Psychometric properties of cancer survivors’ unmet needs survey

Campbell, H. Sharon; Sanson‐Fisher, Rob; Turner, Donna; Hayward, Lynda M.; Wang, X. Sunny; Taylor‐Brown, Jill

doi:10.1007/s00520-009-0806-0

Cited by 101 publications

(129 citation statements)

References 24 publications

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“…Most of the gp rss (96%) and fn rss (91%) who were interviewed or took part in focus groups also completed 16,17 . Both instruments are self-report questionnaires.…”

Section: Methodsmentioning

confidence: 99%

Prospective Evaluation of Unmet Needs of Rural and Aboriginal Cancer Survivors in Northern British Columbia

et al. 2014

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Background: The unmet needs of cancer survivors in rural, remote, and aboriginal communities are largely unexplored. We explored potential differences between rural survivors (rss) in 4 general population (gp) and 4 First Nations (fn) communities. Methods: We approached 4 gp and 4 fn rs communities to participate in a mixed-methods project. Participants completed the Hospital Anxiety and Depression Scale (hads) and the Survivor Unmet Needs Survey (suns) and provided demographic information. Each question on the suns can be scored from 0 to 4, with 0 representing “no unmet need” and 4 representing “very high unmet need.” A directed approach to content analysis of focus group and interview data was used to triangulate the hads and suns results. Results: We prospectively accrued 23 fn rss and 56 gp rss for this study. More fn rss had borderline or abnormal anxiety (5% vs. 21%, p = 0.02). Compared with gp rss, fn rss had higher unmet needs scores in all categories: Information (2.29 vs. 0.8, p < 0.001), Work and Financial (1.66 vs. 0.5, p < 0.001), Access and Continuity of Health Care (1.83 vs. 0.44, p < 0.001), Coping and Sharing (2.22 vs. 0.62, p < 0.001), and Emotional (2.12 vs. 0.63, p < 0.001). The qualitative findings provided examples and insight into the unmet needs experienced by rss. Conclusions: First Nations rss had significantly higher anxiety and unmet needs compared with their gp rs counterparts. In addition, different qualitative themes were identified in the groups. Our findings support the development of tailored approaches to survivorship for these populations.

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“…Most of the gp rss (96%) and fn rss (91%) who were interviewed or took part in focus groups also completed 16,17 . Both instruments are self-report questionnaires.…”

Section: Methodsmentioning

confidence: 99%

Prospective Evaluation of Unmet Needs of Rural and Aboriginal Cancer Survivors in Northern British Columbia

et al. 2014

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“…This has resulted in the development of specific measures to more broadly assess cancer patients' needs and unmet needs by directly measuring the gap between a person's experience of a service and the actual service required [22]. Some studies have attempted to use this needs-based research approach in various oncological conditions, such as BC, gynaecological, prostate, and colorectal cancers, to evaluate the problems and "needs" cancer survivors experience [23][24][25][26]. These studies were conducted in the acute care settings (hospital oncology clinics) and none address the extent of assistance/need experienced by the cancer survivors living in the community in Australian context.…”

Section: Introductionmentioning

confidence: 99%

Supportive Care Needs following Cancer Treatment: A Comparison of Breast and Brain Cancer in an Australian Cohort

Amatya

Khan

et al. 2014

ISRN Rehabilitation

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Objective. To assess and identify patient-reported supportive care needs following definitive treatment in persons with breast cancer (BC) and primary brain tumours (gliomas) (BT) in an Australian community cohort and to assess the commonalities and/or discrepancies of the reported needs in these oncological populations. Methods. A prospective cross-sectional survey of persons with BC ( = 85) and BT ( = 106) using questionnaires for supportive care needs, psychological morbidity, and quality of life. Results. BT participants were younger than BC patients (mean ages 51 and 57 years). The median time since diagnosis for both groups was over 2 years. The level of psychological morbidity, mainly depression, was high in both groups: BC (22%) and BT (20%). Participants in both groups reported at least one need ("met" or "unmet"). The BC patients reported higher numbers of "needs" and "unmet" needs compared with BT patients (mean 13.7 versus 11.6 needs; "unmet" needs mean 6.0 versus 4.1). The common "met" and "unmet" needs highlighted by both groups were comparable; the domain for most "met" needs included comprehensive cancer care, while "unmet" needs related to existential survivorship issues. Conclusion. Despite successful treatment many cancer survivors experience unmet supportive care needs in longer term. Understanding the impact of these beyond the acute phase is important as care shifts to community settings. More research in existential survivorship issues is needed.

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“…The interpretation of these themes intended, first, to describe and specify the needs of the target population and, second, to describe the Fillion et al (2011) N.B. : SUNS = Survivor Unmet Needs Survey (Campbell et al, 2011); FCRI = Fear of Cancer Recurrence Inventory (Simard & Savard, 2015); HeiQ = Health Education Impact Questionnaire (Osborne et al, 2007).…”

Section: Data Analysesmentioning

confidence: 99%

Development and validation of an individualized survivorship care plan (ISCP) for women with endometrial cancer during the transition of the end of active treatment to the cancer survivorship

Hébert

Fillion

2017

CONJ

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Psychometric properties of cancer survivors’ unmet needs survey

Abstract: This study is an important step toward evidence-based planning and management of problems which the growing survivor population requires assistance in managing.

Cited by 101 publications

References 24 publications

Prospective Evaluation of Unmet Needs of Rural and Aboriginal Cancer Survivors in Northern British Columbia

Prospective Evaluation of Unmet Needs of Rural and Aboriginal Cancer Survivors in Northern British Columbia

Supportive Care Needs following Cancer Treatment: A Comparison of Breast and Brain Cancer in an Australian Cohort

Development and validation of an individualized survivorship care plan (ISCP) for women with endometrial cancer during the transition of the end of active treatment to the cancer survivorship

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