Promoting a sense of security in everyday life—A case study of patients and professionals moving towards co‐production in an atrial fibrillation “learning café”

Suutari, Anne-Marie; Josefsson, Kristina Areskoug; Kjellström, Sofia; Nordin, Annika; Thor, Johan

doi:10.1111/hex.12955

Cited by 7 publications

(8 citation statements)

References 47 publications

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“…In this regard, Fledderus et al 17 pointed to financial or nonmaterial rewards as the joy or intrinsic motivation of coproducing, which can be reflected in social recognition or group identity, as was the case for many of the young people in the studies we reviewed. Furthermore, the results of this study coincide with the findings from the literature on coproduction for the adult population 36–38 …”

Section: Discussionsupporting

confidence: 89%

Young peoples' involvement in welfare service development—Is voice enough?—A thematic synthesis of qualitative studies

Nortvedt

Olsen

Sjølie

2022

Health Expectations

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Background Young people need to be heard and take an active role in developing welfare services. When they are recognized as having skills and expertize, the advantages young people's involvement brings to both themselves and the organizations, are mobilization and empowering with impact on national decision‐making. Objective To synthesize existing literature on how young people's involvement in coproduction can contribute to better welfare services. Search Strategy We performed a systematic literature search in four databases (MEDLINE, EMBASE, PsycINFO and Cinahl). Inclusion Criteria Publications whose abstracts contained themes as: Young people 12–25 years of age, receiving welfare, youth coproduction/involvement/participation and qualitative studies. Data Extraction and Synthesis Of the 5469 documents retrieved, the full text of 58 studies was read, of which seven studies met the inclusion criteria. A thematic synthesis following Thomas and Harden was used. Main Results Young people being involved in coproduction of developing welfare services experienced to be valued and supported by partnerships, but they also pointed out deficiencies in welfare services. Some of the adolescents expressed not being listened to, lack of trusted relations and not being involved in policy making or prospects. The staff members saw some challenges with partnering with youth; as the need for flexibility, to keep the youth engaged and to purposefully meet the adolescents where they need help, guidance or resources. Conclusions More involvement should be stressed. Coproduction is often symbolic more than resulting in real changes in the welfare services. Consequently, what is crucial when young people are involved is that they are encouraged by adults to be clear about the degree of involvement they want. Patient or Public Contribution Patient and public involvement was not explicit in this review.

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Section: Discussionsupporting

confidence: 89%

Young peoples' involvement in welfare service development—Is voice enough?—A thematic synthesis of qualitative studies

Nortvedt

Olsen

Sjølie

2022

Health Expectations

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“…Our study raises many questions about population‐level variation in care utilization in Sweden. Healthcare systems in Sweden and elsewhere often aim to move a person with a chronic disease from the group needing specialist care to primary care and to involve peer support from networks and, when, if possible, to self‐care (Suutari et al., 2019 ).…”

Section: Discussionmentioning

confidence: 99%

Contact patterns and costs of multiple sclerosis in the Swedish healthcare system—A population‐based quantitative study

et al. 2022

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Background The burden of disease for persons with multiple sclerosis (MS) and society is changing due to new treatments. Knowledge about the total need for care is necessary in relation to changing needs and new service models. Objective The aim of this study was to describe the contact patterns for MS patients, calculate costs in health care, and create meaningful subgroups to analyze contact patterns. Methods All patients diagnosed with MS at Ryhov Hospital were included. All contacts in the region from January 1, 2018, until September 30, 2019, were retrieved from the hospital administrative system. Data about age, sex, contacts, and diagnosis were registered. The cost was calculated using case costing, and costs for prescriptions were calculated from medical files. Results During the 21‐month period, patients (n = 305) had 9628 contacts and 7471 physical visits, with a total cost of $7,766,109. Seventeen percent of the patients accounted for 48% of the visits. The median annual cost was $7386 in the group with 10 or fewer visits, compared to $22,491 in patients with more than 50 visits. Conclusion There are considerable differences in the utilization of care and cost between patients with MS in an unselected population, meaning that the care needs to be better customized to each patient's demands.

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“…This has already been proposed by Kokorelias et al who have identified core aspects of family focused care such as illness specific education. Furthermore, the need to focus on both the patient and the family members was mirrored in a study of patients’ and professionals’ experiences of pilot-testing a Learning Café group education program for patients with AF and family members [ 30 ]. The study demonstrated that patients´ overall sense of security increased after the session.…”

Section: Discussionmentioning

confidence: 99%

Dancing with atrial fibrillation – How arrhythmia affects everyday life of family members: A qualitative study

et al. 2021

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Background Atrial fibrillation (AF) is the most common cardiac arrhythmia. Patients with AF often experience debilitating symptoms, stress and reduced health-related quality of life. Previous qualitative research on AF has primarily focused on the patient. AF, however, can also be burdensome for the patient’s family. Aim The aim of this study was to explore how family members experience life when a close member in the family has AF. Method Transcribed focus group interviews were analysed using content analysis approach inspired by Graneheim and Lundman. Results Two focus group interviews were conducted with 11 family members. The overall theme was Dancing with AF. The theme emerged from three categories: 1) Handling AF as a living condition, 2) Influencing the roles of family members, 3) Fear of AF attack. AF had a very significant impact on the patients’ family members, forcing them to reconstruct their daily lives. Conclusions AF has multiple consequences for family members and can give rise to conflicts concerning family roles. Family members have a lack of knowledge of AF and fear of how AF can cause changes in the family members’ everyday lives. This study demonstrates that there is a need for further research of ways to support the family members of patients with AF.

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Promoting a sense of security in everyday life—A case study of patients and professionals moving towards co‐production in an atrial fibrillation “learning café”

Cited by 7 publications

References 47 publications

Young peoples' involvement in welfare service development—Is voice enough?—A thematic synthesis of qualitative studies

Young peoples' involvement in welfare service development—Is voice enough?—A thematic synthesis of qualitative studies

Contact patterns and costs of multiple sclerosis in the Swedish healthcare system—A population‐based quantitative study

Dancing with atrial fibrillation – How arrhythmia affects everyday life of family members: A qualitative study

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