Prospective Validation of the Decalogue, a Set of Doctor-Patient Communication Recommendations to Improve Patient Illness Experience and Mood States within a Hospital Cardiologic Ambulatory Setting

Ballo, Piercarlo; Milli, Massimo; Slater, C.; Bandini, Fabrizio; Trentanove, Federico; Comper, Giulia; Zuppiroli, Alfredo; Polvani, Stefania

doi:10.1155/2017/2792131

Cited by 3 publications

(2 citation statements)

References 51 publications

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“…Thus, following the experience of the educational programme, we launched Be-hçet_Lab, an innovative hybrid laboratory of narrative medicine and narrative psychology aimed at empowering BD patients and caregivers. Narrative Medicine is a medical approach that aims at integrating the stories of illness of patients in clinical management and that allows healthcare professionals to take into consideration the perspectives of patients (5,6). Besides, narrative psychology can be described as an approach that examines and interpret human actions through the metaphors used in the narratives (7).…”

Section: Clinical and Experimental Rheumatology 2022mentioning

confidence: 99%

Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease

Marinello

Manzo²,

Palla

et al. 2022

Clinical and Experimental Rheumatology

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Section: Clinical and Experimental Rheumatology 2022mentioning

confidence: 99%

Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease

Marinello

Manzo²,

Palla

et al. 2022

Clinical and Experimental Rheumatology

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“…A good doctor-patient relationship and communication are not only helpful in improving patient satisfaction, but also beneficial to patients' mental health and hospital experience. 7,8 Compared to skilled communication, empathy refers to the ability of one person to understand others' unique experience, respond appropriately to it and demonstrate altruistic behavior. 9 Doctor-patient empathy refers to the establishment and deep understanding of the emotional relationship between doctors and patients.…”

Section: Introductionmentioning

confidence: 99%

<p>Care Is the Doctor’s Best Prescription: The Impact of Doctor-Patient Empathy on the Physical and Mental Health of Asthmatic Patients in China</p>

Wu¹,

Zhang²,

et al. 2020

PRBM

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These authors contributed equally to this workBackground: To explore the impact of empathy between Chinese doctors and patients on anxiety, self-efficacy, sleep and IL-6 levels in hospitalized asthmatic patients. Methods: This study included 195 asthmatic patients and 30 respirologists in China. The Jefferson Empathy Scale (JSE) was used to measure the empathy level of doctors, and the consultation and relational empathy (CARE) scale was used to measure patients' perception of empathy between themselves and their doctors. Doctors were divided into three groups, according to JSE scores. Data about anxiety, self-efficacy, sleep and IL-6 were collected and compared between patients in different JSE groups at admission (T1) and 3 months later (T2). The correlation between JSE scores and CARE scores was analyzed. Pearson correlation analysis along with a structural equation model was applied to explore the relevance among anxiety, self-efficacy, sleep, inflammatory factors (IL-6) and patients' perception of empathy shown by their doctors. Results: There was no statistical difference between the indices of patients in three groups at admission. For all patients, the changes of indicators were statistically different from T1 to T2. Three months later, patients in high empathy scoring group showed lower anxiety and IL-6, and higher self-efficacy and sleep quality. There was a positive correlation between JSE and CARE scores. Patients' perception of doctor-patient empathy was negatively correlated to anxiety levels and IL-6, and positively correlated to self-efficacy and sleep quality. Anxiety, self-efficacy and sleep quality were mediators in the relationship between patients' perception of empathy and IL-6. Conclusion: In the Chinese sample, anxiety, self-efficacy, sleep, empathy between doctors and patients and IL-6 are closely correlated. Anxiety, self-efficacy and sleep may play additional roles in the influence of patients' perception of empathy between doctors and patients on IL-6 in asthmatic patients.

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Patient’s experiences with the care for juvenile idiopathic arthritis across Europe

Dijkhuizen

Egert²,

Egert³

et al. 2018

Pediatr Rheumatol

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BackgroundTo assess the views of juvenile idiopathic arthritis (JIA) patients and their parents on the care and treatment they receive in referral pediatric rheumatology centers throughout Europe.MethodsIn a collaboration between physicians and patient associations, a questionnaire was developed, covering various domains of JIA care, including demographics, diagnosis, referrals to various health care professionals, access to pain and fatigue management and support groups, information they received about the disease and awareness of and participation in research. The questionnaire was translated and distributed by parent associations and pediatric rheumatologists in 25 countries, 22 of which were European. After completion the replies were entered on the PRINTO website. Replies could either be entered directly by parents on the website or on paper. In these cases, the replies were scanned and emailed by local hospital staff to Utrecht where they were entered by I.R. in the database.ResultsThe survey was completed by 622 parents in 23 countries. The majority (66.7%) of patients were female, with median age 10–11 years at the completion of the questionnaire. Frequencies of self-reported JIA categories corresponded to literature. Some patients had never been referred to the ophthalmologist (22.8%) or physiotherapist (31.7%). Low rates of referral or access to fatigue (3.5%) or pain management teams (10.0%), age appropriate disease education (11.3%), special rehabilitation (13.7%) and support groups (20.1%) were observed. Many patients indicated they did not have contact details for urgent advice (35.9%) and did not receive information about immunizations (43.2%), research (55.6%) existence of transition of care clinics (89,2%) or financial support (89.7%). While on immunosuppressive drugs, about one half of patients did not receive information about immunizations, travelling, possible infections or how to deal with chickenpox or shingles.ConclusionsLow rates of referral to health care professionals may be due to children whose illness is well managed and who do not need additional support or information. Improvements are needed, especially in the areas of supportive care and information patients receive. It is also important to improve doctor patient communication between visits. Physicians can be instrumental in the setting up of support groups and increasing patients’ awareness of existing support. Suggestions are given to convey crucial pieces of information structurally and repeatedly to ensure, among other things, compliance.Electronic supplementary materialThe online version of this article (10.1186/s12969-018-0226-0) contains supplementary material, which is available to authorized users.

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Prospective Validation of the Decalogue, a Set of Doctor-Patient Communication Recommendations to Improve Patient Illness Experience and Mood States within a Hospital Cardiologic Ambulatory Setting

Cited by 3 publications

References 51 publications

Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease

Sharing good practice in rare diseases: the experience of an innovative hybrid laboratory of narrative medicine and narrative psychology for patients and caregivers living with Behçet's disease

<p>Care Is the Doctor’s Best Prescription: The Impact of Doctor-Patient Empathy on the Physical and Mental Health of Asthmatic Patients in China</p>

Patient’s experiences with the care for juvenile idiopathic arthritis across Europe

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