PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

Kushalnagar, Poorna; Paludneviciene, Raylene; Kallen, Michael A.; Atcherson, Samuel R.; Cella, David

doi:10.1186/s41687-020-00208-7

Cited by 7 publications

(14 citation statements)

References 23 publications

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“…21 Adverse childhood communication experiences were assessed using the Patient-Reported Outcomes Measurement Information System(PROMIS)-Deaf Profile_Early Life Communication Experiences (ELCEs) measure, which has been validated in ASL. 22,23 Psychometric results revealed 2 separate but related constructs as follows 23…”

Section: Methodsmentioning

confidence: 99%

Adverse Childhood Communication Experiences Associated With an Increased Risk of Chronic Diseases in Adults Who Are Deaf

Kushalnagar

Ryan

Paludneviciene

et al. 2020

American Journal of Preventive Medicine

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Introduction: This study explores adverse childhood communication experiences and its RRs for acquiring specific chronic diseases and mental health disorders in adults who are deaf and hard of hearing. Methods: A cross-sectional design with snowball sampling was used to recruit adults who were deaf and hard of hearing and were born or became deaf in both ears before age 13 years. Patientreported outcomes surveys in American Sign Language and English were disseminated to collect data about early life communication experiences with caregivers. Modified Poisson regression with robust SEs was used to calculate RR estimates and 95% CIs for all medical conditions with early life communication experiences as main predictors.

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Section: Methodsmentioning

confidence: 99%

Adverse Childhood Communication Experiences Associated With an Increased Risk of Chronic Diseases in Adults Who Are Deaf

Kushalnagar

Ryan

Paludneviciene

et al. 2020

American Journal of Preventive Medicine

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“…A COVID-19 knowledge and risk perception survey in ASL was created by a team of experts in DHH health, translation, and survey development [ 19 , 20 ]. The web link to participate in this survey was disseminated via social media as well as through direct email invitations to those who previously took surveys through the Center for Deaf Health Equity at Gallaudet University.…”

Section: Methodsmentioning

confidence: 99%

Perception of COVID-19 Physical Distancing Effectiveness and Contagiousness of Asymptomatic Individuals: Cross-sectional Survey of Deaf and Hard of Hearing Adults in the United States

Paludneviciene¹,

Knight²,

Firl³

et al. 2021

J Med Internet Res

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Background During the COVID-19 pandemic, there has been a rapid increase in the amount of information about the disease and SARS-CoV-2 on the internet. If the language used in video messages is not clear or understandable to deaf and hard of hearing (DHH) people with a high school degree or less, this can cause confusion and result in information gaps among DHH people during a health emergency. Objective The aim of this study is to investigate the relationship between DHH people's perception of the effectiveness of physical distancing and contagiousness of an asymptomatic person. Methods This is a cross-sectional survey study on DHH people's perceptions about COVID-19 (N=475). Items pertaining to COVID-19 knowledge were administered to US deaf adults from April 17, 2020, to May 1, 2020, via a bilingual American Sign Language/English online survey platform. Results The sample consisted of 475 DHH adults aged 18-88 years old, with 74% (n=352) identifying as White and 54% (n=256) as female. About 88% (n=418) of the sample felt they knew most things or a lot about physical distancing. This figure dropped to 72% (n=342) for the question about the effectiveness of physical distancing in reducing the spread of COVID-19 and 70% (n=333) for the question about the contagiousness of an infected person without symptoms. Education and a knowledge of the effectiveness of physical distancing significantly predicted knowledge about the contagiousness of an asymptomatic individual. Race, gender, and age did not emerge as significant predictors. Conclusions This results of this study point to the strong connection between education and coronavirus-related knowledge. Education-related disparities can be remedied by making information fully accessible and easily understood during emergencies and pandemics.

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“…PROMIS-Deaf Profile: Communication Health [ 11 ] (Responses: Always, Often, Sometimes, Rarely, Never ).…”

Section: Methodsmentioning

confidence: 99%

Unmet Dental Needs Among Mid-to-Older Deaf and Hard of Hearing Women in the U.S.

Donald¹,

Rao

Jacobs

et al. 2022

Front. Oral. Health

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IntroductionDespite the significant number of deaf and hard of hearing (DHH) people living in the U.S., oral health research on DHH people who use American Sign Language (ASL) is virtually nonexistent. This study aims to investigate dental needs among mid-to-older DHH women and identify social determinants of health that may place them at higher risk for unmet dental health needs as the primary outcome.MethodsThis cross-sectional study uses data drawn from Communication Health domain in the PROMIS-DHH Profile and oral health data from the National Health and Nutrition Examination Survey. Both measures were administered in ASL and English between November 2019 and March 2020. Univariate and bivariate analysis included only complete data, and multivariable logistic regression analyses were conducted on multiply imputed data.ResultsOut of 197 DHH women (41 to 71+ years old) who answered the dental visit question, 48 had unmet dental needs and 149 had met dental needs. Adjusting for sociodemographic variables, disparity in dental needs was observed across education [OR (95% CI): 0.45(0.15, 1.370)] and communication health [0.95 (0.90, 1.01)].DiscussionOur study is the first to describe DHH mid-to-older women's access to oral health care. DHH women who do not have a college degree may be impacted. Further research is needed to elucidate the particular risk factors, including cultural, to which DHH individuals from marginalized racial groups are susceptible to unmet oral health needs.ConclusionsEvidence shows that DHH ASL users who have less years of education or are single experience barriers in accessing dental care.

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PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language

Cited by 7 publications

References 23 publications

Adverse Childhood Communication Experiences Associated With an Increased Risk of Chronic Diseases in Adults Who Are Deaf

Adverse Childhood Communication Experiences Associated With an Increased Risk of Chronic Diseases in Adults Who Are Deaf

Perception of COVID-19 Physical Distancing Effectiveness and Contagiousness of Asymptomatic Individuals: Cross-sectional Survey of Deaf and Hard of Hearing Adults in the United States

Unmet Dental Needs Among Mid-to-Older Deaf and Hard of Hearing Women in the U.S.

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