Psychosocial and spiritual problems of terminally ill patients in Kerala, India

Elsner, Frank; Schmidt, Jan Peter; Rajagopal, M. R.; Radbruch, Lukas; Pestinger, Martina

doi:10.2217/fon.12.97

Cited by 16 publications

(90 citation statements)

References 9 publications

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“…Four studies in this review reported on socioeconomic factors in Indian palliative care settings (Elsner et al. ; Kandasamy et al. ; Khan Joad et al.…”

Section: Resultsmentioning

confidence: 99%

“…These explored the physical, psychosocial and spiritual needs of patients in their last days of life (Elsner et al. ; Muthumana et al. ; Simha et al.…”

Section: Resultsmentioning

confidence: 99%

“…The age distribution of samples in the included studies ranged from 18 to 88 years (Elsner et al. ; Kandasamy et al. ; Simha et al.…”

Section: Resultsmentioning

confidence: 99%

“…Two studies (Elsner et al. ; Khan Joad et al. ) reported financial concerns among the palliative and terminally ill population and their family carers.…”

Section: Resultsmentioning

confidence: 99%

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Public, patient and carers’ views on palliative and end‐of‐life care in India

Venkatasalu

Jagadeesh

Elavally

et al. 2017

International Nursing Review

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Nurses can be central in gathering the contextual evidence that advocate users' perspectives to inform further studies and national palliative care policies in India. Emerging policies in nursing education need to focus on integrating family-centred palliative and end-of-life care within curricula, whereas nursing practice may promote nurse-led community models to address the patchy palliative and end-of-life service provision in India.

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“…Four studies in this review reported on socioeconomic factors in Indian palliative care settings (Elsner et al. ; Kandasamy et al. ; Khan Joad et al.…”

Section: Resultsmentioning

confidence: 99%

“…These explored the physical, psychosocial and spiritual needs of patients in their last days of life (Elsner et al. ; Muthumana et al. ; Simha et al.…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Public, patient and carers’ views on palliative and end‐of‐life care in India

Venkatasalu

Jagadeesh

Elavally

et al. 2017

International Nursing Review

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show abstract

“…Indian philosophical and religious concepts often appear in interviews with palliative care patients and palliative care professionals (Elsner, Schmidt, Rajagopal, Radbruch, & Pestinger, 2012; Manghrani & Kapadia, 2006; Simha, Noble, & Chaturvedi, 2013). Considering the profound relationship between Indian spirituality and Indian philosophy, exploring the philosophical foundations of aspects of Indian thought and worldview that impact the understanding of spirituality at the end of life becomes crucial.…”

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confidence: 99%

Indian philosophical foundations of spirituality at the end of life

Inbadas

2017

Mortality

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Growing understanding of spirituality at the end of life demands more theoretical research on the subject. Empirical studies have highlighted the need for exploring philosophical and cultural concepts to facilitate a fuller understanding of spirituality at the end of life. This paper explores Indian philosophy to inform the conceptualisation of spirituality at the end of life in the Indian context. Three key themes from discourses on spirituality at the end of life have been analysed: the concept of the human person, the purpose of life and the meaning of death. The human person is from and of the Divine, eternal and is capable of cognition and experience. The purpose of human life is to unite with the ultimate Reality, the Divine, by living life righteously according to prescribed ways and by achieving detachment from the illusion of the world. Death is part of life and not that which ends it. The moment of death is an opportunity for the ultimate transformation, Moksha. Analysing these philosophical foundations can provide the contextual frame for understanding the spiritual needs of palliative care patients and their families and the possibility of developing culturally relevant approaches to providing spiritual care at the end of life.

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The Supportive Care Needs of Cancer Patients: a Systematic Review

Webb¹,

Murray

Younger

et al. 2021

J Canc Educ

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Cancer, and the complex nature of treatment, has a profound impact on lives of patients and their families. Subsequently, cancer patients have a wide range of needs. This study aims to identify and synthesise cancer patients’ views about areas where they need support throughout their care. A systematic search of the literature from PsycInfo, Embase and Medline databases was conducted, and a narrative. Synthesis of results was carried out using the Corbin & Strauss “3 lines of work” framework. For each line of work, a group of key common needs were identified. For illness-work, the key needs idenitified were; understanding their illness and treatment options, knowing what to expect, communication with healthcare professionals, and staying well. In regards to everyday work, patients wanted to maintain a sense of normalcy and look after their loved ones. For biographical work, patients commonly struggled with the emotion impact of illness and a lack of control over their lives. Spiritual, sexual and financial problems were less universal. For some types of support, demographic factors influenced the level of need reported. While all patients are unique, there are a clear set of issues that are common to a majority of cancer journeys. To improve care, these needs should be prioritised by healthcare practitioners.

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Psychosocial and spiritual problems of terminally ill patients in Kerala, India

Cited by 16 publications

References 9 publications

Public, patient and carers’ views on palliative and end‐of‐life care in India

Public, patient and carers’ views on palliative and end‐of‐life care in India

Indian philosophical foundations of spirituality at the end of life

The Supportive Care Needs of Cancer Patients: a Systematic Review

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