Psychological well-being over time among informal caregivers caring for persons with dementia living at home

Lethin, Connie; Renom‐Guiteras, Anna; Zwakhalen, Sandra; Soto-Martín, María; Saks, Kai; Zabalegui, Adelaida; Challis, David; Nilsson, Christer; Karlsson, Staffan

doi:10.1080/13607863.2016.1211621

Cited by 53 publications

(46 citation statements)

References 41 publications

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“…38 Pior saúde do alvo de cuidados também foi associada com menor nível de felicidade do cuidador. 39 Com relação à associação entre aspectos psicológicos da qualidade de vida dos cuidadores e dependência em atividades da vida diária (AVD), Lethin et al 25 identificaram que os cuidadores com maior bem-estar psicológico cuidavam de idosos com mais comorbidades, menor comprometimento cognitivo e menor dependência em AVD. Lu et al 33 verificaram que a dependência do idoso em AVD também foi associada com a satisfação com a vida do cuidador.…”

Section: Condições De Saúde Do Alvo De Cuidadosunclassified

“…44 E os menores com maior felicidade. 25,26,43 A sobrecarga também foi negativamente associada com a dimensão psicológica da qualidade de vida. 37,38 Os estudos corroboram a importância de se avaliar e intervir na sobrecarga percebida.…”

Section: Sobrecarga Do Cuidadorunclassified

“…Lutomski et al 24 detectaram que pior autoavaliação de saúde foi negativamente associada à felicidade do cuidador e positivamente associada com o aumento da sobrecarga. No estudo de Zarit et al, 44 o afeto positivo foi correlacionado positivamente com saúde subjetiva; e Lethin et al 25 identificaram que a autoavaliação de saúde está associada ao bem-estar psicológico.…”

Section: Autoavaliação De Saúdeunclassified

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Aspectos psicológicos da qualidade de vida de cuidadores de idosos: uma revisão integrativa

Flesch¹,

Batistoni²,

Néri³

et al. 2017

Geriatr., Gerontol. Aging

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Section: Condições De Saúde Do Alvo De Cuidadosunclassified

Section: Sobrecarga Do Cuidadorunclassified

Section: Autoavaliação De Saúdeunclassified

See 1 more Smart Citation

Aspectos psicológicos da qualidade de vida de cuidadores de idosos: uma revisão integrativa

Flesch¹,

Batistoni²,

Néri³

et al. 2017

Geriatr., Gerontol. Aging

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“…A previous study found that higher psychological well-being is related to reduced caregiver burden and a higher quality of life among caregivers of persons with dementia living at home. 50 Thus, the underlying construct of the COPE Index may be related to the dementia caregivers' perception of caregiver burden. As none of the criteria used were burden-specific instruments, this assumption should be addressed in detail in future studies.…”

Section: Criterion Validitymentioning

confidence: 99%

Psychometric validation of the Carers of Older People in Europe Index among family caregivers of older persons with dementia

et al. 2018

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Objectives: The Carers of Older People in Europe Index is a first-stage assessment tool to detect family caregivers in need of support. This instrument assesses caregivers’ subjective perceptions of their caregiving circumstances. The present study examines the psychometric properties of the Norwegian version of the Carers of Older People in Europe Index among family caregivers for older persons with dementia living at home. Methods: Cross-sectional survey data were collected from 430 dementia caregivers. The sample was randomly split as follows: the first half of the sample was used to identify the measurement model using an exploratory factor analysis, and the second half of the sample was used to cross-validate the model using a confirmatory factor analysis. The criterion validity and reliability (internal consistency and test–retest reliability) of the Carers of Older People in Europe Index were also examined. Results: Using an exploratory factor analysis, we extracted three factors that were consistent with previous findings: negative impact of caregiving, positive values of caregiving and quality of support. This model fit the data well using a confirmatory factor analysis. Moreover, a second-order model could replace the three-factor correlated model without sacrificing the model fit, supporting the use of a global impact of caregiving score. The three factors and the global factor correlated with the criteria measures in the expected directions. The internal consistency was assessed using Cronbach’s alpha and was good for the negative impact ( α = 0.86) and the quality of support ( α = 0.76) factors. The positive values factor was less consistent ( α = 0.64). The test–retest reliability was examined using Spearman’s rank order correlation and was good for all three factors. Conclusion: The psychometric properties of the Norwegian version of the Carers of Older People in Europe Index are good. The instrument assesses dementia caregivers’ situations across three primary factors or alternatively validly summarizes the factors in a global impact of caregiving score.

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“…Among caregivers to older adults the most studied population has been caregivers to cognitively impaired care recipients, although other conditions have attracted increasing interest, such as cancer [47][48][49], stroke [2,45,[50][51][52][53][54], home-based dialysis [55], heart failure [56], multiple sclerosis [57][58][59], dementia [60], and amyotrophic lateral sclerosis (ALS) [61]. Caregiving research has also emerged from new geographical areas, including Japan [36,62,63], Taiwan [64], China [48,55], and so-called developing countries [65][66][67].…”

Section: The Current State Of Research On Caregivingmentioning

confidence: 99%

“Self-Employed” in Caregivinghood: The Contribution of Swedish Informal Caregivers’ Environmental and Contextual Resistance Resources and Deficits

et al. 2017

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Abstract:Informal caregivers provide the majority of care for older adults residing in their own homes. Caregivinghood, a new evidence-based concept, describes a time of life when relatives provide care at home. These caregivers need knowledge regarding resources to help them resolve the challenges they encounter. The theoretical framework underpinning this study is Antonovsky's salutogenic theory of health. This study had two aims: (1) to examine the salutogenic core concepts Generalized and Specific Resistance Resources and Deficits (GRRs/SRRs and GRDs/SRDs) described by Swedish informal caregivers as originating from the environmental and contextual domain of caregivinghood and (2) to discuss how this new knowledge might contribute to the development of health promotion initiatives. This qualitative and theory driven study used inductive and deductive data analysis. Data were gathered through salutogenically guided face-to-face interviews of 32 Swedish informal caregivers. In addition, the study relied on the salutogenic core concepts Specific and Generalized Resistance Resources and Deficits originating from their environment and context. Being in empowering surroundings reflects the presence of usable SRRs/GRRs, whereas Struggling in impeding surroundings reflects the presence of SRDs/GRDs. The results indicate that health-enhancing support has to be individualized (SRRs/SRDs) and generalized (GRRs/GRDs). This study's salutogenic approach and the methodology enhance the understanding of the mechanisms behind the development of Sense of Coherence. The results contribute both empirically and theoretically to strengthen health promotion research and practice when developing activities and support for caregivers in stressful situations, such as informal caregiving.

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Psychological well-being over time among informal caregivers caring for persons with dementia living at home

Cited by 53 publications

References 41 publications

Aspectos psicológicos da qualidade de vida de cuidadores de idosos: uma revisão integrativa

Aspectos psicológicos da qualidade de vida de cuidadores de idosos: uma revisão integrativa

Psychometric validation of the Carers of Older People in Europe Index among family caregivers of older persons with dementia

“Self-Employed” in Caregivinghood: The Contribution of Swedish Informal Caregivers’ Environmental and Contextual Resistance Resources and Deficits

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