Psychosocial Adjustment of Young Adult to Hemophilia: Living like a Normal Person

Yi, Myung Sun; Kim, Won Ok; Kang, Hyun Jung

doi:10.4040/jkan.2003.33.7.875

Cited by 2 publications

(1 citation statement)

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“…This study identified shame and stigma as major causal conditions. This finding is consistent with previous studies on various Korean patients with chronic disease who are stigmatized by society, such as epilepsy patients [37], patients with an ostomy [38], women with eating disorders [39], and adults with hemophilia [40]. Thus, it is necessary to promote public awareness to minimize stigma and to support people with disabilities on a social level.…”

Section: Discussionsupporting

confidence: 90%

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Lim

2021

Asian Nursing Research

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Section: Discussionsupporting

confidence: 90%

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Lim

2021

Asian Nursing Research

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Comparative Study on Parenting Stress, Guilt, Parenting Attitude, and Parenting Satisfaction Between Mothers with a Hemophilic Child and a Healthy Child

Kim

Kang

Cho

et al. 2008

Korean J Women Health Nurs

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혈우아동과 일반아동 어머니의 양육스트레스, 죄책감, 양육태도 및 부모역할만족도 비교1) 경희대학교 간호과학대학 교수, 2) 제주한라대학 전임강사 3) 경희대학교 간호과학대학 연구교수 투고일: 2008. 8. 20 1차심사완료일: 2008. 10. 10 2차심사완료일: 2008. 11. 3 최종심사완료일: 2008. 12. 4 • Address reprint requests to : Ji, Eun-Sun(Corresponding Author) College of Nursing Science, Kyung Hee University 1, Hoegi-dong, Dongdaemun-gu, Seoul 130-701 Tel: 82-16-693-1154 Abstract Purpose: Although Hemophilia is a relatively rare hereditary disease, and is treatable with blood products, the parenting stress and guilt of hemophilic patients and their mothers are always high. This study was done to assess the extent of parenting stress, guilt, parenting attitude and parenting satisfaction of mothers with a hemophilic child. Method: The participants in this study were 119 mothers with a hemophilic child who were registered members of the Korea Hemophilia Foundation, and 287 mothers with a healthy child. In order to measure the dimensions related to parenting stress, guilt, parenting attitude and parenting satisfaction, the Questionnaire on Parenting Stress Index, Maternal Guilt Scale, Parenting Attitude Scale & Parenting Satisfaction Scale were administered. We analysed the differences between mothers with a hemophilic child and a healthy child in the questionnaire scores using the SPSS program. Result: Parenting stress and guilt of mothers with a hemophilic child were higher than with a healthy child. Parenting attitude and parenting satisfaction of mothers with a hemophilic child were lower than with a healthy child. Conclusion:The results may help medical professionals understand mothers with a hemophilic child and give basic assistance to develop a nursing intervention by exploring possible ways to alleviate such parenting stress and guilt.

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Psychosocial Adjustment of Young Adult to Hemophilia: Living like a Normal Person

Cited by 2 publications

References 0 publications

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Comparative Study on Parenting Stress, Guilt, Parenting Attitude, and Parenting Satisfaction Between Mothers with a Hemophilic Child and a Healthy Child

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