Process of Transition for Congenital Heart Patients

Habibi, Hajar; Emmanuel, Yaso; Chung, Natali

doi:10.1097/nur.0000000000000335

Cited by 17 publications

(17 citation statements)

References 20 publications

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“…They can be pivotal in the role of transition coordinator [21,25,31,32]. In line with our results, examples of transition programmes in the literature J o u r n a l P r e -p r o o f showed that such nurses in this role as transition coordinator offer individualised and structured support, guidance, and education to patients and parents [14][15][16]33]. Our survey also showed that some transition criteria regarding this aspect were met less frequently.…”

Section: Transfer and Transition Criteriasupporting

confidence: 84%

Transfer and transition practices in 96 European adult congenital heart disease centres

Thomet

Schwerzmann²,

Budts³

et al. 2021

International Journal of Cardiology

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Section: Transfer and Transition Criteriasupporting

confidence: 84%

Transfer and transition practices in 96 European adult congenital heart disease centres

Thomet

Schwerzmann²,

Budts³

et al. 2021

International Journal of Cardiology

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“…The involvement of a nurse in the transition clinic (multidisciplinary team), with the aim of spending time in helping CHD adolescents develop a comprehensive understanding of their condition, self-care management, and the skills that are needed to take part in adult life is another reliable strategy to prevent any lapse in care [ 49 ].…”

Section: Resultsmentioning

confidence: 99%

Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review

et al. 2023

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The majority of patients born with congenital heart disease (CHD) need lifelong surveillance with serial clinical attendance and examinations. However, loss of follow-up (namely no documented follow-up for 3 years or more) is a recognised common problem since it is often related to remarkable worsening in the health of CHD patients with increased morbidity and mortality. Transitioning from paediatric to adult care has proven to be the most vulnerable point in the care of these subjects. As such, a systematic review was carried out to ask the following questions: What is the percentage of loss of follow-up worldwide? Are there regional fluctuations in the percentage? Is there a link between loss of follow-up and the complexity of CHD? What strategies should be employed to lower the risk of discontinuity in care? The most recent worldwide averaged loss of follow-up is 26.1%, with significant fluctuations across continents and countries. This percentage is even higher (31.9%) when one includes all untraceable patients, presuming that they are not having any cardiac follow-up. The highest discontinuity of care was reported in the USA and in patients with simple CHD. Planning the rules of transition seems to be one of the most reliable tools to minimise the number of CHD patients who are lost in transition. Recalling patients, with general practitioners who are crucial in readdressing half of the lost to follow-up CHD patients to adult CHD specialists, and a good relationship between paediatric cardiologists and the adult CHD team are two other valuable strategies in aiding successful transition.

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“…Educational components were coded based on topics that aimed to assess, provide, or increase participants' knowledge about their diagnosis and health management (n=9, 90%). Patient teaching activities included a one-on-one nurse led educational session between specifically trained cardiology nurses and adolescents within an inpatient or transitional clinic settings (n=4, 40%) (Acuña Mora et al, 2017, 2020Habibi et al, 2017;Ladouceur et al, 2017;Mackie et al, 2014Mackie et al, , 2016. Other activities included the use of adolescent-centred communication through a communication paper that allowed adolescents to electronically select topics they would like to discuss with HCPs (de Hosson et al, 2020) and posters highlighting developmentally appropriate steps for increased self-management (Kovacs et al, 2012).…”

Section: Intervention Characteristics Intervention Componentsmentioning

confidence: 99%

“…Goal setting was highlighted as a skill to supplement the knowledge that was disembarked through educational components (n =1, 10 %) (Krasuski & Maslow, 2020). Habibi et al, 2017;Kovacs et al, 2012). Activities within this component included transition events that included tours (n=2, 20%) and introductions with the adult care teams (n=2, 20%) (Habibi et al, 2017;Kovacs et al, 2012), reading materials with contact information (n=3, 30%) (Acuña Mora et al, 2017, 2020de Hosson et al, 2020;Kovacs et al, 2012) and understanding the transfer process (n=1, 10%) (Ladouceur et al, 2017).…”

Section: Skill Development Skill Development Components Included Acti...mentioning

confidence: 99%

Mapping Congenital Heart Disease Transitional Care Interventions to Health-Related Quality of Life Domains: A Scoping Review

Patel

2024

Preprint

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Background: Transitional care interventions for adolescents with congenital heart disease aim to prepare adolescent for transition from pediatric to adult healthcare settings. Purpose: To identify the components, mediums of delivery and dosage of transitional care interventions for adolescents living with congenital heart disease and map the identified intervention components to specific health-related quality of life domains. Methods: Arksey and O’Malley’s framework was used to identify transitional care interventions and map interventions to health-related quality of life domains. Results/Discussion: Eleven articles were selected for review. Intervention components included education, skill development and information about adult healthcare settings. Mediums of delivery included written and online resources, transition events, patient passports and transition coordinators. Dosage of interventions were not clearly reported. Mapping indicated that all reviewed transitional care interventions addressed at least one domain of HRQOL. Conclusion: Future investigations should address the relationship between transitional care interventions and health related quality of life.

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Process of Transition for Congenital Heart Patients

Abstract: A nurse-led transition clinic enhances long-term care of patients by supporting the young adults and their family/carer through the transition and transfer of the care to promote the young adult's understanding of their condition and to prevent any lost to follow-up.

Cited by 17 publications

References 20 publications

Transfer and transition practices in 96 European adult congenital heart disease centres

Transfer and transition practices in 96 European adult congenital heart disease centres

Strategies to Aid Successful Transition of Adolescents with Congenital Heart Disease: A Systematic Review

Mapping Congenital Heart Disease Transitional Care Interventions to Health-Related Quality of Life Domains: A Scoping Review

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