Psychosocial and Personal Financial Aspects of Transplantation

McCauley, Sonia; McCauley, Jerry

doi:10.1007/978-3-319-19617-6_27

Cited by 4 publications

(5 citation statements)

References 30 publications

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“…The improved outcomes observed amongst employed KTRs were attributed to a higher adherence to treatment, better health maintenance practices and higher levels of physical activity, along with a greater desire to participate in an active life [8]. A crucial psychological factor in this context appears to be self-efficacy [9], i.e., the KTR's belief in their own capacity to successfully deal with a challenging situation, besides other aspects such as effective post-transplant adaptation [10] and nursing social contacts [11]. Higher self-efficacy can positively influence mental health and QoL [12] in KTRs and was identified as a protective factor in regard to stress, anxiety, depression and somatization [13].…”

Section: Introductionmentioning

confidence: 99%

Employment Status and Associations with Workability, Quality of Life and Mental Health after Kidney Transplantation in Austria

Jordakieva

Grabovac

Steiner

et al. 2020

IJERPH

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Kidney transplantation (KTx) in end-stage renal disease is associated with a significant increase in quality of life (QoL) and self-perceived health, optimally leading to the maintenance of employment or return to work (RTW) in working-age patients. The aim of this study was to assess individual factors including the QoL and mental health of kidney transplant recipients (KTRs) associated with employment after transplantation. A cross-sectional study including working-age patients with a history of KTx after 2012 was conducted at two Austrian study centers (Vienna and Graz). Brief Symptom Inventory (BSI-18), World Health Organization Quality of Life (WHOQOL-Bref) and Workability Index (WAI) were assessed along with detailed questionnaires on employment status. Out of n = 139 KTRs (43.2 ± 9.07 years; 57.6% male), 72 (51.8%) were employed. Employed patients were more frequently in a partnership (p = 0.018) and had higher education levels (p = 0.01) and QoL scores (<0.001). Unemployed KTRs reported fatigue and mental health issues more often (p < 0.001), and had significantly higher anxiety, depression and somatization scores (BSI-18). In unadjusted logistical regression, workability score (WAS; odds ratio (OR) = 3.39; 95% confidence interval (CI) = 1.97–5.82; p < 0.001), partnership (OR = 5.47; 95% CI 1.43–20.91; p = 0.013) and no psychological counseling after KTx (OR = 0.06; 95% CI = 0.003–0.969; p = 0.048) were independently associated with employment. Self-assessed mental health, workability and QoL were significantly associated with employment status after KTx. Thus, in order to facilitate RTW after KTx in Austria, vocational rehabilitation and RTW programs addressing KTRs should focus on increasing social support and care for their mental health.

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Section: Introductionmentioning

confidence: 99%

Employment Status and Associations with Workability, Quality of Life and Mental Health after Kidney Transplantation in Austria

Jordakieva

Grabovac

Steiner

et al. 2020

IJERPH

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“…Therapists attended a four‐day training course to deliver an 8‐week manualised therapy (Ekers et al, 2011; McCauley, 2011) based on BA principles (Kanter et al, 2010) and methods refined during a previous study (Arnott et al, 2020). Our BA approach is aligned to the theoretical model by Martell et al (2001), which focuses on maximising behaviours that act as sources of positive reinforcement while minimising sources of negative reinforcement such as avoidance and procrastination.…”

Section: Methodsmentioning

confidence: 99%

Barriers and enablers for young people, parents and therapists undertaking behavioural activation for depression: A qualitative evaluation within a randomised controlled trial

et al. 2023

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Background: Adolescent depression is common, long-lasting and debilitating. Behavioural Activation (BA) is a brief, evidence-based therapy for depression in adults with promising outcomes for young people. Objectives: We sought to understand how young people, their parents and therapists experienced manualised BA for depression within Child and Adolescent Mental Health Services. Design: Participants in a randomised controlled trial aged 12 to17 with depression, their parents and therapists were invited to a semi-structured interview with a researcher to explore their experiences of receiving, supporting or delivering BA. Methods: Six young people, five parents and five therapists were interviewed. Verbatim interview transcripts were coded using thematic analysis. Results: Factors that may optimise delivery of BA were: boosting the young person's motivation, tailoring parental input to the young person's needs/wishes and developing a positive collaboration between the young person and therapist. Engagement with treatment may be hindered by a mismatch between BA delivery and young person's preferences, concurrent mental health comorbidities that are not addressed within a wider care package, lack of parental

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“…Data from recent studies in a similar patient demographic show percentage of time spent in target range using SAPT was 57 ± 11% for children and 54 ± 12% for adults [28,29]. Assuming a standard deviation of 12.5%, a total sample size of 68 (17 per group per strata) will provide 90% power at a two-sided significance level of 0.05 to detect a treatment effect if the absolute improvement in time in target glycaemic range of children and adults is at least 10% or more (effect size = 0.8).…”

Section: Sample Sizementioning

confidence: 99%

CREATE (Community deRivEd AutomaTEd insulin delivery) trial. Randomised parallel arm open label clinical trial comparing automated insulin delivery using a mobile controller (AnyDANA-loop) with an open-source algorithm with sensor augmented pump therapy in type 1 diabetes

Burnside

Lewis

Crocket

et al. 2020

J Diabetes Metab Disord

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Background Commercialised automated insulin delivery (AID) systems have demonstrated improved outcomes in type 1 diabetes (T1D), however, they have limited capacity for algorithm individualisation, and can be prohibitively expensive if an individual is without access to health insurance or health funding subsidy. Freely available open-source algorithms, which have the ability to individualise algorithm parameters paired with commercial insulin pumps, and continuous glucose monitoring make up the so-called "do it yourself" (DIY) approach to AID. Limited data on the open-source approach have shown promising results, but data from a large randomised control trial are lacking. Methods The CREATE (Community deRivEd AutomaTEd insulin delivery) trial is an open-labelled, randomised, parallel 24week, multi-site trial comparing sensor augmented pump therapy (SAPT) to our AnyDANA-loop. The three components of AnyDANA-loop are: 1) OpenAPS algorithm implemented in a smartphone (a version of AndroidAPS), 2) DANA-i™ insulin pump and, 3) Dexcom G6 R continuous glucose monitor (CGM). The primary outcome measure is the percentage of time in target sensor glucose range (3.9 -10mmol/L). Secondary outcomes include psycho-social factors and platform performance. Analysis of online collective learning, characteristic of the open-source approach, is planned. 100 participants with T1D aged 7 -70 years (age stratified into children/adolescents 7-15 years and adults 16-70 years), will be recruited from four sites in New Zealand. A 24-week continuation phase follows, to assess long-term safety.

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Psychosocial and Personal Financial Aspects of Transplantation

Cited by 4 publications

References 30 publications

Employment Status and Associations with Workability, Quality of Life and Mental Health after Kidney Transplantation in Austria

Employment Status and Associations with Workability, Quality of Life and Mental Health after Kidney Transplantation in Austria

Barriers and enablers for young people, parents and therapists undertaking behavioural activation for depression: A qualitative evaluation within a randomised controlled trial

CREATE (Community deRivEd AutomaTEd insulin delivery) trial. Randomised parallel arm open label clinical trial comparing automated insulin delivery using a mobile controller (AnyDANA-loop) with an open-source algorithm with sensor augmented pump therapy in type 1 diabetes

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