Promoting Resident and Family Councils: a pilot evaluation

Abstract

Purpose – The purpose of this paper is to evaluate the status and impact of a recently formed Resident and Family Council to determine whether the group was achieving the goals of improving long-term care facility relationships, enhancing communication and promoting positive change within the facility. Design/methodology/approach – The pilot evaluation was designed to develop recommendations for future sustainability, of the council, as well as providing wider lessons about the benefits and potential pitfalls of such groups. Data were gathered utilizing participatory qualitative research methods. Semi-structured interviews were conducted with nine council members, representing all groups within the Resident and Family Council. Documents relating to the work of the council and observational field notes maintained during meetings were also analyzed. Findings – A number of themes and dynamics were identified relating to communication, collaboration and future sustainability. Practical implications – Recommendations for initiating Resident and Family Councils should include surveying interest within long-term care facilities, involving the facility ombudsmen or volunteer coordinator, and assessing resources within the community, such as volunteer organizations or partnering with local education organizations. Originality/value – This original research can serve as a template for establishing Resident and Family Councils within long-term care facilities.

A Survey of the Characteristics and Administrator Perceptions of Family Councils in a Western Canadian Province

“…While there is some variation in definitions, Family Councils are generally described as independent, self-determining groups composed of family members (inclusive of friends) who have assembled with the main purpose of protecting and improving the quality of life of those living in LTC homes (Curry et al, 2007). Research about Family Councils suggests that, once established, a Family Council is an effective tool in increasing and enhancing family inclusion (Curry et al, 2007;Znidarsich et al, 2016). Family Councils are a mechanism by which families can gain information about topics of concern to them, such as the rights of the residents and families in LTC homes.…”

“…Family Councils are a mechanism by which families can gain information about topics of concern to them, such as the rights of the residents and families in LTC homes. They may also decrease family members' feelings of being outsiders, and empower them to be involved in their relatives' care (The Change Foundation, 2016;Koehn et al, 2012;Whyte, 2012;Znidarsich et al, 2016). In addition, Family Councils give family members the ability to raise concerns as a group thus encouraging greater accountability from the LTC home (Curry et al, 2007;Koehn et al, 2018;Koehn et al, 2012;Znidarsich et al, 2016).…”

“…Family members have found that participating in Family Councils can lead to collective problem solving and collaboration with staff (Curry et al, 2007;Znidarsich et al, 2016). Previous research has also shown that participating in Family Councils can be helpful emotionally for family members who are transitioning out of their roles of primary caregivers, as they are still integrated in decision-making and benefit from a mutually supportive community (Curry et al, 2007;Znidarsich et al, 2016).…”

“…Family members have found that participating in Family Councils can lead to collective problem solving and collaboration with staff (Curry et al, 2007;Znidarsich et al, 2016). Previous research has also shown that participating in Family Councils can be helpful emotionally for family members who are transitioning out of their roles of primary caregivers, as they are still integrated in decision-making and benefit from a mutually supportive community (Curry et al, 2007;Znidarsich et al, 2016). Residents, family members, and staff/administration in Ontario who participated in a province-wide survey perceived that the main roles of Family Councils were (a) enhancing the quality of life of residents (84%), (b) information sharing (82%), and (c) enhancing the quality of care of residents (80%).…”

“…A case study evaluation of Family Councils in four LTC homes in Vancouver, Canada, found that Family Councils were effective as a means of conflict resolution and a source of social support for families (Whyte, 2012). Similarly, research with staff suggests that Family Councils provide an opportunity to strengthen relationships with families, to build trust, and to contribute to the culture of the LTC home (The Change Foundation, 2016;Heathcote, 2012;Whyte, 2012;Znidarsich et al, 2016).…”