Psychological distress and coping strategies in parents of children with cancer in Lebanon

Lakkis, Najla A.; Khoury, Joseph El; Mahmassani, Dina M.; Ramia, Maria S.; Hamadeh, Ghassan

doi:10.1002/pon.3934

Cited by 21 publications

(18 citation statements)

References 40 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Especially financial support is an important type of support for parents in order to maintain the treatment and decrease the feelings of helplessness. In a similar vein, Lakkis et al (2016) reported that the financial support given to families was a protective factor especially for the mothers.…”

Section: Discussionmentioning

confidence: 86%

Experiences of Families of children with Cancer Regarding support sources and coping strategies

Usluoğlu

Atıcı

2021

İnönü Üniversitesi Eğitim Fakültesi Dergisi

View full text Add to dashboard Cite

The purpose of this study is to investigate views of parents and siblings of children with cancer whose treatment is continuing about family support sources and individual coping strategies. In line with this purpose, face to face interviews were conducted with 24 parents and 12 siblings from 12 families. Data were analyzed through inductive content analysis approach. Themes and sub-themes that formed support sources and coping strategies were identified according to the analyses results. Accordingly, support sources were composed of the themes such as internal family strengths, extended family support, health team, social support, workplace support, and support from the institutions and organizations. Coping strategies included themes such as appraisal-focused, problem-focused, and emotion-focused themes. In conclusion, the present study revealed important clues about planning protective and supportive interventions for the families in a way to include medical health care providers.

show abstract

Section: Discussionmentioning

confidence: 86%

Experiences of Families of children with Cancer Regarding support sources and coping strategies

Usluoğlu

Atıcı

2021

İnönü Üniversitesi Eğitim Fakültesi Dergisi

View full text Add to dashboard Cite

show abstract

“…Although a number of sources mentioned the financial burden of cancer care for parents and families (eg, in relation to the cost of chemotherapy drugs in Lebanon 23 ) or the relationship between financial concerns and measures of well-being, 80 - 82 we identified a single study that attempted to quantify this burden (n = 85 parents or care givers) on a scale from 1 (low) to 10 (high) and reported an average score of 5.35 (standard deviation, 2.60), suggesting moderate financial hardship. 83 One qualitative study in Jordan, informed by interviews with 12 mothers and 12 fathers of children with cancer, documented what some Jordanian families may experience in terms of financial burden (eg, losing work, transportation, hotel costs).…”

Section: Resultsmentioning

confidence: 99%

Economics of Pediatric Cancer in Four Eastern Mediterranean Countries: A Comparative Assessment

Gheorghe

Chalkidou

Shamieh

et al. 2020

JCO Global Oncology

View full text Add to dashboard Cite

PURPOSE Cancer is a leading cause of death among children in the Eastern Mediterranean region, where conflict and economic downturn place additional burden on the health sector. In this context, using economic evidence to inform policy decisions is crucial for maximizing health outcomes from available resources. We summarized the available evidence on the economics of pediatric cancer in Jordan, Lebanon, the occupied Palestinian territory, and Turkey. METHODS A scoping review was performed of seven academic databases and gray literature pertaining to pediatric cancer in the four jurisdictions, published between January 1, 2010, and July 17, 2019. Information was extracted and organized using an analytical framework that synthesizes economic information on four dimensions: the context of the health system, the economics of health care inputs, the economics of service provision, and the economic consequences of disease. RESULTS Most of the economic evidence available across the four jurisdictions pertains to the availability of health care inputs (ie, drugs, human resources, cancer registration data, and treatment protocols) and individual-level outcomes (either clinical or health-related quality of life). We identified little evidence on the efficiency or quality of health care inputs and of pediatric cancer services. Moreover, we identified no studies examining the cost-effectiveness of any intervention, program, or treatment protocol. Evidence on the economic consequences of pediatric cancer on families and the society at large was predominantly qualitative. CONCLUSION The available economic evidence on pediatric cancer care in the four countries is limited to resource availability and, to an extent, patient outcomes, with a substantial gap in information on drug quality, service provision efficiency, and cost-effectiveness. Links between researchers and policymakers must be strengthened if pediatric cancer spending decisions, and, ultimately, treatment outcomes, are to improve.

show abstract

“…For example, 56% of parents in one study reported significant psychological distress during treatment. 1 In another study, mothers of children undergoing cancer treatment reported decreased social functioning, general health, vitality, and mental health. 2 Data regarding long-term parental psychosocial outcomes, however, are not as clear.…”

Section: Introductionmentioning

confidence: 97%

“…The diagnosis of pediatric cancer is traumatic and negatively affects the well‐being of the entire family. For example, 56% of parents in one study reported significant psychological distress during treatment . In another study, mothers of children undergoing cancer treatment reported decreased social functioning, general health, vitality, and mental health .…”

Section: Introductionmentioning

confidence: 98%

Persistently low peace of mind in parents of cancer patients: A five‐year follow‐up study

Sisk

Weng

Mack

2019

Pediatric Blood & Cancer

View full text Add to dashboard Cite

Background Pediatric cancer affects the well‐being of the entire family. Previously, our group found that 76% of parents experience low peace of mind after diagnosis. Herein, we present a five‐year follow‐up study of these same parents, aiming to determine whether low peace of mind persisted, and what baseline variables associate with persistently low peace of mind. Procedure Cross‐sectional survey of parents of children with cancer between April 2004 and September 2005 within one year of diagnosis, and a follow‐up questionnaire administered at least five years later. Results Sixty‐six percent of parents whose children were living and who were able to be contacted completed follow‐up questionnaires (91/138). Of these parents, 77% (70/91) were parents of disease‐free survivors and 23% (21/91) had recurrent disease. The majority of parents (66%, 53/88) had low peace of mind five years after diagnosis, regardless of relapse status or prognosis. Additionally, 28% of parents of disease‐free survivors reported being very/extremely worried about relapse (18/66), late toxicities (19/66), and late effects (19/66). Each worry was associated with low peace of mind (OR between 9.66 and 20.09 for each worry). In bivariable logistic regression, low peace of mind at five years was negatively associated with trusting the physician completely at baseline, with and without adjustment for relapse status (OR, 0.32; 95% CI, 0.12 to 0.87, P = 0.032, adjusted for relapse). Conclusion Most long‐term studies and interventions have focused on parental bereavement. Our findings show that most parents are changed by pediatric cancer, even when children survive and the future is bright.

show abstract

Psychological distress and coping strategies in parents of children with cancer in Lebanon

Cited by 21 publications

References 40 publications

Experiences of Families of children with Cancer Regarding support sources and coping strategies

Experiences of Families of children with Cancer Regarding support sources and coping strategies

Economics of Pediatric Cancer in Four Eastern Mediterranean Countries: A Comparative Assessment

Persistently low peace of mind in parents of cancer patients: A five‐year follow‐up study

Contact Info

Product

Resources

About