Psychosocial Adjustment of Children with a Terminally Ill Parent

Siegel, Karolynn; Mesagno, Frances Palamara; Karus, Daniel; Christ, Grace; Banks, Karel; Moynihan, Rosemary T.

doi:10.1097/00004583-199203000-00022

Cited by 152 publications

(79 citation statements)

References 18 publications

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“…In a study of adolescents who lost a parent to HIV/AIDS, emotional distress and contact with the juvenile justice system peaked in the year before the death and then steadily declined (Rotheram-Borus et al 2005). Results were similar for children who lost a parent to cancer (Siegel et al 1992, 1996). …”

Section: Introductionmentioning

confidence: 83%

The Impact of Parental Death on Child Well-being: Evidence From the Indian Ocean Tsunami

Gail

Frankenberg

Suriastini³

et al. 2014

Demography

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Identifying the impact of parental death on the well-being of children is complicated because parental death is likely to be correlated with other, unobserved factors that affect child well-being. Population-representative longitudinal data collected in Aceh, Indonesia, before and after the December 2004 Indian Ocean tsunami are used to identify the impact of parental deaths on the well-being of children aged 9-17 at the time of the tsunami. Exploiting the unanticipated nature of parental death resulting from the tsunami in combination with measuring well-being of the same children before and after the tsunami, models that include child fixed effects are estimated to isolate the causal effect of parental death. Comparisons are drawn between children who lost one or both parents and children whose parents survived. Shorter-term impacts on school attendance and time allocation one year after the tsunami are examined, as well as longer-term impacts on education trajectories and marriage. Shorter-and longer-term impacts are not the same. Five years after the tsunami, there are substantial deleterious impacts of the tsunami on older boys and girls, whereas the effects on younger children are more muted.

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Section: Introductionmentioning

confidence: 83%

The Impact of Parental Death on Child Well-being: Evidence From the Indian Ocean Tsunami

Gail

Frankenberg

Suriastini³

et al. 2014

Demography

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“…It is known that parental mental and physical health conditions generally put offspring at risk for poorer outcomes. For example, children of mothers with depression are more likely to experience depression and other mental health problems compared to children of mothers without depression [22,31,54,71], and children of parents with cancer have higher levels of anxiety, depression, and behaviour problems than children of parents without cancer [74]. Fewer studies have been conducted to examine the effects of parental chronic pain on their offspring.…”

mentioning

confidence: 99%

Offspring of parents with chronic pain

Higgins

Birnie

Chambers

et al. 2015

Pain

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Offspring of parents with chronic pain may be at risk for poorer outcomes than offspring of healthy parents. The objective of this research was to provide a comprehensive mixed-methods, systematic synthesis of all available research on outcomes in offspring of parents with chronic pain. A systematic search was conducted for published articles in English examining pain, health, psychological, or family outcomes in offspring of parents with chronic pain. Fifty-nine eligible articles were identified (31 population-based, 25 clinical, 3 qualitative), including offspring from birth to adulthood and parents with varying chronic pain diagnoses (e.g., mixed pain samples, arthritis). Meta-analysis was used to synthesize the results from population-based and clinical studies, while meta-ethnography was used to synthesize the results of qualitative studies. Increased pain complaints were found in offspring of mothers and of fathers with chronic pain, and when both parents had chronic pain. Newborns of mothers with chronic pain were more likely to have adverse birth outcomes, including low birthweight, preterm delivery, caesarean section, intensive care admission, and mortality. Offspring of parents with chronic pain had greater externalizing and internalizing problems and poorer social competence and family outcomes. No significant differences were found on teacher-reported externalizing problems. The meta-ethnography identified six key concepts (developing independence, developing compassion, learning about health and coping, missing out, emotional health, and struggles communicating with parents). Across study designs, offspring of parents with chronic pain had poorer outcomes than other offspring, although the meta-ethnography noted some constructive impact of having a parent with chronic pain.

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“…These discrepancies may have occurred as a result of studies varying in severity of mothers’ illness. Perhaps the majority of mothers with breast cancer in Vannatta et al (2008) and Hoke (2001) had less severe symptoms compared to the parents in the Siegel et al (1992) study with terminal cancer. Consequently, children exposed to greater parental illness severity may be at greater risk for poorer psychosocial outcomes.…”

mentioning

confidence: 81%

“…In a review of 52 studies of the impact of parental cancer on children, Visser, Huizinga, van der Graaf, Hoekstra, and Hoekstra-Weebers (2004) reported that quantitative studies did not show any differences in social competence between children of parents with cancer and a norm group, while qualitative studies indicated school age children needed social support and that adolescents reported they had more people to rely on than did younger children. Among school age children with a mother or father with terminal cancer, Siegel et al, (1992) found the children had lower social competence than normal controls. However, in a study of maternal breast cancer on school-age children and a comparison group of classmates, Vannatta, Grollman, Noll, and Gerhardt (2008) found that children of mothers with breast cancer did not experience diminished numbers of friendships relative to comparison peers; they were just as likely to be nominated by classmates as a friend.…”

mentioning

confidence: 91%

Effects of maternal HIV on children's psychosocial adjustment with peers and with their mother

Murphy

Marelich

Lanza

et al. 2012

Vulnerable Children and Youth Studies

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A longitudinal assessment was undertaken of young adolescents’ psychosocial outcomes affected by maternal HIV/AIDS, focusing on both parent-child psychosocial ties and peer relationships. Data were taken from the Parents and Children Coping Together study (PACT), a 15-year study assessing mothers with HIV/AIDS and their well children every 6 months. Families (N = 118) who participated in PACT II and PACT III are included in the current analyses, who were assessed every 6 months for 36 months in PACT II, and every 6 months for 18 months in PACT III (providing 11 time points of data across 8 years). Growth curve modeling was applied to assess the associations of maternal health on adolescent psychosocial outcomes. In terms of their relationship with their mother living with HIV (MLH), adolescent psychosocial functioning was negatively impacted by maternal illness, specifically viral load count and vitality levels, while several indicators of increased maternal illness (including viral load, vitality, illness symptoms, health-related anxiety) predicted less attachment with peers. In addition, MLH increased illness was associated with more adolescent autonomy.

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Psychosocial Adjustment of Children with a Terminally Ill Parent

Cited by 152 publications

References 18 publications

The Impact of Parental Death on Child Well-being: Evidence From the Indian Ocean Tsunami

The Impact of Parental Death on Child Well-being: Evidence From the Indian Ocean Tsunami

Offspring of parents with chronic pain

Effects of maternal HIV on children's psychosocial adjustment with peers and with their mother

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