Psychological Distress of Ethnically Diverse Adult Caregivers in the California Health Interview Survey

Meyer, Oanh L.; Liu, Xiaoyan; Nguyen, Thi Thuy Trang; Hinton, W Ladson; Tancredi, Daniel J.

doi:10.1007/s10903-017-0634-0

Cited by 10 publications

(5 citation statements)

References 37 publications

(38 reference statements)

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“…Therefore, they may be less likely to seek help outside of the family (Guo et al, 2019). In addition, migrants usually lose most social networks established prior to migration; therefore, they have limited sources of care in a host country to help them to cope with stress (Brijnath et al, 2021; Meyer et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers

Xiao

Zhou

et al. 2022

Dementia

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Background Home-based dementia care is common in the Chinese-Australian community. However, dementia education programs for Chinese-Australians in the language of their choice are scarce. The World Health Organization has developed iSupport for Dementia, an online education program for informal caregivers. Cultural adaptation of the program for Chinese-Australian caregivers is an opportunity to address this gap in caregiver support. Aim The aims of the study were (1) to understand stakeholders’ perspectives on the cultural and linguistic appropriateness of the Chinese iSupport for Dementia content and design and (2) to explore factors affecting the future implementation of the Chinese iSupport program in Australia. Methods A qualitative descriptive design was applied to address the aims of the study. Focus group discussions with Chinese-Australian caregivers and community aged care workers were conducted to collect data. Thematic analysis was used to analyse data. Results In total, six focus groups were conducted with 18 Chinese-Australian caregivers and 17 care workers. Six themes were identified and described as follows: (1) appropriateness of the Chinese iSupport content; (2) acceptability of the online Chinese iSupport design; (3) motivations to engage in the iSupport program; (4) desire to interact with peers and professional facilitators; (5) concerns about program accessibility; and (6) the need to extend the iSupport program to care workers. Conclusions Engagement with Chinese-Australian caregivers and care workers will inform further revisions of the Chinese iSupport program contents to ensure the program is culturally congruent to Chinese-Australian caregivers. Factors affecting the implementation of the program identified in the study will be considered in the intervention phase of the program.

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Section: Introductionmentioning

confidence: 99%

Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers

Xiao

Zhou

et al. 2022

Dementia

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“…A recent California Health Interview Survey analysis found that while having more education mitigates general psychological distress among White caregivers, it has been associated with more distress for Asian caregivers. 24 While prior work has found an association between longer duration of caregiving and high caregiver stress, there has been a limited investigation of acute care scenarios. 7 In our study, we focused on the experiences of caregivers in the acute post-hospital care setting.…”

Section: Discussionmentioning

confidence: 99%

Caregiving for Older Adults with Limited English Proficiency: Transitioning from Hospital to Home

et al. 2019

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BACKGROUND: Although the family caregiver workforce is increasingly diverse, little is known about culturally and linguistically diverse caregivers and patients for whom they care. Caregiver roles include communicating with health care teams on behalf of patients with language barriers. OBJECTIVE: Our objective is to describe characteristics and experiences of caregivers for patients with limited English proficiency (LEP) immediately following hospital discharge. DESIGN: Cross-sectional. PARTICIPANTS: Primary informal caregivers for Chineseand Spanish-speaking patients with LEP discharged from a large academic medical center's orthopedic surgery, general surgery, and cardiovascular inpatient floors from June 2012 to August 2013. MAIN MEASURES: Bilingual-bicultural research assistants conducted baseline structured interviews with patients or surrogates in the hospital, and 3 weeks after discharge, gathering demographic and health information. They then interviewed by phone informal caregivers, identified by patients, to determine caregiving experiences. KEY RESULTS: One hundred fifty-eight caregivers were interviewed post-discharge. Two-thirds (69.0%) were adults caring for parents or grandparents, and 20.9% were spouses or partners. Sixty-nine (43.7%) caregivers had LEP themselves, yet only 12% of patients reported having access to professional interpreters at the time discharge instructions were provided. Ninety percent reported performing three or more caregiving roles for the patient (helping at home, helping with medical decisions, helping with medical forms, helping communicate with medical staff, and talking with doctors about medical care). Forty percent reported moderate/high levels of perceived stress (some, most, or all of the time) caring for the patient. Multivariate regression revealed caregivers for Chinese-speaking patients, and those for patients discharged to another hospital were most likely to report moderate/high levels of perceived stress. CONCLUSION: Culturally and linguistically diverse caregivers perform multiple roles caring for patients with LEP, often have LEP themselves, and experience notable levels of stress. These results also demonstrate an opportunity to expand the use of professional interpreters at hospital discharge to avoid communication errors.

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“…Nationally representative data from NLAAS indicate that 36% of Vietnamese live in poverty. 47 In a recent population-based study, Meyer et al 48 examined racial and ethnic disparities in psychological distress among those caring for an older family member. Results showed significant disparities for Vietnamese Americans; despite comparable levels of education with NHWs and Chinese Americans, Vietnamese had significantly lower annual incomes, the highest levels of psychological distress, and the poorest self-rated health.…”

Section: Sociocultural and Contextual Factorsmentioning

confidence: 99%

“…Results showed significant disparities for Vietnamese Americans; despite comparable levels of education with NHWs and Chinese Americans, Vietnamese had significantly lower annual incomes, the highest levels of psychological distress, and the poorest self-rated health. 48 Acculturation is important in immigrant health, yet nothing is known about how variation in acculturation impacts ADRD risk for Vietnamese Americans. Acculturation is a process in which members of one cultural group adopt the beliefs and behaviors of another, more dominant group.…”

Section: Sociocultural and Contextual Factorsmentioning

confidence: 99%

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Inclusion of Vietnamese Americans: Opportunities to understand dementia disparities

Meyer

Park

Kanaya

et al. 2023

A&D Transl Res & Clin Interv

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There is a dearth of research on cognitive aging and dementia in Asian Americans, particularly Vietnamese Americans, who are the fourth largest Asian subgroup in the United States. The National Institutes of Health is mandated to make certain that racially and ethnically diverse populations are included in clinical research. Despite the widespread recognition to ensure that research findings can be generalizable to all groups, there are no estimates of the prevalence or incidence of mild cognitive impairment and Alzheimer's disease and related dementias (ADRD) in Vietnamese Americans, nor do we understand ADRD risk and protective factors in this group. In this article, we posit that studying Vietnamese Americans contributes to a better understanding of ADRD in general and offers unique opportunities for elucidating life course and sociocultural factors that contribute to cognitive aging disparities. That is, the unique context of Vietnamese Americans may provide understanding in terms of within‐group heterogeneity and key factors in ADRD and cognitive aging. Here, we provide a brief history of Vietnamese American immigration and describe the large but often ignored heterogeneity of Asian Americans in the United States, elucidate how early life adversity and stress might influence late‐life cognitive aging, and provide a basis for the role of sociocultural and health factors in the study of Vietnamese cognitive aging disparities. Research with older Vietnamese Americans provides a unique and timely opportunity to more fully delineate the factors that contribute to ADRD disparities for all populations.

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Psychological Distress of Ethnically Diverse Adult Caregivers in the California Health Interview Survey

Cited by 10 publications

References 37 publications

Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers

Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers

Caregiving for Older Adults with Limited English Proficiency: Transitioning from Hospital to Home

Inclusion of Vietnamese Americans: Opportunities to understand dementia disparities

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