Professionals partnering with family carers in home-based activity for those with dementia

Chung, Pat

doi:10.1179/otb.2013.67.1.003

Cited by 3 publications

(10 citation statements)

References 18 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A useful layout was perceived as one that includes a toilet and shower located on the same level/floor (Forbat, 2004;Olsen, 1996), a ground floor laundry (Olsen, 1996), and is compact, easy and one level layout without stairs (Olsen, 1996). Multi-level design was perceived as unhelpful as it did not support easy surveillance (Askham, 2007) and stairs were perceived as a potential falls risk (Chung, 2013). Small and divided rooms were also perceived as unsupportive of supervision at home whereas an open layout was perceived as helpful because it enhances visibility and hence makes monitoring and interaction for the carer easier, and fosters reassurance for the person with dementia (Olsen, 1996;Askham, 2007).…”

Section: Useful Home Componentsmentioning

confidence: 99%

“…Family carers adapted their space to: prevent harm, make the home practical and safe, promote autonomy, overcome architectural limitations (Chung, 2013;, and preserve order . In order to be effective, adaptive strategies need to be individualised (Richter, 1995) and responsive to specific situations (Redfern, 2002).…”

Section: Individualised Strategiesmentioning

confidence: 99%

“…One study pointed to the resourcefulness of carers and their ability to create therapeutic possibilities in the home setting (de la Cuesta, 2005). Often carers became inventive via trial and error and without professional input (Chung, 2013;Kinney, 2003;Olsen, 1996;Richter, 1995). For example, many publications gave examples of how carers transformed household goods into safety features and/or technological objects, like coming up with their own safety alarms, i.e.…”

Section: Improvising Strategies Studies Highlighted That Carers Had mentioning

confidence: 99%

“…For people with dementia, television and radio provided company and a means of connecting with the outside world (de Witt, 2009). Music was used to motivate and engage people with dementia in daily activities and/or offer mental stimulation and reminiscence (Baker, 2012;Chung, 2013;Sixsmith, 2007), and to enhance both the carers' and the relatives' mood and wellbeing (Baker, 2012;Chung, 2013;Sixsmith, 2007). A single study (Chung, 2013) reported that using music was not found helpful for the person with dementia.…”

Section: Behavioural Strategiesmentioning

confidence: 99%

“…Similarly, television was perceived as offering mental stimulation, company and comfort for some people with dementia (Boger, 2013;Chung, 2013;de Witt, 2009;Dodds, 1994), whereas for some it was perceived as too difficult to follow (Nygård, 2002;Richter, 1995). Additionally, carers mentioned that they liked 'low-tech' solutions (Powell, 2010), and some rejected falls detectors (Boger, 2013), alarms (Yang, 1997), and medication devices (Kinney, 2003;Nochajski, 2013).…”

Section: Behavioural Strategiesmentioning

confidence: 99%

See 4 more Smart Citations

The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

et al. 2017

View full text Add to dashboard Cite

Background The domestic home is the preferred site for care provision for people with dementia and their families, therefore creating a dementia and caring friendly home environment is crucial. This systematic review synthesised qualitative studies to explore the role of the home environment and identify potential barriers and facilitators in home dementia care and support to inform future practice and research. Methods A systematic search in 12 databases identified international qualitative literature on perceptions and experiences of community-dwelling people with dementia, family and formal carers regarding the role of the home environment and ways to tackle daily challenges. Results Forty qualitative studies were included and analysed using thematic synthesis. The main three themes were: 'home as a paradox', 'there is no magic formula' and 'adapting the physical space, objects and behaviour'. Findings indicate that home is an important setting and is likely to change significantly responding to the changing nature of dementia. Themes were later validated by family carers of people with dementia. Conclusions The home environment is an important setting for care and needs to remain flexible to accommodate changes and challenges. Family carers and people with dementia implement and often improvise, various environmental strategies. Continuous and tailor-made support at home is required.

show abstract

Section: Useful Home Componentsmentioning

confidence: 99%

Section: Individualised Strategiesmentioning

confidence: 99%

Section: Improvising Strategies Studies Highlighted That Carers Had mentioning

confidence: 99%

Section: Behavioural Strategiesmentioning

confidence: 99%

Section: Behavioural Strategiesmentioning

confidence: 99%

See 3 more Smart Citations

The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

et al. 2017

View full text Add to dashboard Cite

show abstract

Effectiveness of home-based, non-exercise interventions for dementia: A systematic review

Tan

Boo

Chong

et al. 2022

Front. Aging Neurosci.

View full text Add to dashboard Cite

IntroductionDementia is a neurodegenerative condition characterized by cognitive decline and increased functional dependency. With most persons living with dementia (PLWDs) residing at home, home-based interventions provide a convenient and individualized alternative for person-centered care. Most of the evidence focused on specific interventions or exercise-based activities; there remains a gap in understanding the impacts of a broader range of non-exercise interventions on PLWDs and their caregivers. This review aimed to understand the impacts of home-based, non-exercise interventions on the behavioral, functional, cognitive, and mood outcomes of PLWDs, and their caregiver's quality of life (QoL), burden and mood.MethodsSearch for studies published up to June 2020 was conducted on CINAHL, PsycArticles, PubMed, SAGE Journals, Science Direct, and Web of Science. A search was also done manually based on the bibliographies of selected articles. The inclusion criteria for the systematic review were: (i) participants with a medical diagnosis of dementia, (ii) participants who resided at own home, (iii) intervention in the home setting, (iv) investigate interventions other than physical exercise, (v) randomized controlled trials (RCTs) or quasi-experimental studies, and (vi) full-text study published in English and in a peer-reviewed journal.Results and discussionEighteen studies consisting of 14 RCTs and 4 quasi-experimental studies were included. Interventions included were occupational therapy, cognitive rehabilitation, tailored activity program, cognitive stimulation therapy, personalized reminiscence, music therapy, reality orientation, biobehavioral and multicomponent interventions. Results were mixed, but important intervention features were highlighted. Personalized activities for PLWDs that are aligned to their interest and ability appeared to contribute to intervention effectiveness especially in reducing behavioral symptoms and improving functional status. Involvement of caregivers in interventions is another feature of effective interventions for both the PLWDs and the caregivers' QoL, provided it is not deemed demanding or challenging to the caregivers. The inclusion of caregiver's education was effective in reducing caregivers' burden, particularly when the interventions improved the PLWD's functional status.

show abstract

Different Caregiver, Different Collaboration

Rønn-Smidt

Shim

Fitzsimmons

et al. 2020

JSBHS

View full text Add to dashboard Cite

The quality of the collaboration between health professionals and caregivers is of great significance to outcome and recovery. Severe brain injuries after a stroke can leave patients unable to communicate their needs and wishes with health professionals, in which case the role of the caregiver(s) becomes even more important. This position is highly differentiated, and there are substantial variations in how caregivers participate in the collaboration. Using the Bourdieusian concept of cultural health capital, we aimed to develop a broader understanding of the role played by the patient’s caregiver and how inequality is produced in the encounter with professionals. This qualitative study was conducted from 2014 to 2018. We observed the meetings and interactions between caregivers and health professionals during patients’ neurorehabilitation after a stroke, and we interviewed caregivers and health professionals on their experiences during this period. Constructing three different caregiver types—the proactive, the persistent, and the deferential—we discovered different ways of interacting and different attitudes related to cultural health capital, which provided the caregiver with more or fewer opportunities to participate in a dialogue and negotiation on behalf of the patient.

show abstract

Professionals partnering with family carers in home-based activity for those with dementia

Cited by 3 publications

References 18 publications

The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

Effectiveness of home-based, non-exercise interventions for dementia: A systematic review

Different Caregiver, Different Collaboration

Contact Info

Product

Resources

About