Promoting Resilience in Stress Management for Parents (PRISM-P): An intervention for caregivers of youth with serious illness.

Abstract

Introduction It is well-known that parental stress and coping impacts the well-being of children with serious illness. The current study aimed to evaluate the feasibility and satisfaction of a novel resilience promoting intervention, the Promoting Resilience in Stress Management Intervention for Parents (PRISM-P) among parents of adolescents and young adults with type 1 diabetes or cancer. Secondary analyses explored the effect of the PRISM-P on parent-reported resilience and distress. Methods The PRISM-P includes four short skills-based modules, delivered in either 2 or 4 separate, individual sessions. English-speaking parents of adolescents with cancer or type 1 diabetes were eligible. Feasibility was conservatively defined as a completion rate of 80%; satisfaction was qualitatively evaluated based upon parent feedback regarding intervention content, timing, and format. Resilience and distress were assessed pre- and post-intervention with the Connor Davidson Resilience Scale and the Kessler-6 Psychological Distress Scale. Results Twelve of 24 caregivers of youth with diabetes (50%) and 13 of 15 (87%) caregivers of youth with cancer agreed to participate. Nine of 12 (75%) and 9 of 13 (64%) completed all PRISM-P modules, respectively. Among those who completed the intervention, qualitative satisfaction was high. Parent-reported resilience and distress scores improved after the intervention. Effect sizes for both groups indicated a moderate intervention effect. Discussion Ultimately, the PRISM-P intervention was well-accepted and impactful among parents who completed it. However, attrition rates were higher than anticipated, suggesting alternative or less time-intensive formats may be more feasible.

Resilience in adolescents and young adults with cystic fibrosis: A pilot feasibility study of the promoting resilience in stress management intervention

“…The completion rate of PRISM in the enrolled AYA CF population was high with 90% of the pilot sample completing all four interventions either as inpatient or in the outpatient setting in the proposed time frame. The completion rate in this study was comparable to previous resilience studies in the chronic patient populations, suggesting that once they actually start the intervention they are very likely to finish it . Even though participants agreed that the intervention was more productive and engaging in person, the phone option provided flexibility and convenience and increased the completion rate for all sessions.…”

Assessing resiliency in paediatric rehabilitation: A critical review of assessment tools and applications

“…Five out of the 41 studies measured resiliency as an outcome of an intervention programme. Three interventions aimed at directly improving resiliency in youth with CHD (Lee et al, ), parents of children with ASD (Pandya et al, ), and parents of children with cancer or diabetes (Yi‐Fraizer et al, ). Lee et al () developed a resiliency improvement programme for adolescents with CHD, targeting five key psychosocial protective factors (i.e., positive emotions, cognitive flexibility, meaning, social support, and coping style).…”

“…RS was employed to measure parent resiliency, and the author reported that parent resiliency was increased post‐programme. Yi‐Fraizer et al () found that a resiliency promotion intervention targeting parents of children with type 1 diabetes improved the parents' ability to cope with stress. The intervention comprised four skill‐based modules and resiliency was measured by CD‐RISC.…”

“…Of the 41 studies that we identified, only five were intervention studies that assessed resiliency as outcome variables. While aiming at measuring the impacts of resiliency‐related interventions, these five intervention studies employed assessment tools designed to explain intrapsychic and contextual protective factors available to the study participants—CD‐RISC (Yi‐Fraizer et al, ; Baron Nelson et al, ), RS (Lee at al., ; Pandya, ), or BRS (Shah et al, ), respectively—rather than one's capacity to flexibly adapt to changing life circumstances.…”

Perspectives on caring for the child and the caregiver

“…But caregiving is also a multidimensional experience associated with benefits, such as personal growth and positive meaning-making. 3 As pediatric healthcare providers, an integral and critical component of our comprehensive management of young people must encompass the primary caregivers and the family. Research shows the connection between caregiver wellbeing (physical and mental) and child functioning.…”