Protocol and establishment of a Queensland renal biopsy registry in Australia

Burke, Joseph; Aljishi, Manaf; Francis, Leo; Hoy, Wendy E.; Divi, Dakshinamurthy; Cherian, Roy; Frazier, Jeremy; Gobé, Glenda C.; Gois, Pedro Henrique França; Govindarajulu, Sridevi; Huynh, Sonny; Jesudason, Shilpanjali; John, George T.; Madhan, K.; Mallett, Andrew; Manickam, Valli; Mutatiri, Clyson; Ng, Shu‐Kay; Thet, Zaw; Trnka, Peter; Venuthurupalli, S. K.; Ranganathan, Dwarakanathan

doi:10.1186/s12882-020-01983-7

Cited by 2 publications

(1 citation statement)

References 18 publications

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“…The aim of the survey is to define current practices amongst nephrologists when deciding to embark upon a kidney biopsy for a patient and attempts to correlate these practices with the current KHA-CARI guidelines. This survey therefore, alongside the Queensland Renal Biopsy Registry (QRBR) data collection [10] (which provides information about age, gender, clinical indication for biopsy and histopathological findings), gives a more complete picture of this area of renal medicine.…”

Section: Aim Study Design and Settingmentioning

confidence: 99%

Kidney biopsy practice amongst Australasian nephrologists

Burke

Pham²,

May

et al. 2021

BMC Nephrol

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Background Percutaneous kidney biopsy is the gold standard investigation for the diagnosis of kidney diseases. The associated risks of the procedure depend on the skill and experience of the proceduralist as well as the characteristics of the patient. The Kidney Health Australia – Caring for Australasians with Renal Impairment (KHA-CARI) guidelines on kidney biopsies, published in 2019, are the only published national kidney biopsy guidelines. As such, this study surveys current kidney biopsy practices in Australasia and examines how they align with the Australian guidelines, as well as international biopsy practice. Methods A cross-sectional, multiple-choice questionnaire was developed examining precautions prior to kidney biopsy; rationalisation of medications prior to kidney biopsy; technical aspects of kidney biopsy; complications of kidney biopsy; and indications for kidney biopsy. This was distributed to all members of the Australian and New Zealand Society of Nephrology (ANZSN). Results The response rate for this survey is approximately 21.4 % (182/850). Respondents found agreement (> 75.0 %) in only six out of the twelve questions (50.0 %) which assessed their practice against the KHA-CARI guidelines. Conclusions This is the first study of its kind where kidney biopsy practices are examined against a clinical guideline. Furthermore, responses showed that practices were incongruent with guidelines and that there was a lack of consensus on many issues.

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Section: Aim Study Design and Settingmentioning

confidence: 99%

Kidney biopsy practice amongst Australasian nephrologists

Burke

Pham²,

May

et al. 2021

BMC Nephrol

View full text Add to dashboard Cite

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Establishing the Kidney dIsease in the National guarD (KIND) registry: an opportunity for epidemiological and clinical research in Saudi Arabia

Tawhari,

Alhamadh,

Alhabeeb

et al. 2024

BMC Nephrol

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Background In Saudi Arabia (SA), there has been an alarming increase in the prevalence of chronic kidney diseases (CKD) over the last three decades. Despite being one of the largest countries in the Middle East, renal conditions remain understudied, and there is limited data on their epidemiology and outcomes in SA. Objectives To document the experience of establishing a local renal registry assessing the epidemiology of CKD and identifying potential areas for improving the quality and delivery of care for CKD patients. Methods This is a multi-center retrospective registry. Potential participants were identified through the ICD-10 codes from five hospitals serving the National Guard affiliates in SA. Patients aged ≥ 18 years treated in any National Guard hospital since 2010 for glomerulonephritis, CKD, or received hemodialysis, peritoneal dialysis, or renal transplant were enrolled. Once enrolled in the registry, patients were followed to the last visit date. RedCap was used to create and host the online registry platform. Results A total of 2,912 patients were included, and more than half were younger than 60 years old. Two-thirds of the patients were overweight (25%) or obese (37%). Glomerulonephritis was diagnosed in 10% of the patients, and dialysis-dependent and kidney transplant patients accounted for 31.4% and 24.4%, respectively. Hypertension and diabetes mellitus were detected among 52% and 43% of the participants, respectively. Hemodialysis was the most prevalent dialysis method, with patients spending 3.6 ± 0.4 h per session to receive this treatment. One in every five participants had a kidney biopsy taken (21%). Several barriers and facilitators of the success of this registry were identified. Conclusions The KIND registry provides much-needed information about CKD in Saudi Arabia and serves as a model for future projects investigating the natural history and progression of the spectrum of renal diseases. Logistic and financial challenges to the sustainability of registries are identified and discussed.

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Protocol and establishment of a Queensland renal biopsy registry in Australia

Cited by 2 publications

References 18 publications

Kidney biopsy practice amongst Australasian nephrologists

Kidney biopsy practice amongst Australasian nephrologists

Establishing the Kidney dIsease in the National guarD (KIND) registry: an opportunity for epidemiological and clinical research in Saudi Arabia

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