Procurement of shared data instruments for Research Electronic Data Capture (REDCap)

Abstract

REDCap (Research Electronic Data Capture) is a web-based software solution and tool set that allows biomedical researchers to create secure online forms for data capture, management and analysis with minimal effort and training. The Shared Data Instrument Library (SDIL) is a relatively new component of REDCap that allows sharing of commonly used data collection instruments for immediate study use by 3 research teams. Objectives of the SDIL project include: 1) facilitating reuse of data dictionaries and reducing duplication of effort; 2) promoting the use of validated data collection instruments, data standards and best practices; and 3) promoting research collaboration and data sharing. Instruments submitted to the library are reviewed by a library oversight committee, with rotating membership from multiple institutions, which ensures quality, relevance and legality of shared instruments. The design allows researchers to download the instruments in a consumable electronic format in the REDCap environment. At the time of this writing, the SDIL contains over 128 data collection instruments. Over 2500 instances of instruments have been downloaded by researchers at multiple institutions. In this paper we describe the library platform, provide detail about experience gained during the first 25 months of sharing public domain instruments and provide evidence of impact for the SDIL across the REDCap consortium research community. We postulate that the shared library of instruments reduces the burden of adhering to sound data collection principles while promoting best practices.

Outcomes That Define Successful Advance Care Planning: A Delphi Panel Consensus

“…(1) A unique link to a REDCap rating survey was sent to each panelist for Rounds 1 and 2. (29, 30) Tables of outcomes were sent to participants by individual email for Rounds 3–5. Responses were stored anonymously and presented only in aggregate form.…”

SUNDROP: six years of screening for retinopathy of prematurity with telemedicine

“…All study data were collected and managed in a Health Insurance Portability and Accountability Act-compliant manner using REDCap (Research Electronic Data Capture) tools hosted at Stanford University. 23 All enrolled infants underwent inpatient retinal image capture for ROP screening with remote evaluation at the Stanford Byers Eye Institute reading centre by an ROP specialist. For all patients, the frequency of screening examinations was consistent with those recommended by the joint criteria statement for ROP screening.…”

The Impact of Depression and Pain Catastrophization on Initial Presentation and Treatment Outcomes for Atraumatic Hand Conditions

“…We also collected data regarding subjects' diagnosis(es) and treatment(s). Study data were collected and managed using REDCap (Research Electronic Data Capture) tools hosted at our institution 51,52 .…”