Psychoedukative Gruppen für Angehörige von depressiv Erkrankten: Analyse des Informationsbedarfs durch eine Fokusgruppenuntersuchung

Frank, Fabian; Hasenmüller, Maria; Kaiser, Marga; Ries, Zivile; Bitzer, EM; Hölzel, Lars P.

doi:10.1055/s-0035-1555787

Cited by 4 publications

(5 citation statements)

References 14 publications

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“…Subgroup analyses, moderator and mediator analyses will be performed in a similar fashion as for the primary outcome. Furthermore, the results seen in the current trial will be compared to historical controls of face-to-face psychoeducation groups for caregivers of depressive in-patients from the multicenter SCHILD study [ 29 , 31 ].…”

Section: Methodsmentioning

confidence: 99%

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An online program with individualized vs automated support for significant others of depressed individuals – study protocol of a randomized controlled trial

Schramm

Breuninger²,

Zehender³

et al. 2022

BMC Psychiatry

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Background Due to budget restrictions in mental health care, non-professional caregivers are increasingly burdened with the emotional and practical care for their depressed relatives. However, informal family caregiving is mostly a stressful role with negative consequences on the physical and mental health of the caretakers to the extent that they have an elevated risk of experiencing psychiatric disorders themselves. While psychoeducation for relatives of depressed individuals showed positive results both in terms of the caretakers’ strain and the depressive symptoms of the affected person, there are major barriers to participate in presence in those programs. Digital programs might be a viable alternative. We found no empirically evaluated digital program available for informal caregivers of depressed patients. Methods An online program for relatives of depressed individuals has been developed including four interactive modules on 1) psychoeducation, 2) how to strengthen the relationship with the depressed person, 3) how to deal with the depressive symptoms of the patient, and 4) find the right balance between caring for the depressed person and self-care. We investigate if this self-help program is more effective when used with individualized versus automated e-mail support, and if both supported conditions are more effective than treatment-as-usual (TAU in form of written information material) in terms of the risk of mental diseases in caregivers. The primary outcome is the reduction of the caregiver’s nonspecific mental distress as measured by the change of the Kessler Psychological Distress Scale score from baseline to four weeks after randomization. Caregivers (n = 500:500:250) will be randomized to one of the three conditions. Discussion Psychological support for caregivers of individuals with mental disorders such as depression should be offered as part of integrated services. There is a huge potential to develop and implement interactive online approaches to support informal caregivers of patients with depression to function in their multiple roles and to help them to remain healthy. Trial registration DRKS, DRKS00025241. Registered 5 Mai 2021.

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Section: Methodsmentioning

confidence: 99%

“…The objective care burden refers to a range of physical, financial, social, as well as time- and work-related problems. The subjective burden includes emotional and psychological distress such as worries, anger, guilt, frustration, sadness, and psychosomatic complaints [ 29 , 34 , 63 , 79 ].…”

Section: Introductionmentioning

confidence: 99%

An online program with individualized vs automated support for significant others of depressed individuals – study protocol of a randomized controlled trial

Schramm

Breuninger²,

Zehender³

et al. 2022

BMC Psychiatry

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“…The intervention follows that of Shimazu et al [ 17 ], but had to be modified in some aspects in order to fit with German conditions. The process of adaptation was based on the results of our own studies [ 13 , 23 , 27 ]. The PGIR will be conducted in a multifamily setting with one key relative per patient and the patient being absent.…”

Section: Methodsmentioning

confidence: 99%

“…Despite these limitations, the results of Shimazu et al [ 17 ] are encouraging, and are in line with results for psychoeducation for relatives in other mental disorders [ 7 – 10 ]. Therefore, the intervention of Shimazu et al [ 17 ] was culturally adapted [ 23 ]. As randomised controlled multicentre trials are lacking, and the evidence on the effects of PGIR as a maintenance treatment after inpatient depression treatment is unclear, further research is required to close this evidence gap.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of a brief psychoeducational group intervention for relatives on the course of disease in patients after inpatient depression treatment compared with treatment as usual – study protocol of a multisite randomised controlled trial

et al. 2015

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BackgroundRelapses and rehospitalisations are common after acute inpatient treatment in depressive disorders. Interventions for stabilising treatment outcomes are urgently needed. Psychoeducational group interventions for relatives were shown to be suitable for improving the course of disease in schizophrenia and bipolar disorders. A small Japanese monocentre randomised controlled trial also showed promising results for depressive disorders. However, the evidence regarding psychoeducation for relatives of patients with depressive disorders is unclear.Methods/DesignThe study is conducted as a two-arm multisite randomised controlled trial to evaluate the incremental effect of a brief psychoeducational group intervention for relatives as a maintenance treatment on the course of disease compared to treatment as usual. Primary outcome is the estimated number of depression-free-days in patients within one year after discharge from inpatient treatment. 180 patients diagnosed with unipolar depressive disorders as well as one key relative per patient will be included during inpatient treatment and randomly allocated to the conditions at discharge. In the intervention group, relatives will participate in a brief psychoeducational group intervention following the patient’s discharge. The intervention consists of four group sessions lasting 90 to 120 min each. Every group session contains informational parts as well as structured training in problem-solving. In both study conditions, patients will receive treatment as usual. Patients as well as relatives will be surveyed by means of questionnaires at discharge and three, six, nine and twelve months after discharge. In addition to the primary outcome, several patient-related and relative-related secondary outcomes will be considered and health economics will be investigated.DiscussionOur study will provide evidence on the incremental effect of a brief psychoeducational intervention for relatives as a maintenance treatment after inpatient depression treatment. Positive results may have a major impact on health care for depression.Trial registrationGerman Clinical Trials Register (DRKS): DRKS00006819; Trial registration date: 2014 Oktober 31; Universal Trial Number (UTN): U1111-1163-5391

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“…Die Studie weist einige Limitationen auf. Eine Einschränkung, die qualitativen Verfahren inhärent ist, ist die kleine Stichprobe [30]. Bei der Stichprobe handelt es sich um eine über verschiedene Wege (Ausschreibung, persönliche Ansprache, Schneeballprinzip) rekrutierte Zufallsstichprobe, wodurch von einer Selbstselektion der Teilnehmenden und insofern einer eingeschränkten Generali sierbarkeit der Ergebnisse auszugehen ist.…”

Section: Diskussionunclassified

Auf dem Weg zu kultursensitiven Patienteninformationsmaterialien: Ergebnisse einer Fokusgruppenuntersuchung

Ries

Frank

Bermejo

et al. 2017

Psychother Psych Med

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Psychoedukative Gruppen für Angehörige von depressiv Erkrankten: Analyse des Informationsbedarfs durch eine Fokusgruppenuntersuchung

Abstract: Information brokerage within psychoeducational groups for relatives should consider the burden of relatives as well as strains in everyday living on which information demands are based. To consider interaction-specific issues, specific skills - e. g. in problemsolving - should be trained.

Cited by 4 publications

References 14 publications

An online program with individualized vs automated support for significant others of depressed individuals – study protocol of a randomized controlled trial

An online program with individualized vs automated support for significant others of depressed individuals – study protocol of a randomized controlled trial

Effectiveness of a brief psychoeducational group intervention for relatives on the course of disease in patients after inpatient depression treatment compared with treatment as usual – study protocol of a multisite randomised controlled trial

Auf dem Weg zu kultursensitiven Patienteninformationsmaterialien: Ergebnisse einer Fokusgruppenuntersuchung

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