the psychosocial health of individuals with aphasia

Hayashi

Gravier

Gustavson

et al. 2023

Journal of Communication Disorders

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Poststroke Communication Ability Predicts Patient–Informant Discrepancies in Reported Activities and Participation

Jewell,

Harnish,

Brello

et al. 2024

Am J Speech Lang Pathol

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Background: Participation in life situations has been identified by people with aphasia (PWA) as an ultimate outcome of rehabilitation and is often measured with patient-reported outcome measures (PROMs) or informant-reported measures. It is known that PWA and informants do not always produce similar scores on measures of activities and participation. However, systematic differences between PWA and informants and the causes of these differences are not well understood. Here, we investigated these differences as a function of language impairment, perceived level of activity and participation success, and depressive symptoms. Method: Participants were 29 PWA–informant dyads who completed a performance-based language assessment and three measures related to different aspects of activities and participation. Outcome variables were PWA–informant difference scores in the activities and participation measures. Results: PWA ratings of activities and participation were not statistically significantly associated with performance-based language severity. Hierarchical regression models with both language impairment and informant-reported scores as predictor variables explained 53%–71% of the variance in PWA–informant difference scores (all p < .05). In particular, mild communication challenges were associated with the PWA reporting significantly worse participation than the informant perceived. In contrast, more severe communication challenges were associated with the PWA reporting significantly better participation than the informant perceived. Discussion: These findings highlight the importance of measuring participation by PROM. The PWA's experience of participation is not related to their level of language impairment and is predictably different from their care partners' perspective. As others have also reported, “mild” aphasia is not so mild to the PWA. Similarly, “severe” may not be so severe to the PWA. Further research is needed to connect these findings with counseling and caregiver education. Research on response processes (e.g., response shift) is also warranted.

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Psychosocial care of people with aphasia: Practices of speech-language pathologists in South Africa

Cited by 5 publications

References 31 publications

Experiences of acquired brain injury one-month post-discharge from acute hospitalisation

Experiences of acquired brain injury one-month post-discharge from acute hospitalisation

Perspectives of U.S. speech-language pathologists on supporting the psychosocial health of individuals with aphasia

Poststroke Communication Ability Predicts Patient–Informant Discrepancies in Reported Activities and Participation

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