2020
DOI: 10.3390/diseases8020022
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Psychosocial and Financial Burden of Therapy in USA Patients with Pulmonary Arterial Hypertension

Abstract: Pulmonary arterial hypertension (PAH) is a devastating disease with significant morbidity and mortality. There are many psychosocial and financial implications of this disease; however, little is known how this affects the treatment of PAH patients. A questionnaire-based prospective cohort study was performed on 106 PAH patients from a Pulmonary Hypertension Center and the Pulmonary Hypertension Association national conference in 2018. The demographic, treatment, psychosocial, employment, financial impact on t… Show more

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Cited by 24 publications
(29 citation statements)
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“…Descriptive results of survey data in a single-center cohort and a more diverse group who volunteered at the Pulmonary Hypertension Association international conference provide some additional insight. 39 Notably, patients reported considerable physical and psychological burden with PAH and its related treatment, with remarkable financial challenges as well. 39 Not surprisingly, hospitalization for PAH is associated with poor outcome.…”
Section: Replace (Riociguat Replacing Pde-5imentioning
confidence: 99%
See 1 more Smart Citation
“…Descriptive results of survey data in a single-center cohort and a more diverse group who volunteered at the Pulmonary Hypertension Association international conference provide some additional insight. 39 Notably, patients reported considerable physical and psychological burden with PAH and its related treatment, with remarkable financial challenges as well. 39 Not surprisingly, hospitalization for PAH is associated with poor outcome.…”
Section: Replace (Riociguat Replacing Pde-5imentioning
confidence: 99%
“…39 Notably, patients reported considerable physical and psychological burden with PAH and its related treatment, with remarkable financial challenges as well. 39 Not surprisingly, hospitalization for PAH is associated with poor outcome. 20,40 For patients with recurrent hospitalization for rightsided heart failure due to PAH refractory to maximal medical therapy, palliative care may be the most appropriate option.…”
Section: Replace (Riociguat Replacing Pde-5imentioning
confidence: 99%
“…Pulmonary hypertension (PH) is defined as mean pulmonary artery pressure (PAP) at rest of >25 mmHg (1). It is divided into five major categories (2). Currently, one that is of particular clinical relevance is pulmonary arterial hypertension (PAH) (1).…”
Section: Introductionmentioning
confidence: 99%
“…Currently, one that is of particular clinical relevance is pulmonary arterial hypertension (PAH) (1). An internationally registered epidemiological data on PAH showed that the prevalence of PAH was 15 cases per million adults (2), making it a rare disease. However, even with PAH-specific drug treatment, there is yet no cure for it and survival for PAH patients remains poor (3).…”
Section: Introductionmentioning
confidence: 99%
See 1 more Smart Citation