Psychosexual development management of bladder exstrophy epispadias in complex patients

Grazia, Massimo Di; Pellizzoni, Sandra; Tonegatti, Luca; Rigamonti, Waifro

doi:10.1016/j.jpurol.2016.05.020

Cited by 4 publications

(3 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Sixteen articles fulfilled inclusion criteria 14,15,20,[28][29][30][31][32][33][34][35][36][37][38][39][40] of which eight publications used a validated generic HRQOL instrument. 28,[30][31][32]36,[38][39][40] Five studies used instruments measuring symptom-specific HRQOL, or more precisely the impact of incontinence on HRQOL.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

et al. 2020

View full text Add to dashboard Cite

The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015–2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.

show abstract

Section: Resultsmentioning

confidence: 99%

“…This targeted program improved the psychosexual condition and self-esteem of the 13 participants, which may positively contribute to the development of good HRQOL in adulthood. 33…”

Section: Health-related Quality Of Life and Relationship To Sexual Famentioning

confidence: 99%

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

et al. 2020

View full text Add to dashboard Cite

show abstract

“…The major long-term consequences of the condition (and potentially its treatment) include incontinence (and impaired urinary drainage), issues with sexual and reproductive function, psychosexual and psychosocial development, as well as potential impacts on renal function. 2 This review aims to focus on outcomes relating to patients' expectations for the future, body image and sexual function.…”

Section: Introductionmentioning

confidence: 99%

Let’s talk about sex: A review of expectations, body image and sexual function in exstrophy

Tregunna

Wood

2020

Journal of Clinical Urology

View full text Add to dashboard Cite

Background: The bladder exstrophy epispadias complex (BEEC) is a rare disorder characterised by a number of genito-urinary abnormalities. The condition and subsequent treatment may result in lasting effects on continence, renal function and fertility. There are equally important psychosocial and psychosexual effects as part of overall long-term quality of life. The literature consists largely of small studies with variable methodology; this study aims to consolidate these data. Methods: This study reviews the available literature sourced from the Medline database using the keywords listed below. Results: Patients appear to be high achievers with good overall health-related quality of life. Most form close personal friendships although express anxiety related to revelation of their condition. Data suggest the majority of patients are able to engage in and be satisfied with sexual intercourse. Fertility may be adversely affected, but this can usually be overcome with assisted reproductive techniques and specialist input during pregnancy and delivery. Conclusions: Psychosocial and psychosexual outcomes in patients with BEEC may be excellent. Therefore careful transition and psychological support combined with long-term follow-up is important to allow these patients to maximise their quality of life. Level of evidence: Not applicable.

show abstract

Qualitative questionnaire on the psychosocial wellbeing of mothers of children with BEEC

Grazia

Pellizzoni

Tonegatti

et al. 2017

Journal of Pediatric Urology

View full text Add to dashboard Cite

Psychosexual development management of bladder exstrophy epispadias in complex patients

Abstract: This intervention methodology may be considered a first attempt at improving the self-esteem of adolescents with BEEC, by contrasting forms of psychological difficulties in order to improve the quality of life of these young people.

Cited by 4 publications

References 16 publications

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

Let’s talk about sex: A review of expectations, body image and sexual function in exstrophy

Qualitative questionnaire on the psychosocial wellbeing of mothers of children with BEEC

Contact Info

Product

Resources

About