“…While most surrogates prioritized respecting patients' perceived wishes and reducing suffering, surrogates may belong to different subgroups characterized by varying other top concerns: patient age, family agreement, prognostication, and cost of long-term care ( 75 ). Both non-white race and high religiosity may predict a surrogate choosing life-sustaining therapy over CMO ( 76 ). However, such a decision is still fraught with uncertainty; for example, respondents in the aforementioned study of US residents who were most concerned about cost of care were still more likely to choose tracheostomy and PEG placement over CMO compared with those less concerned ( 77 ).…”
Section: Shared Decision-making With Surrogates: Potential Pitfallsmentioning
Stroke is one of the leading causes of death and long-term disability in the United States. Though advances in interventions have improved patient survival after stroke, prognostication of long-term functional outcomes remains challenging, thereby complicating discussions of treatment goals. Stroke patients who require intensive care unit care often do not have the capacity themselves to participate in decision making processes, a fact that further complicates potential end-of-life care discussions after the immediate post-stroke period. Establishing clear, consistent communication with surrogates through shared decision-making represents best practice, as these surrogates face decisions regarding artificial nutrition, tracheostomy, code status changes, and withdrawal or withholding of life-sustaining therapies. Throughout decision-making, clinicians must be aware of a myriad of factors affecting both provider recommendations and surrogate concerns, such as cognitive biases. While decision aids have the potential to better frame these conversations within intensive care units, aids specific to goals-of-care decisions for stroke patients are currently lacking. This mini review highlights the difficulties in decision-making for critically ill ischemic stroke and intracerebral hemorrhage patients, beginning with limitations in current validated clinical scales and clinician subjectivity in prognostication. We outline processes for identifying patient preferences when possible and make recommendations for collaborating closely with surrogate decision-makers on end-of-life care decisions.
“…While most surrogates prioritized respecting patients' perceived wishes and reducing suffering, surrogates may belong to different subgroups characterized by varying other top concerns: patient age, family agreement, prognostication, and cost of long-term care ( 75 ). Both non-white race and high religiosity may predict a surrogate choosing life-sustaining therapy over CMO ( 76 ). However, such a decision is still fraught with uncertainty; for example, respondents in the aforementioned study of US residents who were most concerned about cost of care were still more likely to choose tracheostomy and PEG placement over CMO compared with those less concerned ( 77 ).…”
Section: Shared Decision-making With Surrogates: Potential Pitfallsmentioning
Stroke is one of the leading causes of death and long-term disability in the United States. Though advances in interventions have improved patient survival after stroke, prognostication of long-term functional outcomes remains challenging, thereby complicating discussions of treatment goals. Stroke patients who require intensive care unit care often do not have the capacity themselves to participate in decision making processes, a fact that further complicates potential end-of-life care discussions after the immediate post-stroke period. Establishing clear, consistent communication with surrogates through shared decision-making represents best practice, as these surrogates face decisions regarding artificial nutrition, tracheostomy, code status changes, and withdrawal or withholding of life-sustaining therapies. Throughout decision-making, clinicians must be aware of a myriad of factors affecting both provider recommendations and surrogate concerns, such as cognitive biases. While decision aids have the potential to better frame these conversations within intensive care units, aids specific to goals-of-care decisions for stroke patients are currently lacking. This mini review highlights the difficulties in decision-making for critically ill ischemic stroke and intracerebral hemorrhage patients, beginning with limitations in current validated clinical scales and clinician subjectivity in prognostication. We outline processes for identifying patient preferences when possible and make recommendations for collaborating closely with surrogate decision-makers on end-of-life care decisions.
“…Figure 2 outlines details of study recruitment. During Phase 1, we enrolled 42 of 110 eligible family members (38.2%) at 6 months following their participation in our previous study on attachment orientation ( 30 ). During Phase 2, we enrolled 171 of 302 additional eligible family members (56.6%) near time of ICU discharge or death, with 120 of 171 (70.2%) retained at 6-month follow-up.…”
Section: Resultsmentioning
confidence: 99%
“… Study enrollment. Enrollment phase 1 was follow-up from a previous study with the exact same inclusion criteria and covariates as this study, as well as the same timing of initial participant enrollment relative to patient ICU discharge or death ( 30 ). IES-R = Impact of Events Scale—Revised, RQ = Relationship Questionnaire.…”
Section: Resultsmentioning
confidence: 99%
“…However, the overall proportion of families in our study with post-ICU PTSD symptoms was similar to those of prior general ICU studies ( 57 – 59 ), and we adequately powered our study to detect a meaningful difference in PTSD symptoms between our anxious versus nonanxious groups. Our study enrollment was conducted in two distinct phases, although both phases were prospective, and the first phase simply leveraged participants we had recruited for a prior study which already had the same exact inclusion criteria and initial enrollment window in the ICU ( 30 ). Biases associated with subject nonenrollment and loss to follow-up are always a concern ( 60 ).…”
Section: Discussionmentioning
confidence: 99%
“…We recruited participants for this study in two separate phases. For Phase 1, from November 2017 to August 2018, we recruited participants from a consecutive sample of family members who had just recently participated in an in-hospital, cross-sectional study of the relationship between attachment orientation and goals-of-care decision making ( 30 ). This previous study had the exact same inclusion criteria and covariates as this study, and the timing of enrolling participants relative to patient ICU discharge or death was the same as this study.…”
To determine the degree to which an ICU patient's family member having an "anxious" psychologic attachment orientation is a risk factor for developing long-term posttraumatic stress disorder (PTSD) symptoms following patient ICU discharge or death.
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