Psychosocial Adjustment of Spousal Caregivers of Patients With Chronic Pain

Mercurio-Riley, Denise A.; Lee, Gloria K.; Chronister, Julie; Swigar, Elizabeth A.

doi:10.1177/2158244013512130

Cited by 5 publications

(4 citation statements)

References 93 publications

(137 reference statements)

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“…On the basis of our findings and previous research, 2 multiple mediator models including different cognitive factors such as perceived injustice and illness cognitions provide a more comprehensive account of the associations between caregiving demands and caregivers' psychological adjustment. That is, apart from appraisals of demands and other internal characteristics of caregivers, namely locus of control and sense of mastery, which were previously suggested in caregiving process models, 7,23,34 other broader appraisals (illness cognitions) should be taken into account to better explain the caregiving experience. The results of our study suggest that future interventions should focus on enhancing benign illness cognitions in partners as this may improve partners' well-being, especially when reducing the demands associated with caregiving is not possible.…”

Section: Discussionmentioning

confidence: 99%

The Mediating Role of Illness Cognitions in the Relationship Between Caregiving Demands and Caregivers’ Psychological Adjustment

Akbari

Mohammadi

Dehghani

et al. 2022

The Clinical Journal of Pain

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Objective: The present study investigated whether illness cognitions mediated the relationship between caregiving demands and positive and negative indicators of adjustment in partners of patients with chronic pain. Methods:The sample of this cross-sectional study consisted of 151 partners (mean age = 61.4 y, SD = 13.6 y, 57% male) of patients with chronic pain (eg, back pain). The study was conducted in the Pain Centre of the University Medical Centre Groningen, The Netherlands, during November 2014 to June 2015. Participants completed questionnaires that assessed caregiving demands, illness cognitions, perceived burden, distress, positive affect, and life satisfaction. Results:The results showed that among illness cognitions, acceptance of the illness mediated the association between caregiving demands and burden (b = 0.16, 95% confidence interval [CI]: 0.05-0.28) and positive affect (b = −0.21, CI: −0.41 to −0.06). Helplessness mediated the association between caregiving demands and burden (b = 0.46, CI: 0.26-0.69) and distress (b = 0.35, CI: 0.19-0.53). Perceived benefits did not mediate any of these associations. The findings indicate that partners who experience more demands tend to appraise the consequences of the patients' pain condition more negatively, which in turn is associated with their emotional adjustment.Discussion: The results suggest that illness cognitions play an important role in the psychological adjustment of partners. Enhancing acceptance of the illness and reducing feelings of helplessness could form the basis of interventions aiming at promoting psychological adjustment in partners, especially when it is difficult to reduce the demands.

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Section: Discussionmentioning

confidence: 99%

The Mediating Role of Illness Cognitions in the Relationship Between Caregiving Demands and Caregivers’ Psychological Adjustment

Akbari

Mohammadi

Dehghani

et al. 2022

The Clinical Journal of Pain

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“…The study utilized a framework that combined the Informal Caregiving Integrative Model (ICIM) [30], key determinants from the Inherent Tension of Caregiving [31], and additional mediators from the Risk and Resistance Model (RRM) of Adjustment [32] to guide the analysis of transcripts (refer to Fig. 1).…”

Section: Contextual Frameworkmentioning

confidence: 99%

Lived Caregiving Experience of Foreign Domestic Workers (FDWs) for those with Terminal Illness in Singapore: A Secondary Qualitative Data Analysis

Lee,

Liaw,

Lee

et al. 2024

Preprint

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Background Due to societal changes associated with evolving family structures in Singapore, the reliance on foreign domestic workers (FDWs) for elderly caregiving is increasing. While involving FDWs in caregiving has proven effective in moderating family caregivers' burden and benefiting patients' health outcomes, their caregiving experiences of FDWs are not always ideal. Existing studies on FDWs' caregiving experiences have mainly focused on elder care. However, palliative care, being more specialised and intense, poses unique challenges. Given high caregiver burden experienced in caring for non-cancer patients with terminal illnesses, this study aims to explore FDWs' experiences in caring for non-cancer patients at their end of lives in Singapore. Method A qualitative secondary analysis was conducted on 15 transcripts from a study related to a non-cancer palliative care program. The analysis used an adapted model combining the Informal Caregiving Integrative Model (ICIM), Inherent Tension of Caregiving Model, and Risk and Resistance Model (RRM) of Adjustment model. FDWs' experiences were categorized into five caregiving profiles based on perceived burden and benefits characterised by Pristavec. Results Based on caregiver experience profiling characteristics by Pristavec, one was classified under “intensive domestic helper”, while two others were classified as “relationship”. Nine had a “balanced” profile and three others were classified as “satisfied” FDWs. Common caregiver outcomes like psychological stress and physical fatigue were observed across different profiles. Each profile highlighted unique caregiving experiences, emphasizing the significance of individual coping strategies, clear personal boundaries, and positive mindsets in mitigating the impact of caregiving demands on FDWs' wellbeing. Conclusion This study provides valuable insights into FDWs' caregiving experiences of non-cancer patients with terminal illnesses. The findings suggest the need for tailored services or interventions to enhance FDWs' coping abilities. Future research could focus on developing caregiver support programs specifically designed for FDWs caring for individuals with terminal illnesses.

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“…Frequently, caregivers of cancer patients are at risk of stress adjustment problems, including physical, psychological, social health impairments and disruptions in family dynamics. 38 However, studies retrieved were based on the evaluation of general domains, without considering specific areas such as the relationship between patients and caregivers and neglecting the synergic interrelations between all the domains and sub-domains of QoL involved. [39][40][41] Only a few of them revealed the principal themes and sub-themes related to caregivers' QoL 40 and the protective factors that may reverse the experience of CP.…”

Section: Caregivers' Perspectivementioning

confidence: 99%

A Comprehensive Analysis of the Cancer Chronic Pain Experience: A Narrative Review

Filipponi¹,

Masiero²,

Pizzoli³

et al. 2022

CMAR

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Cancer-related chronic pain (CP) represents a critical clinical issue through the disease, severely compromising the quality of life (QoL) of patients and the family environment. The current review employed a narrative method to synthesize the main results about the impact of cancer-related CP on QoL, adopting a multidimensional and threefold vision: patients, caregivers, and patient–caregiver perspective. Evidence emphasizes the importance of considering a bidirectional perspective (patient–caregiver) to understand better the pain experience throughout the cancer continuum and its consequences on QoL of patients and caregivers. Moreover, a holistic and multidimensional approach to cancer-related CP and its impact on QoL of patients and caregivers is still needed, in which the interconnection between physical, psychological, and social factors should be analyzed. Theoretical and methodological issues for orienting future social and family research initiatives were discussed.

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Psychosocial Adjustment of Spousal Caregivers of Patients With Chronic Pain

Cited by 5 publications

References 93 publications

The Mediating Role of Illness Cognitions in the Relationship Between Caregiving Demands and Caregivers’ Psychological Adjustment

The Mediating Role of Illness Cognitions in the Relationship Between Caregiving Demands and Caregivers’ Psychological Adjustment

Lived Caregiving Experience of Foreign Domestic Workers (FDWs) for those with Terminal Illness in Singapore: A Secondary Qualitative Data Analysis

A Comprehensive Analysis of the Cancer Chronic Pain Experience: A Narrative Review

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