Progress Update: Palliative Care Development Between 2017 and 2020 in Five African Countries

Luyirika, Emmanuel; Lohman, Diederik; Ali, Zipporah; Atieno, Mackuline; Mahenge, Anna; Mmbando, Paul; Muinga, Esther; Musyoki, David; Mwesiga, Mark; Namisango, Eve; Nosim, Peter; Opio, Geoffrey; Pardy, Sara; Ruzima, Aimable; Skowronska, Eva; Uhagaze, Blaise; Zalwango, Joyce; Aluso, Aggrey

doi:10.1016/j.jpainsymman.2021.12.026

Cited by 17 publications

(17 citation statements)

References 16 publications

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“…As the disease burden is rising in Africa, palliative care is expanding in attempt to meet the needs (E. Luyirika et al, 2022). Because palliative care is based on the preferences and priorities of the individual and their family, it is important to understand what these are.…”

Section: Discussionmentioning

confidence: 99%

“…Since 2000, palliative care on the continent has been expanding. A report on the expansion between 2017–2020, indicated that 50% of Africa's health departments had a focal person for palliative care and a total of 1085 palliative care services had been established (African Palliative Care Association, 2023; Luyirika et al, 2022). Mozambique is still in its initial stages of developing palliative care with many doctors having only cursory knowledge of palliative care (Pinto et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

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End-of-Life Preferences and Priorities of Community-Dwelling Mozambicans: An Evaluation of Measurement Tools

Heller

2024

Illness, Crisis & Loss

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Palliative care is expanding in Africa as the continent faces a rising disease burden. As the specialty takes form, it is important to acknowledge the cultural mores regarding health and disease. Many Africans perceive health as more than the individual's physical body, instead include the spirituality and well-being of family, community and ancestors. Much of living is done with the goal of becoming an ancestor, which is tied to the individual's burial and ceremonies. Despite their importance, conversations about death are often thought to be culturally taboo. This poses a challenge to palliative care which is based on the individual preferences and priorities, usually identified through shared decision-making. Little is known about the end-of-life priorities and preferences in Africa, leading to the research question: What are the end-of-life preferences and priorities for community dwelling adults in Mozambique? This paper examines instruments that can be used to measure end-of-life preferences.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

End-of-Life Preferences and Priorities of Community-Dwelling Mozambicans: An Evaluation of Measurement Tools

Heller

2024

Illness, Crisis & Loss

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“…African reality generally shows a similar situation characterized by an even distribution of PC services across the continent (concentrated in Uganda, South Africa, Rwanda, and Kenya) (19)(20)(21)(22), about 20% of countries lacking a single PC service, and very low opioid consumption (10). One notable nding of published African literature is that there is no information on PC provision for about half of African countries and, where data are available, these pertain mostly to Anglophone African countries (20).…”

Section: Discussionmentioning

confidence: 99%

Palliative Care progress in Benin: a situation analysis using the WHO development indicators

AGBODANDE,

GNANGNON,

ASSOGBA

et al. 2023

Preprint

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Context Palliative care (PC) situation in most African countries remains underdiagnosed. Benin has piloted the implementation of a set of indicators proposed by the WHO to measure PC development. Objectives To examine the current state of PC in Benin. Methods A workshop with stakeholders was organized to validate the WHO indicators in the Beninese context. Indicators were rated by relevance and feasibility, data sources were agreed, and a survey adapted. Data were collected between March and May 2023. Results There is emerging community involvement in PC through the presence of patients' rights promoters, as well as a political commitment expressed in the National PC strategy, the inclusion of PC services in the list of basic health services, and an assigned national authority –within the Ministry of Health- responsible for PC. While no PC-oriented research is documented, the celebration of the National PC Conference represents a first step to ground PC delivery in evidence. Reported annual consumption of opioids is 0.18 (ME) milligrams per capita, 34% of healthcare establishments have essential medicines for pain and PC and 16.5% of patients with palliative needs have access to oral morphine. To date, none of the medical or paramedical schools offers PC training and there is no official specialization in palliative medicine for doctors. PC is provided by 11 specialist teams (0.08/100,000 inhabitants) none of which provide pediatric care. Conclusion Despite growing political, professional, and community commitment, there are challenging shortcomings in education, research, essential medicines, and access to PC services.

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“…As noted in Luyirika et al, policy and practice change are inherently unpredictable and attribution of impact is often difficult and rarely conclusive as numerous factors influence law, policies and practices. 59 This article uses a retrospective case study analysis to examine impact. For each country, we reviewed theories of change, funding and advocacy strategies, implemented activities and interventions, their outputs and outcomes, and compared them to legal, policy and service developments in practice.…”

Section: Discussionmentioning

confidence: 99%

Progress Update: Development of Palliative Care From 2017 to 2020 in Five Countries in Eurasia

Lohman¹,

Abidjanova²,

Amiryan³

et al. 2022

Journal of Pain and Symptom Management

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Progress Update: Palliative Care Development Between 2017 and 2020 in Five African Countries

Cited by 17 publications

References 16 publications

End-of-Life Preferences and Priorities of Community-Dwelling Mozambicans: An Evaluation of Measurement Tools

End-of-Life Preferences and Priorities of Community-Dwelling Mozambicans: An Evaluation of Measurement Tools

Palliative Care progress in Benin: a situation analysis using the WHO development indicators

Progress Update: Development of Palliative Care From 2017 to 2020 in Five Countries in Eurasia

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