Psychometric validation and cross-cultural adaptation of the Integrated Palliative care Outcome Scale in Polish (IPOS-Pol)

Szeliga, Marta; Kotlińska-Lemieszek, Aleksandra; Jagielski, Paweł; Jaroszewski, Wojciech; Kuźmicz, Ilona; Stachnik, Katarzyna; Feit, J.; Deskur-Śmielecka, Ewa; Grądalski, Tomasz

doi:10.1017/s1478951521001176

Cited by 2 publications

(1 citation statement)

References 20 publications

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“…While the discussions regarding the most suitable outcome measurement instrument are ongoing, there has been a noticeable increase in psychometric validation studies focusing on specific tools like the ICECAP-SCM. 48,49,118,119 This growing body of research provides valuable information about the suitability and validity of such tools. Both in terms of challenges and potential solutions, the list of recommendations is not exhaustive.…”

Section: Implications For Research and Policymentioning

confidence: 99%

Methodological challenges and potential solutions for economic evaluations of palliative and end-of-life care: A systematic review

Fischer,

Bednarz,

Simon

2023

Palliat Med

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Background: Given the increasing demand for palliative and end-of-life care, along with the introduction of costly new treatments, there is a pressing need for robust evidence on value. However, comprehensive guidance is missing on methods for conducting economic evaluations in this field. Aim: To identify and summarise existing information on methodological challenges and potential solutions/recommendations for economic evaluations of palliative and end-of-life care. Design: We conducted a systematic review of publications on methodological considerations for economic evaluations of adult palliative and end-of-life care as per our PROSPERO protocol CRD42020148160. Following initial searches, we conducted a two-stage screening process and quality appraisal. Information was thematically synthesised, coded, categorised into common themes and aligned with the items specified in the Consolidated Health Economic Evaluation Reporting Standards statement. Data sources: The databases Medline, Embase, HTADatabase, NHSEED and grey literature were searched between 1 January 1999 and 5 June 2023. Results: Out of the initial 6502 studies, 81 were deemed eligible. Identified challenges could be grouped into nine themes: ambiguous and inaccurate patient identification, restricted generalisability due to poor geographic transferability of evidence, narrow costing perspective applied, difficulties defining comparators, consequences of applied time horizon, ambiguity in the selection of outcomes, challenged outcome measurement, non-standardised measurement and valuation of costs as well as challenges regarding a reliable preference-based outcome valuation. Conclusion: Our review offers a comprehensive context-specific overview of methodological considerations for economic evaluations of palliative and end-of-life care. It also identifies the main knowledge gaps to help prioritise future methodological research specifically for this field.

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Section: Implications For Research and Policymentioning

confidence: 99%

Methodological challenges and potential solutions for economic evaluations of palliative and end-of-life care: A systematic review

Fischer,

Bednarz,

Simon

2023

Palliat Med

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Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients

Neo

Tan

Sim

et al. 2022

Palliative Medicine Reports

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Background: The Integrated Palliative Care Outcome Scale (IPOS) was developed in the United Kingdom for health assessment in advanced illness. Objectives: To evaluate the validity and reliability of a culturally adapted IPOS (both patient and staff versions) for heart failure (HF). Design/Setting: We recruited HF patients and staff from a tertiary hospital in Singapore. We collected patient IPOS, New York Heart Association (NYHA) status, Edmonton Symptom Assessment System (ESAS) and Minnesota Living with Heart Failure (MLHF) scores at baseline, and patient IPOS at follow-up. Each baseline patient IPOS was matched with a staff IPOS. Measurements: Pearson correlation coefficient ( r ) between ESAS, MLHF, and patient IPOS was calculated to assess construct validity. The two-sample T -test assessed difference in patient and staff IPOS scores across NYHA status and care settings for known-group validity. Internal consistency of patient and staff IPOS was assessed using Cronbach's alpha ( α ). Intraclass correlation coefficient (ICC) was used to assess test-retest reliability of patient IPOS and inter-rater reliability between patient and staff IPOS. Results: Ninety-one patients and 12 staff participated. There was strong convergent validity of total patient IPOS with MLHF ( r = 0.78) and ESAS ( r = 0.81). There were statistically significant differences in total IPOS across care settings (patient-IPOS: 8.05, staff-IPOS 13.61) and NYHA (patient-IPOS: 7.52, staff-IPOS 12.71). There was high internal consistency of total patient ( α = 0.83) and staff IPOS ( α = 0.88) and high test-retest reliability of patient IPOS (ICC 0.81). Inter-rater reliability (ICC) ranged between 0.82 and 0.91. Conclusion: The IPOS was valid and reliable for HF patients in Singapore.

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Psychometric validation and cross-cultural adaptation of the Integrated Palliative care Outcome Scale in Polish (IPOS-Pol)

Cited by 2 publications

References 20 publications

Methodological challenges and potential solutions for economic evaluations of palliative and end-of-life care: A systematic review

Methodological challenges and potential solutions for economic evaluations of palliative and end-of-life care: A systematic review

Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients

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