Project Access: Strategies to improve care for children and youth with epilepsy: Illustrations of recommendations in the IOM report on the epilepsies

Wagner, Janelle L.; Levisohn, Paul M.; Onufer, Charles N.; Uchegbu, Gloria; Fletcher, Linda L.; Zupanc, Mary L.; Browne, Mimi

doi:10.1016/j.yebeh.2013.06.036

Cited by 14 publications

(10 citation statements)

References 9 publications

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“…As we have mentioned in the section on telehealth systems, this concept is very recent so there is not as much research as on the other technologies (see Figure 5). However, after having demonstrated the efficiency of these systems with other groups, they are gradually being included to help people with ASD and their families or carers [81,86]. …”

Section: Discussionmentioning

confidence: 99%

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Technologies as Support Tools for Persons with Autistic Spectrum Disorder: A Systematic Review

Aresti-Bartolome

Garcia‐Zapirain

2014

IJERPH

185

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This study analyzes the technologies most widely used to work on areas affected by the Autistic Spectrum Disorder (ASD). Technologies can focus on the strengths and weaknesses of this disorder as they make it possible to create controlled environments, reducing the anxiety produced by real social situations. Extensive research has proven the efficiency of technologies as support tools for therapy and their acceptation by ASD sufferers and the people who are with them on a daily basis. This article is organized by the types of systems developed: virtual reality applications, telehealth systems, social robots and dedicated applications, all of which are classified by the areas they center on: communication, social learning and imitation skills and other ASD-associated conditions. 40.5% of the research conducted is found to be focused on communication as opposed to 37.8% focused on learning and social imitation skills and 21.6% which underlines problems associated with this disorder. Although most of the studies reveal how useful these tools are in therapy, they are generic tools for ASD sufferers in general, which means there is a lack of personalised tools to meet each person’s needs.

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Section: Discussionmentioning

confidence: 99%

“…They enable patient-doctor information exchange without having to go to the medical facilities, reducing the costs involved [79,80]. For this reason, research on the benefits of telehealth systems cover many fields of health [81,82,83] and are directed to adults as well as children [84,85,86]. …”

Section: Telehealth Systemsmentioning

confidence: 99%

Technologies as Support Tools for Persons with Autistic Spectrum Disorder: A Systematic Review

Aresti-Bartolome

Garcia‐Zapirain

2014

IJERPH

185

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“…There are several studies that clearly demonstrate the effectiveness of multidisciplinary teams, resulting in improvement in quality of life, better patient outcomes, decrease in emergency room visits and unscheduled hospital admissions, as well as medical cost savings. 7,8 Young junior clinical faculty are expected to make steady progress toward the criteria for promotion and should be given wRVU credit for this endeavor. If it is evident, after a mutually agreed time, that the faculty member is not pursuing activities required for promotion, an increase in clinical sessions to 7 or 8 four-hour clinical sessions per week (28 or 32 hours of direct clinical time) may be implemented.…”

Section: The Consultant's Statistical Methods For Determining Averagementioning

confidence: 99%

Child neurology in the 21st century

et al. 2020

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In September 2017, the Child Neurology Society (CNS) convened a special task force to review the practice of child neurology in the United States. This was deemed a necessity by our membership, as our colleagues expressed discouragement and burnout by the increase in workload without additional resources; reliance on work relative value units (wRVUs) as the sole basis of compensation; a push by administrators for providers to see more patients with less allotted time; and lack of administrative, educational, and research support. The CNS Task Force designed and distributed a survey to multiple academic divisions of various sizes, as well as to private practices. Our findings were strikingly similar across different practices, demonstrating high workloads, lack of resources, poor electronic medical record support, and high provider symptoms of fatigue and burnout. From the results, the CNS Task Force has concluded that wRVUs cannot be the sole basis of compensation for child neurology. We have also made several specific recommendations for alleviating the current situation, including innovative ways to fund child neurology as well as ways to enhance job satisfaction.

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“…Available data consistently demonstrate that high‐quality care and optimal outcomes for students with significant health needs results from collaboration and coordination of team members who share the student as a common focus and purpose, thus bringing together diverse skills and knowledge (Orelove, Sobsey, & Silberman, ). Historically, public policies and processes have not reinforced coordinated efforts; however, the critical nature of coordinated care is now increasingly recognized at the policy level, as evidenced by inclusion in the Affordable Care Act (de Voursey & Huang, ), as well as at the practice level evidenced by numerous effective coordinated care models across a variety of youth health issues (e.g., early psychosis, epilepsy; Dixon et al., ; Wagner et al., ). Many of these models, however, focus on a single health issue coordinated through specialty healthcare settings.…”

Section: The Need For Coordinated Carementioning

confidence: 99%

“…Huang, 2016), as well as at the practice level evidenced by numerous effective coordinated care models across a variety of youth health issues (e.g., early psychosis, epilepsy;Dixon et al, 2015;Wagner et al, 2013). Many of these models, however, focus on a single health issue coordinated through specialty healthcare settings.…”

mentioning

confidence: 99%

Increasing equitable care for youth through coordinated school health

Sanetti

2017

Psychology in the Schools

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Nearly a quarter of the students in the U.S. education system have a chronic health condition, disability, or special healthcare need. Students living in poverty and those at risk for or with disabilities have higher rates of health issues and encounter more barriers to accessing appropriate health care than their peers. The reciprocal influences between health and education as critical social determinants for youth are well established and prompted the development of a comprehensive model of school‐based coordinated health, the Whole School, Whole Community, Whole Child (WSCC) model. A brief overview of (a) education‐related health issues experienced by students living in poverty and those at risk for or with disabilities, (b) access to health care, (c) the need for coordinated care, and (d) the WSCC model are provided. The WSCC model represents an unprecedented opportunity to increase equitable care for youth through coordinated school health.

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Project Access: Strategies to improve care for children and youth with epilepsy: Illustrations of recommendations in the IOM report on the epilepsies

Cited by 14 publications

References 9 publications

Technologies as Support Tools for Persons with Autistic Spectrum Disorder: A Systematic Review

Technologies as Support Tools for Persons with Autistic Spectrum Disorder: A Systematic Review

Child neurology in the 21st century

Increasing equitable care for youth through coordinated school health

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