Psychometric properties of the suffering assessment questionnaire in adults with chronic diseases or life‐threatening illness

Encarnação, Paula; Oliveira, Clara Costa; Martins, Teresa

doi:10.1111/scs.12569

Cited by 11 publications

(7 citation statements)

References 18 publications

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“…Albanian (Roth & Ekblad, 2006), Croatian (Singer & Brähler, 2007), Brazilian (Bonanato et al, 2009), Hungarian (Biro et al, 2010), Korean (Han et al, 2007), Lingala (Bantu language spoken in parts of Africa) (Pham et al, 2010), Persian, Swahili (Rohani et al, 2010) as well as local languages in Africa Afar, Bilein, Hidareb, Kunama people, Nara, Saho, Tigre, and Tigrinya (Almedom et al, 2007;Getnet & Alem, 2019). An update per 2019 at least additional languages can be found: Portuguese (Encarnação et al, 2018) and Slovenia (Stern et al, 2019).…”

Section: The Validity and Reliability Of The Sense Of Coherencementioning

confidence: 99%

“…More recent research shows three additional countries: Austria (Mautner et al, 2014), Estonia (Höjdahl et al, 2015), and Malaysia (Rostami et al, 2014). An update per 2019 shows further expansion: Ethiopia (Getnet & Alem, 2019), Ireland (Groarke et al, 2018), Portugal (Encarnação et al, 2018), and Slovenia (Stern et al, 2019).…”

Section: The Validity and Reliability Of The Sense Of Coherencementioning

confidence: 99%

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The Sense of Coherence: Measurement Issues

Eriksson

Contu

2022

The Handbook of Salutogenesis

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In this chapter, measurement issues are addressed concerning Aaron Antonovsky’s original sense of coherence (SOC) questionnaires of 29 items and of 13 items, as well as several modified translations applicable to the individual, the family, the organization, and the community levels. Validity (face, construct, consensual, criterion, predictive) and reliability issues (test–retest, internal consistency) of the scales are discussed. Criticism of the original scales is deliberated.

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Section: The Validity and Reliability Of The Sense Of Coherencementioning

confidence: 99%

Section: The Validity and Reliability Of The Sense Of Coherencementioning

confidence: 99%

The Sense of Coherence: Measurement Issues

Eriksson

Contu

2022

The Handbook of Salutogenesis

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“…A recent systematic review of measures specifically designed to assess the experience of suffering identified four instruments judged to be have adequate psychometric scale development (Gutiérrez-Sánchez et al, 2020): the Suffering Pictogram (Beng et al, 2017), the Mini-Suffering State Examination (MSSE) (Aminoff et al, 2004, the Pictorial Representation of Illness and Self-Measure (PRISM) (Büchi et al, 2002), and the Suffering Assessment Questionnaire in Adults with Chronic Diseases or Life-Threatening Illness (SAQ) (Encarnação et al, 2018). The reviewers concluded that, of these four, the Suffering Pictogram (Beng et al, 2017) was most the methodologically sound and most useful for application in palliative care.…”

Section: Resultsmentioning

confidence: 99%

“…Because of ease of administration, PRISM was identified in a 2015 systematic review (Best et al, 2015) as the most promising tool for measuring the burden of suffering caused by illness. The SAQ (Encarnação et al, 2018) Assesses four dimensions of suffering: intrapersonal and interpersonal suffering, awareness of suffering, and spiritual suffering 12-Item scale. Each item is rated on a 5-point scale ("totally agree" to "totally disagree").…”

Section: Measuring Sufferingmentioning

confidence: 99%

Addressing Suffering in Patients With Psychiatric Disorders

Yager

2021

J Nerv Ment Dis

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Background: Patients with psychiatric disorders (as well as general medical conditions) often describe their lives in terms of suffering. Although suffering is honored as a central focus of physicians' concerns, it is not even indexed in the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. Generally connoting severe, prolonged distress, suffering can be distinguished from pain, depression, and anxiety. The aims of this article are to consider whether attending to suffering per se in psychiatric patients merits attention independent of other commonly assessed psychiatric symptoms such as anxiety, depression, and conventional distress, and how targeting suffering per se might add value to psychiatric patient care.Methods: Sources for this article were obtained via a selective literature search in PubMed using the terms "suffering" in the title and the terms "psychiatric disorder," "mental illness," "assessment," "measurement," "scale," "existential suffering," and "unbearable suffering." Articles of interest were followed up using a snowball technique to examine "similar articles" and "cited by" titles to find additional pertinent articles.Results: Definitions of suffering in the medical literature stress its subjectivity, particularity, complexity, and connection to a wide variety of noxious sensations, as well as real and anticipated deficits, losses, and thwarted motivations. These can affect the entire spectrum of universal human needs, from basic biological issues through intrapsychic, interpersonal, and social issues, encompassing existential concerns of meaning, purpose, and transcendence. Based on these factors, a definition of suffering in patients with psychiatric disorders is proposed. Although efforts to measure suffering have been limited and numerous gaps in the literature are evident, several scales may offer suitable bases for the study of suffering in patients with psychiatric disorders.Conclusions and Implications: Ascertaining sources of suffering may require new types of inquiry and additional time. Well-described, evidence-informed strategies and time-honored psychotherapy techniques are available for addressing the numerous concerns that contribute to suffering. Patients with psychiatric disorders whose distinct, multidimensional sources of suffering are identified, acknowledged, and addressed may experience better treatment quality, greater treatment satisfaction, and possibly better outcomes than those whose clinicians' attention is limited to conventional psychiatric signs and symptoms.

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“…"If these fears remain unchecked, they can lead these students to unnecessary suffering" (Wright 2020, p. 188). When exploring the concept of suffering, literature is consistent in relating sadness, fear, anguish, distress, loss; pain and threat to the individuals' integrity as a manifestation of suffering (Cassell 2004;Delio 2020;Encarnação, Oliveira, & Martins 2018;Wright 2020). Fear can usually be experienced as an unpleasant emotion triggered by a constraining belief.…”

Section: Introductionmentioning

confidence: 99%

Promoting spiritual paths in graduate nursing students in time of COVID-19

Encarnação

Leite

Magalhães

et al. 2021

RSD

Self Cite

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The COVID-19 pandemic caused alterations within all aspects of human life, which enabled students to uncover fears. These negative emotions, even for training nursing students, can become contagious within and between families, family members and friends, dominating and clouding their judgment. So, how do you manage fear? This study aims to describe the experience of five graduating nursing students and their respective teacher in rebuilding and promoting positive emotions (e.g. optimism, hope, courage) through a digital tool (a Blog) throughout the imposed quarantine time. A descriptive study, experience report type, analyse the authors lived experiences during the mandatory quarantine period that emerged due to COVID-19 virus, between March and May of 2020. Symbolic interactionism is used as a philosophical base that guided data collection and analysis. Through the report of their lived experiences, we encountered that the Blog empowered teacher and students to achieve their goals and find new meanings in their lives through three spiritual paths: compassion and kindness; self-awareness and courage. All participants agreed that this kind of digital tool should be used throughout the bachelor´s in nursing, which generates a more humanized way of teaching, allowing students to see beyond University walls.

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Psychometric properties of the suffering assessment questionnaire in adults with chronic diseases or life‐threatening illness

Abstract: The results of confirmatory analysis indicated a good model fit that suggested that the advocated theoretical model is plausible.

Cited by 11 publications

References 18 publications

The Sense of Coherence: Measurement Issues

The Sense of Coherence: Measurement Issues

Addressing Suffering in Patients With Psychiatric Disorders

Promoting spiritual paths in graduate nursing students in time of COVID-19

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