Promoting children’s rights to health and well-being in the United States

Chapman, Audrey R.; Brunelli, Luca; Forman, Lisa; Kaempf, Joseph

doi:10.1016/j.lana.2023.100577

Cited by 4 publications

(1 citation statement)

References 26 publications

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“…The 1989 United Nations Convention on the Rights of the Child recognizes immunization as a fundamental human right [11]. In 2012, the World Health Organization (WHO) established a group called the Vaccine Hesitancy Working Group to investigate vaccine refusal [12].…”

Section: Introductionmentioning

confidence: 99%

Vaccination Approaches of Primary Healthcare Personnel and Their Communication Levels with Parents Having Childhood Vaccine Hesitancy

Şirin,

Şimşek,

Birinci

et al. 2023

jmvi

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Vaccines have saved more lives than any other health development in the 20th century. One of the most cost-effective programs for reducing infant/child morbidity and mortality is the vaccination of children against common vaccine-preventable diseases. Türkiye is one of the countries that has managed to achieve a significant reduction in the incidence of vaccine-preventable diseases by increasing immunization rates. Currently, 13 different antigens are included in the vaccination calendar of the Ministry of Health of the Republic of Türkiye, and all vaccines to be administered (vaccination calendar) are determined and continuously updated by the Immunization Advisory Board of the Ministry of Health of the Republic of Türkiye. Our study is a cross-sectional descriptive study. A total of 410 family physicians and family health workers were included in the study. An interactive training meeting on vaccines, vaccine hesitancy, communication, and counseling was organized in 18 groups (including the study participants) in May-June 2019. A questionnaire form consisting of 24 topics was applied to the participants before the training presentation. When comparisons between groups were analyzed according to the answers given by the participants to some questions, it was found that 57.1% of the group with a good average of knowledge, attitude and behavior score reflecting the level of communication with parents with vaccine hesitancy had received training on vaccines and their characteristics, while 43.6% of the group with a poor average had received this training, and the difference was statistically significant (p=0.008). Parents with vaccine refusal were most hesitant about Measles-Mumps-Rubella (MMR) vaccine (87.7%). Healthcare professionals play a very important role in the provision of healthcare services and in the decision-making of families about vaccination with the counseling they provide all over the world. To reduce vaccine hesitancy, continuous education activities on vaccination for health professionals, the creation of educational materials for public education, the use of mass media, and legal regulations can be made.

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Section: Introductionmentioning

confidence: 99%

Vaccination Approaches of Primary Healthcare Personnel and Their Communication Levels with Parents Having Childhood Vaccine Hesitancy

Şirin,

Şimşek,

Birinci

et al. 2023

jmvi

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Implementation of Sustainable Development Goals in India: Progress and Challenges

Singh

2024

Regional Dimensions of Human Development in India and South Africa

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Charting the Ethical Frontier in Newborn Screening Research: Insights from the NBSTRN ELSI Researcher Needs Survey

Unnikumaran,

Lietsch,

Brower

2024

IJNS

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From 2008 to 2024, the Newborn Screening Translational Research Network (NBSTRN), part of the National Institute of Child Health and Human Development (NICHD) Hunter Kelly Newborn Screening Program, served as a robust infrastructure to facilitate groundbreaking research in newborn screening (NBS), public health, rare disease, and genomics. Over its sixteen years, NBSTRN developed into a significant international network, supporting innovative research on novel technologies to screen, diagnose, treat, manage, and understand the natural history of more than 280 rare diseases. The NBSTRN tools and resources were used by a variety of stakeholders including researchers, clinicians, state NBS programs, parents, families, and policy makers. Resources and expertise for the newborn screening community in ethical, legal, and social issues (ELSI) has been an important area of focus for the NBSTRN and this includes efforts across the NBS system from pilot studies of candidate conditions to public health implementation of screening for new conditions, and the longitudinal follow-up of NBS-identified individuals to inform health outcomes and disease understanding. In 2023, the NBSTRN conducted a survey to explore ELSI issues in NBS research, specifically those encountered by the NBS community. Since NBS research involves collaboration among researchers, state NBS programs, clinicians, and families, the survey was broadly designed and disseminated to engage all key stakeholders. With responses from 88 members of the NBS community, including researchers and state NBS programs, the survey found that individuals rely most on institutional and collegial resources when they encounter ELSI questions. Most survey responses ranked privacy as extremely or very important in NBS research and identified the need for policies that address informed consent in NBS research. The survey results highlight the need for improved collaborative resources and educational programs focused on ELSI for the NBS community. The survey results inform future efforts in ELSI and NBS research in the United States (U.S.) and the rest of the world, including the development of policies and expanded ELSI initiatives and tools that address the needs of all NBS stakeholders.

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Promoting children’s rights to health and well-being in the United States

Cited by 4 publications

References 26 publications

Vaccination Approaches of Primary Healthcare Personnel and Their Communication Levels with Parents Having Childhood Vaccine Hesitancy

Vaccination Approaches of Primary Healthcare Personnel and Their Communication Levels with Parents Having Childhood Vaccine Hesitancy

Implementation of Sustainable Development Goals in India: Progress and Challenges

Charting the Ethical Frontier in Newborn Screening Research: Insights from the NBSTRN ELSI Researcher Needs Survey

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