Psychosocial Aspects of Mothers of Children With Strabismus

Akay, Aynur Pekcanlar; Çakaloz, Burcu; Berk, Ayşe Tülin; Pasa, E.

doi:10.1016/j.jaapos.2005.01.008

Cited by 30 publications

(20 citation statements)

References 20 publications

(24 reference statements)

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“…In addition, most parents expressed worry about treatment and a number of other worries and negative emotions. There are few data on the effects of a child’s strabismus on the parents themselves, but Akay and colleagues 21 reported that mothers of strabismic children were more likely to be depressed than mothers in a control group, which may be consistent with our finding of a high proportion of parents expressing worry and negative emotions.…”

Section: Discussionsupporting

confidence: 88%

Childhood esotropia: child and parent concerns

Liebermann

Castañeda

Hatt

et al. 2016

Journal of American Association for Pediatric Ophthalmology and

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Purpose To identify specific health-related quality of life (HRQOL) concerns affecting children with esotropia as expressed by children or one of their parents (proxy) and concerns affecting the parents themselves. Methods Sixty children with esotropia (0–17 years of age) and 1 parent for each child were prospectively enrolled. Individual semistructured interviews were conducted with children aged 5–17 years (n = 40) and 1 parent each for child ages 0–17 years. Transcripts of recorded interviews were evaluated using NVivo software. Specific concerns were identified from both child and parent interviews and coded. From these specific codes, broad themes were identified. Frequency of each theme was calculated, along with the frequency of specific codes within each theme. Results Regarding the child’s experience 6 broad themes were identified: visual function (mentioned by 32 of 40 children (80%) and by 50 of 60 parents (proxy assessment of child, 83%), treatment (78% and 85%), emotions (65% and 67%), social (58% and 68%), physical (58% and 32%), and worry (45% and 7%). Regarding the parents’ own experience, 5 broad themes were identified: treatment (59 of 60 parents, 98%), worry (97%), emotions (82%), compensation for condition (80%), and affects family (23%). Conclusions A wide range of concerns were identified from interviews of children with esotropia and their parents. Concerns reflect the impact of esotropia in physical, emotional, and social domains, and specific concerns will be used for the development of questionnaires to quantify the effects of esotropia on children’s and parents’ quality of life.

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Section: Discussionsupporting

confidence: 88%

Childhood esotropia: child and parent concerns

Liebermann

Castañeda

Hatt

et al. 2016

Journal of American Association for Pediatric Ophthalmology and

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“…A study done among primary school children in Ilorin , Nigeria recorded a prevalence of 0.14% 3 . Strabismus may have an adverse effect on family relationships 4 . In addition, delayed development (e.g., reaching milestones such as first walking and using single words) and difficulty with tasks involving visual perception have been found in young children with strabismus 5,6 .…”

Section: Introductionmentioning

confidence: 99%

Pattern of squint presentations in children in a tertiary institution in Western Nigeria

Bodunde¹,

Onabolu²,

Fakolujo³

2014

IOSRJDMS

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“…[3233] These children can appreciate an abnormality in their appearance and if they suffer from any handicap or cosmetic deformity at this age, multiple psychosocial and emotional changes may affect them negatively. [34] Hence we believe that the right age for intervention to correct the strabismus should be before four years of age. Also, by this age a child starts interacting with other children of the same age and has to work under peer pressures.…”

Section: Discussionmentioning

confidence: 99%

Comparison of psychosocial and emotional consequences of childhood strabismus on the families from rural and urban India

Kothari

Balankhe

Gawade

et al. 2009

Indian J Ophthalmol

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Purpose:To compare the psychosocial consequences of horizontal comitant strabismus in children between the families of urban and rural India.Materials and Methods:In this cohort study, an eight-question quality-of-life instrument was administered by trained staff to the guardians of strabismic children from rural and urban areas by a live interview.Results:This study included 93 strabismic-children aged 4-16 years of which 52 were females. Forty-one had esodeviation and 52 had exodeviation. Seventy per cent parents were extremely distressed due to squint, 65% were extremely distressed due to people's remarks, 65% were extremely worried, 55% children were extremely distressed due to people's remarks, 57% children were severely ostracized, 38% had severe difficulty in communication and 50% had difficulty to cope; 64% parents were not advised a corrective surgery. The difference between families from rural and urban areas, or whether a male child was affected or a female child or for an esodeviation or an exodeviation was statistically not significant. The questionnaire had a good internal consistency (Cronbach's Alpha = 0.71).Conclusions:There was a significant negative psychosocial and emotional impact of childhood strabismus that was not affected by the rural or urban location of the family or the gender of the strabismic child or type of the deviation. The quality-of-life instrument can be used as part of the clinical examination for strabismic children.

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Psychosocial Aspects of Mothers of Children With Strabismus

Cited by 30 publications

References 20 publications

Childhood esotropia: child and parent concerns

Childhood esotropia: child and parent concerns

Pattern of squint presentations in children in a tertiary institution in Western Nigeria

Comparison of psychosocial and emotional consequences of childhood strabismus on the families from rural and urban India

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