Psychological well-being of parents and family caregivers of children with hearing impairment in south India: Influence of behavioural problems in children and social support

Driessche, Anne van; Jotheeswaran, AT; Murthy, G. V. S.; Pilot, Eva; Sagar, Jayanthi; Pant, Hira; Singh, Vivek; Dpk, Babu

doi:10.3109/09540261.2014.926865

Cited by 10 publications

(5 citation statements)

References 31 publications

(42 reference statements)

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“…among parents of children with hearing loss were demonstrated compared to parents of children with normal hearing (Quittner et al 13; van Driessche et al 14 ). Social isolation and other precautions taken during the pandemic create a new stressful situation for parents of children with special needs like hearing loss.…”

Section: Accepted Manuscriptmentioning

confidence: 99%

Retraction Note: How The Child with Hearing Loss and Their Parents Affected During the Covid-19 Pandemic?

Tuz

Aslan²,

Yücel

2022

J Am Acad Audiol

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Purpose: This study aimed to determine parents’ perception of the behavioral and auditory performance differences of children with hearing loss and anxiety levels of children and their parents during the pandemic. Research Design: This is a cross-sectional study. Study Sample: The study included 75 parents who have preschool-aged children with hearing loss. The inclusion criteria were being a family member of a child with hearing loss between the ages of one and six years. The children’s mean age was 4.09 (± 1.42). Data Collection and Analysis: The evaluation forms included the control list to determine how the children with hearing loss and their parents were affected during the pandemic, the Parents' Evaluation of Aural Performance of Children rating scale to measure children's auditory performance, the Preschool Behavior Questionnaire to assess behavior problems, the Preschool Anxiety Scale parental form, and the State-Trait Anxiety Inventory state form to measure the stress level of children and their parents. Parents were asked to fill out all forms. The Wilcoxon test was used to compare before and during the pandemic scores of PEACH and PBQ. Descriptive statistics on the levels of anxiety throughout families and children were presented. The Spearman test was used to examine the relationship between the effect of pandemic and other variables. Results: There was a difference in the Preschool Behavior Questionnaire scores before and during the pandemic but not in the Parents' Evaluation of Aural Performance of Children scores. The PBQ significantly increased during the pandemic, with 49% of children exhibiting out-of-the-ordinary behavior. The mean score of the Preschool Anxiety Scale -Parental form was 26.65± 19.05. Among all parents, 66% of them showed high levels of the State-Trait Anxiety Inventory state. As before- and during-pandemic the Parents' Evaluation of Aural Performance of Children scores decreased, the children and their families were negatively affected during the pandemic. Conclusion: Parents’ perspectives provided information on behavioral changes in children with hearing loss. Even though they did not report any difference in their children’s auditory perception performance, long-term effects of limited or no auditory training should be studied.

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Section: Accepted Manuscriptmentioning

confidence: 99%

Retraction Note: How The Child with Hearing Loss and Their Parents Affected During the Covid-19 Pandemic?

Tuz

Aslan²,

Yücel

2022

J Am Acad Audiol

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“…| 17 | 1-26 | 2023DOI: 10.34019/1982-1247.2023 A importância do rastreio desses indicadores de estresse se dá, especialmente, pelo risco aumentado de problemas de doença mental em pais de crianças com deficiência auditiva. Esse risco ainda é maior quando a criança apresenta problemas de comportamento (van Driessche et al, 2014). Outras condições de saúde, como o autismo (Faro et al, 2019) e síndrome congênita (Gama et al, 2021), também associam o estresse parental à sobrecarga de cuidados.…”

Section: Discussionunclassified

Coping de familiares de crianças usuárias de dispositivos auditivos implantáveis

Sessa Campos,

Brunoro Motta,

Carvalho Barreira Nilsen

2023

Psipesq

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Este estudo investigou o coping de estressores relacionados ao processo de reabilitação auditiva, em familiares de crianças/adolescentes usuárias de dispositivos auditivos implantáveis. Nove participantes responderam a instrumentos sobre dados biosociodemográficos, risco psicossocial e coping, analisados de forma descritiva. Foram verificados indicadores de risco psicossocial alvo e clínico, porém com presença de suporte social. Estressores percebidos evocaram emoções de tristeza e medo, e as estratégias de enfrentamento mais referidas foram adaptativas: busca de informação e resolução de problemas. Conclui-se que a compreensão de indicadores psicossociais e do coping de familiares, permitirá melhor direcionamento da assistência no processo de reabilitação das crianças/adolescentes.

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“…Research shows that the mothers' perception of the severity of the disability in epileptic children was negatively correlated with the perceived social support which, in turn, was negatively correlated with the severity of anxiety and depression in the mothers [27]. According to the research, low social support in the families of children with hearing impairment and behavioural problems, as well as (affected by) domestic violence, was a predictor of mental diseases in the mothers [28].…”

Section: Introductionmentioning

confidence: 90%

Internal consistency and accuracy of Interpersonal Support Evaluation List (ISEL-40) in mothers of healthy children and those with a medical history

Aftyka

Rozalska

Pawlak

et al. 2019

Ann Agric Environ Med.

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Introduction and objective. The aim of the study was assessment of the internal consistency and accuracy of the Interpersonal Support Evaluation List-40 v. GP (ISEL-40 v. GP) in a group of mothers of healthy children and in a group of mothers of children with a medical history, and presentation of the initial research results. Materials and method. A group of 230 mothers were involved in the research: 57 mothers of healthy children, 26 mothers of infants with a perinatal medical history, as well as 147 mothers of hospitalized children. The method of a diagnostic survey with standardized tools, such as the Interpersonal Support Evaluation List (ISEL-40 v. GP), Hospital and Anxiety Depression Scale (HADS) and the authors' own questionnaire was utilized. Results. Analysis of the research results suggests satisfactory internal consistency of the ISEL-40 v. GP in the researched group (α=0.86). It was also noticed that internal consistency of the subscales varied. The subscales of tangible support (α=0.79) and belonging support (α=0.73) obtained acceptable values. Internal consistency of self-esteem support (α=0.51) and appraisal support (α=0.62) was too low to be recommended for individual and scientific use. An attempt to modify the number of items did not come up to expectations in terms of the subscales internal consistency. Social support in mothers of healthy and ill children was moderate (29.92-33.45 points) and no statistically significant differences in their perception of the support were observed. Conclusions. In the research on a group of mothers of healthy and ill children it is recommended to use only a social support indicator based on the general result of the ISEL-40 v. GP. Further research aimed at verification of the theoretical structure of the Polish version of the ISEL-40 v. GP is advised.

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Psychological well-being of parents and family caregivers of children with hearing impairment in south India: Influence of behavioural problems in children and social support

Cited by 10 publications

References 31 publications

Retraction Note: How The Child with Hearing Loss and Their Parents Affected During the Covid-19 Pandemic?

Retraction Note: How The Child with Hearing Loss and Their Parents Affected During the Covid-19 Pandemic?

Coping de familiares de crianças usuárias de dispositivos auditivos implantáveis

Internal consistency and accuracy of Interpersonal Support Evaluation List (ISEL-40) in mothers of healthy children and those with a medical history

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